Sometimes social media gets a bad rap. Sure, virtual gathering places can result in unnecessary drama and rants. But for me, social media – Facebook in particular - has been an instrument of support and friendship at a time when I needed it most.
Are you heading to the BlogHer conference in New York this week? Or maybe heading away from home for a much needed vacation? Wherever you may be traveling, when you have a chronic illness, traveling can be overwhelming.
But with some preparation, you can take the stress out of traveling and focus on enjoying your trip instead. Beyond packing your clothes, shoes, and a pen for keeping notes, when you have a chronic illness, you have to take a few extra precautions before heading out the door for a long trip.
This illness has been a blessing in disguise - It is my opinion that no parent should ever say this about their child’s illness, at least not in their child’s presence anyway.There are absolutely no blessing in my daughter, Bethany, having had a brain tumor nor are there any blessings in the disabilities she has acquired from complications during the surgery required to remove it....more
At 4 years old, you never expect to end up in one of the largest hospitals in Boston, surrounded by doctors in white coats, enduring test after test, prick after prick, all in the name to walk again.But I did.Let me back up. 25 years ago this coming April, started out like any normal month. I was an active four-year old. An only child of two wonderful parents. I was in pre-school, and was getting ready to enter kindergarten in the fall. I loved arts and crafts, playing on the swing set, and just being a typical kid....more
THANK YOU FOR MY PROBLEMS It took me many tragedies, 5 years on dialysis, two kidney transplants and a myriad of other seemingly overwhelming and unfair obstacles to be thrown in my path to finally utter the words, "I am so grateful for my problems!"Why would I say such a thing?...more
Visiting doctor after doctor, none could diagnose my pain. They would prescribe a pill with the hopes of relief. Finally one doctor, after still not providing a diagnosis, said, “Let’s give you a hysterectomy. Maybe that will help.” This experience led me to become the project manager of my own health....more
The poor boy inherited his mother’s bad throat.A crummy night’s sleep, an overtaxing day, a demanding week, and there they go: the tonsils. Swelling, scratching, kissing, and aching–tender tonsils manifest the stress....more
If you know me at all you know lazy really isn't in my lexicon. So, this weekend, when I "just didn't feel like getting out of bed", I gave myself a really hard time."Don't feel like getting out of bed?" I asked myself as I lay there with my head under the pillows. "Sounds like someone wants to use the weekend to her advantage and play hooky from being a housewife. Because, oh, you have it so hard, wah wah wah. Have to do dishes and laundry and go grocery shopping and to kid soccer games. It's SO HARD to be you. What is your problem?"...more
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