After the Mastectomy: Breast Reconstruction for Beauty and Profit
by Suzanne Reisman

Some Hidden Choices in Breast Reduction by Natasha Singer, which is most insultingly a part of The New York Times' "The Price of Beauty" series, explored the different options women are offered - and not offered - after a mastectomy. I'm sure that readers will be shocked - shocked! - to hear that women are not always informed of the different types of breast reconstructions available because some procedures are less profitable for doctors and hospitals than others. Profit above women's health? Who wouldda thunk it? Sigh.

The other problem is that many doctors are not proficient in alternate types of surgery, thus limiting women's choices. In this instance, the article points out that doctors don't tell women that there are other options, preventing them from seeking surgeons who do know how to perform them. What? Self-interest above that of the patient? Who wouldda... never mind.

Of course, the biggest problem of all is that many women aren't told they have any reconstruction options:

Only one third of women undergoing operations for breast cancer said their general surgeons had discussed reconstruction at all, according to a study by Dr. Alderman of 1,844 women in Los Angeles and Detroit that was published in February in the journal Cancer.

“In the big picture, it would be great if we could just get doctors to tell people they have an option of reconstruction,” Dr. Alderman said.

Yes, that would be nice, wouldn't it? Incidentally, the presentation of options to women with breast cancer also is impacted by the ethnicity of the patient. Cord Jefferson at Stereohyped comments on a study reported in Novermber 2008 in US News and World Report that:

Black women are 47% less likely than other women to undergo breast reconstruction after having a mastectomy... African-Americans have fewer referrals to plastic surgeons, and if they do have a referral, they have a lower rate of going to those referrals. Strangely, even once they see the plastic surgeon, reconstruction seems to be offered with less frequency.

Further, it is important to note that they type of reconstructive surgery performed can impact the effectiveness of subsequent radiation treatment, according to a study cited at Hypography, a science website. In fact, Hypography reports that:

For breast cancer patients who underwent a mastectomy who undergo radiation therapy after immediate breast reconstruction, autologous tissue reconstruction provides fewer long-term complications and better cosmetic results than tissue expander and implant reconstruction, according to a study in the November issue of the International Journal of Radiation Oncology*Biology*Physics, the official journal of the American Society for Therapeutic Radiology and Oncology.

One guess which is the most commonly performed reconstructive surgery? (Hint: it involves implants...) Obviously, given the unique circumstances of every brest cancer patient, not everyone will benefit from the exact same procedure, but again, it would be good to hear about the full range of options, wouldn't it?

The Times notes that approximately:

66,000 women in the US underwent mastectomies in 2006... and about 57,000 women had reconstructive breast surgery last year, according to estimates from the plastic surgery society. For many of these women, the operations were more about feeling whole again than about restoring their appearance.

Which brings me to my beef with categorizing this article as one about beauty. I understand that technically, replacing a breast is not medically necessary. Yet the article acknowledges that most women are not doing this for reasons of beauty. American women live in a culture in which our breasts are a large part of what makes us women. While that is appropriate or not as a standard for being considered female, at this point breasts are a critical part of gender identity for many. With that understanding, it is absurd to call reconstructive breast surgery a mere beauty procedure.

MMM at Mage's double whammy diary is also offended by the title:

The title of the article is "The Price of Beauty: Some Hidden Choices in Breast Reconstruction." I find this so irritating. I'm still struggling to articulate exactly what all the issues related to losing a breast are, so it's hard for me to write exactly why this is so galling. It feels misleading, dismissive, and minimizing. It seems to reduce the issues around post-mastectomy breast recontruction down to vanity.

...if I was reading the New York Times on paper right now, instead of on-line, I would take the biggest fattest sharpie I could find and cross out, "The Price of Beauty." In it's place I would write a more truthful, more accurate and more controversial title.

"The Price of Capitalist Health Care: Hidden Choices In Breast Reconstruction."

I could not say it better myself.

Suzanne also blogs at Campaign for Unshaved Snatch (CUSS) & Other Rants. Her first book, Off the Beaten (Subway) Track, is about unusual things to see and do in New York City.

Comments

 

So depressing

It's weird to think that my mother was "lucky" that she had a double mastectomy and reconstruction all at the same time in 1983 - and she got Dow silicone implants. Yeah - the ones that were the subject of years of litigation and which were completely ruptured when she decided to have them removed, preventatively, not because she was having any trouble that she later learned was in fact connected to the rupture of the silicone years earlier.

