Special needs

 
 

I'm Scared My Non-Verbal Child Will Be Abused at School

family

In this world of special needs, I find myself compelled to offer advice on IEP questions when my new-found friends ask them. I can’t stop myself. I can feel their anxiety. I understand their fears. I relate to their worries. From a teacher’s perspective, the things I want for my child are almost unreasonable. Almost. If Alexander went to school right now, he would be non-verbal. This is one of my biggest fears. He will not be able to tell me about his day. The twins, at age 3, with their muddled version of reality, can at least give me a inkling of their day. They can tell me if they saw someone or what they had to eat.  Read more >

"It's Not Fair to the Normal Kids." Are You Kidding Me, Lady?

normal kids

I told her that my son has autism and she responded, "oh, my nephew is autism." Yes, she said it like that -- should have been my first clue. She continued: "They try to stick him in with the normal kids, but I just don't think it makes any sense. It's not doing ANYONE any good having him with NORMAL kids...."  Read more >

April As Autism Acceptance Month

leo riding his bike

Many autism organizations are celebrating April as Autism Awareness Month. But others, especially those in which autistic people have a say, are celebrating Autism Acceptance Month instead. Why? Because Autism Awareness doesn't really help autistic people in general, and kids like my son Leo specifically. It makes it too easy for well-meaning people to feel they are "doing something" about autism if they wear a blue ribbon or buy a blue light bulb -- when neither of those actions translate to real-world benefits and support for autistics and autism families.  Read more >

Letting Go and Letting Him Learn

letting go

I love how blogging allows us to tell a continuing story, let's us share where we once were, where we are now and how we got from Point A to Point B. I think that's extremely helpful when it comes to parenting blogs. Barb at Plate Spinning 101 recently shared about the journey they went on from her son's birth through his autism diagnosis and up to now. It's a hopeful post, full of learning to let our kids live their lives.  Read more

For Better or For Worse: How a Marriage Survives Raising a Special Needs Child

marriage

My husband and I decided to share with you one of many challenges we’ve faced in our marriage and the lessons we learned with hopes to encourage any of you who may find yourself in a similar situation. Like any good story, I have to start from the beginning. When my son was first diagnosed with mental illness, my husband and I took two very different paths to cope.  Read more >

School Bans Child with Cerebral Palsy from Using Her Walker

lakay from video

Kristi Roberts, a mom from outside of Houston, is planning to sue the school district which recently told her that her daughter cannot use her walker at school. Her daughter LaKay has cerebral palsy and uses the walker to get around. This smart mom took audio of the meeting. Ellen Seidman at Love That Max not only shared about the disturbing story but shared why the story is important to her.  Read more

My Autistic Son's Life: Not Less Valuable

leo

Obviously, I'm feeling angry and confrontational. Explosively so. With good reason: George Hodgins, a young autistic man from my son's school, was murdered by his mother Elizabeth (who then committed suicide) earlier this month. Mainstream media reports have focused almost exclusively on how difficult life was for his mother, framing parents killing disabled children as an understandable tragedy, while parents killing typical children is considered a preventable tragedy. And I am telling you right now, it doesn't matter how difficult parenting is, a parent killing their child is never justifiable.  Read more >

Is 2.9 Million Worth the World -- and Your Child -- Knowing You Would Have Rather Aborted?

four

Dear Mother in Portland, How do you tell your family and friends that you would have “aborted” your daughter? How do you sleep at night… knowing that they have all heard those words? Because you can’t say: “I want money because I would have aborted you,” and “But, I love you” in the same sentence. I’ve heard you try to say it, but you can’t. I hope this lawsuit is worth it.  Read more >

I Love My Autistic Son -- Even Though I Hate Autism

drinks or denial

Many people seem to arrive at my website through an autism or Asperger’s internet search. I’ve seen everything from “my autistic son walks in circles” to “I hate my autistic child.” As you can imagine, it hurts my heart when I see some of the more upsetting search terms. When I first saw the search about hating their child, I immediately began a blog post addressing it, but I stopped myself half-way in. The truth is, I can understand that moment, when you are so angry and hopeless and powerless over your situation and you feel such huge, overwhelming emotions and you desperately seek relief or answers. I probably have turned to the internet on more than one occasion, searching for similar help. I get it.  Read more >

Would You Call Her Son the R-Word?

spread the word

Today is Spread the Word to End the Word Day. What word? Retard. I cringe even writing it, because the way people use it so demeaning, so cruel. Ellen at Love That Max made a video that asks you an important question: Would you call her son a retard? Watch the video, sign the petition and then spread the word.  Read more