Just Who Is This DC That You Speak Of ?

(From May, 2014) I never really intended to write a blog. My blogging began one day when I was writing an extremely long response to a blog post that I had just finished reading. After I hit “post” I decided that writing a response to this post on someone else’s blog was not going to make me feel better about the topic being discussed. I opened an account with a local on-line news publication and pasted the response I had just written onto a blog page and published....more

I don't even think I have any ducks

Having all of your ducks in a row. A skill I have yet to master. It hit me the other day…I am not so sure I even have any ducks. Maybe…I have never had them. Maybe…that’s my problem. Or… Maybe…that’s my secret....more

Monday

Does everybody have one day of the week that kicks their butt more than others? Or is it just me?Mine is Monday. Monday is non stop from the time I get up until the time I get everybody put to bed. I don't look forward to it, but on the bright side, at least I've gotten my crazy day over with at the beginning of the week, and it's mostly easier from there....more

Disability. What if we refused to hide?

We whisper. We move to a more private room. We use vague terms. We are given privacy policy documents. We are assured that our feedback will be given anonymously. Because that is expected.  There is so much secrecy around disability. ...more
This is so true...and I wonder what it would be like too.more

What Special Education Means For Us

The following is a lett...more

Dear Worried Parent, "It'll Be Okay"

Exactly one year ago, I took my daughter in for a routine heart checkup. She had a heart catheter procedure when she was an infant and were told the results should last her a good 10 years. Well, 10 years turned into 2 years and we were told she would need an open heart surgery to fix it this time. The surgery wasn't urgent but needed to be done within a few months, but we moved across the country shortly after that appointment and it took about 6 months before my daughter could see a new cardiologist....more

You Might Be a Special Mom If...

This is the special moms version of "...you might be a redneck."  They were written by a group of strong, intelligent, courageous, loving, special needs mamas.  One of their most important qualities is that they have a sense of humor...something that is a requirement for sanity for the special needs parent. ...more

For Sami, Love Daddy

In 1992, when Sami, who has Down syndrome, was 18 months old, her father, Rich, was the Senior Producer for the Sony JumboTron in Times Square.  He began producing a series of spots to raise awareness and acceptance of people with Down syndrome to run on the JumboTron during Down syndrome awareness month.    He continued to produce these PSA’s on his own until 1994, when he contacted Emily Perl Kingsley....more

Down Syndrome Needs No Apology

"I'm sorry," the man said during a business meeting. For the first time I could remember, someone apologized to me for my son having Down syndrome. I've heard a lot of interesting comments as a parent, but this was the first time someone apologized for my child's existence. ...more
I kept some of the details of the man general, yes. I wanted to focus on what I felt, being ...more

Celebrate World Down Syndrome Day

Celebrate World Down Syndrome Day on Saturday, March 21 with a child near you. Opening dialogue, sharing stories, connecting with social media, photos, and film are a great way to learn more about Down syndrome. As my son marches his way through the world, I see change happening. Not so long ago, people with disabilities went to school away from the mainstream. Not so long ago, a wheelchair had no way to get to the third floor of a building. ...more