But they didn't tell the patients about those risks either.  The patients just never seem to win  - either they don't get given options, or they don't get told all the risks, or, though low income women can get screening, they can't get treatment (that's something Ohio breast cancer advocates are working on).

Thanks for writing about this - it's very depressing that 25 years after my mom survived, there are still so many problems.

JillWrites Like She Talks

 

My mom, too

My mom had breast cancer in 1980 at the age of 33 and the same thing - mastectomy followed by silicone breast implants. She took the lawsuit settlement, then later discovered that the implants were leaking. There's no proof that her myriad of health issues is linked to the implants, but there's not proof that they aren't. And it infuriates me that the FDA recently reapproved the use of silicone in implants.

Suzanne Reisman, Contributing Editor - Feminism & Gender
Campaign for Unshaved Snatch (CUSS) & Other Rants

 

And genetic testing for less fortunate?
fahgeddaboutit

My mom was tested for the BRCA1 and 2  before we decided to try to conceive a third child - she was negative - that was in 1998 I think. 

Yeah - my mom did the settlement too - she went through a woman lawyer in Fairfield or Stamford or somewhere who was doing a ton of the cases - I want to say her name was Karen something but I don't remember.  And yes - they convinced them that they'd never be able to prove that the silicone in their systems were the cause of the unusual health issues.  

But again - what if my mom didn't have the health care coverage she's had? She worked at Yale for 14 years and she and my dad have fought all the way to stay included in a plan they try to throw them off of all the time. It's crazy. And yet we're the lucky ones.

Jill Writes Like She Talks

 

and what about those of us who opt out?

I had a single masectomy in early 2006. For a variety of reasons, reconstruction is not a safe option for me (lymphedema and a depressed immune system) but I don't think I would have chosen this route even if it had been an option.

My mastectomy was day surgery. Reconstructive surgery is much more intense and risky than that.

I certainly don't judge women who choose to go the surgery route. We each need to do what is right for us. But as someone who doesn't wear a prosthesis (too painful), I would love to live in a world where the choice to opt out of surgery was considered to be equally valid an where asymmetrical body was as acceptable as any other kind.

For examples of clothing for women with bodies like mine, check out Rhea Belle Apparel. Jacqueline Skaggs, the talent behind Rhea Belle, hopes to launch a bra soon. Now that, as far as I'm concerned, is something to get excited about.

Suzanne, thanks for always writing so thoughtful posts.

Laurie

Not Just About Cancer

 

Valid option, too

I often think that if I get breast cancer I would not opt for an implant. I think that it is something that also needs to be discussed by doctors, but I guess an article about beauty isn't going to consider that. :)

Suzanne Reisman, Contributing Editor - Feminism & Gender
Campaign for Unshaved Snatch (CUSS) & Other Rants

 

Been there

I was diagnosed at age 38 and the funny thing was that I just assumed that I would have immediate reconstruction after my bilateral mastectomy. Turns out that it was not an option for me with the treatment I still needed to have. I have prosthetics that I wear because if I don't I look pregnant.

Here's the other thing that isn't discussed. If you have a single mastectomy and have an implant you'd better keep your weight the same.  A friend of mine had a single with saline implant.  She has since gained weight (she had lost a lot of weight when she was sick).  Well now she is asymmetrical , like it or not. 

Thanks for writing about this article.  I commented ono it when it ran and I think more women need to know their options. 

Kate

I blog at http://www.aftercancernowwhat.blogspot.com 

 

What a surprise!

Suzanne,

I'm doing some research this morning, in prep for a newspaper interview.  One of our local reporters wants a perspective on reconstructive surgery from someone who chose not to have it.  Her interest was generated in part by an upcoming screening of the film "Absolutely Safe," a documentary about breast implants.

Because this issue is so important to me, I want to sound thoughtful and well-informed this afternoon. So, I was really delighted to find this post of yours, which is very well organized and intelligent.  I figured if I printed it out and brought it with me as a kind of cheat sheet...I could sound very well-organized and intelligent too! 

You cannot imagine my surprise when I got to the end of your article and found a quote from my very own blog!  Because I write and post mostly for my own mental health, it's beyond thrilling for me to find out that other people actually find it useful. 

Thanks so much for your clear thinking and beautiful writing.

 Mage