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Shannon Des Roches Rosa at 11:58pm Thu, 19 Nov 2009 under
Mommy & Family,
travel,
parenting,
stress,
special needs,
autism,
thanksgiving,
holidays,
accommodation,
Special needs,
Travel,
Special Needs,
Kids,
stims; 386 views
As last year's holiday season sputtered out and the relatives left our house, I exhaled, then smiled. I'd really enjoyed all the feasting and fun, from the morning moment the kids' cousins started frolicking underfoot, until the last precious late-night conversation wound down. But there is no way in hell we can manage another holiday season like that one, because floundering in all the happy happy joy joy was one miserable, disoriented, sleep-disturbed little boy with autism and his equally disoriented parents.
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Shannon Des Roches Rosa at 2:24am Tue, 17 Nov 2009 under
Mommy & Family,
special needs,
Down Syndrome,
wheelchair,
Social Action,
Special needs,
Movies & TV,
inclusive,
attitudes,
Special Needs,
Glee,
Kevin McHale,
paraplegic; 828 views
I have new faith in pop culture as a vector of enlightenment now that the TV show Glee has given us Wheels, a thoroughly contemporary After School Special about people with disabilities.
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Ever since I became Leo's mom and Leo became Leo, there is one special day I look forward to, every year. It's not Christmas, as the winter holiday season trumps even summer on my family's trepidation scale. And it's not the first day of school, despite how gleefully I usher my children into their teachers' care.No, it's the day of Leo's annual birthday party. Because on that day, every year, my son gets to be his own exuberant self, unreservedly.
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Shannon Des Roches Rosa at 10:14pm Wed, 21 Oct 2009 under
Mommy & Family,
parenting,
autism,
Halloween,
pumpkin,
activities,
sensory,
wheelchair,
Holiday,
Special needs,
children with special needs,
Special Needs,
Vegetables,
For kids,
Halloween,
trick-or-treating,
speical needs; 1099 views
Halloween should not be a time for parents of kids with special needs to dwell on Ghosts-of-Halloween-Past or Ghosts-of-Halloween-That-Might-Have-Been, because there's far too much fun to be had. We do, however, need to approach Halloween with clear-headed creativity and flexibility, and prioritize our kids' needs and stamina. So, if you're in the market for Halloweening advice, let me dump some on your head, courtesy of personal experience, friends' adventures, the Internet, and the Twitterverse.
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Autism Science Foundation president Alison Singer is well known in the autism community for her formative role at Autism Speaks, for her controversial participation in their Autism Every Day video, and for leaving Autism Speaks to found the Autism Science Foundation.
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