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Caregiving: Everything Changes

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I knew our lives would change when TW's mom and sister came to live here but I wasn't prepared for quite this level of change. In no particular order...

The amount of medication in the house gives me nightmares. I'm not a medication person. It took me a long time to adjust to two or three medications TW takes regularly to help manage her Crohns Disease but this amount of medication that Mama takes is just overwhelming to me.

I cannot imagine keeping track of that much medication for myself. And watching TW try and get it all straight, making sure her mother takes what she's supposed to take - when she's supposed to take it - it's become pretty clear that Mama wasn't managing it well either. I'm not sure they ever found the missing high blood pressure medication that she's supposed to take everyday.

The number of boxes marked "medication" ... I believe there were six of them. Medium sized packing boxes. Plus all of the medication they brought with them on the plane. We've still got boxes and boxes full, I avoid the laundry room because just looking at the boxes makes me queasy.

Let's see, another change... now, instead of running out at 9pm for cokes or cigarettes or dog food, I'm running to the drugstore for Fleet enemas. That's a new experience for me, let me tell you.

Also, who knew there were so many different types of incontinence pad products? Not me, that's for sure. Is it my imagination or are they more expensive than diapers?

Speaking of shopping, our grocery bill has almost doubled - just with the addition of Mama. This has happened because meals are served regularly around here - whether kids are here or not. I'm not used to that and thank goodness TW has mostly stopped trying to feed me breakfast, lunch and dinner. She's also mostly stopped asking me if I'm going to join them in the dining room on workdays - because generally, no, I'm not, I'm working.

Along with the extra grocery shopping, I've got extra kitchen duty. I'm used to running the dishwasher nonstop when the kids are here but when it's just me and TW, I could go days without running a load. Now, it's daily and often twice a day.

The TV is on quite a bit now and I'm almost to the point where I can block it out. Almost. Oprah still breaks through my defenses and the unusual beauty pageant noises last night distracted me from whatever I was doing. It wasn't until Mama came to live here that I realized why it is that I don't watch TV... most of it seems to be crap.

What's really taken some getting used to is the telephone ringing. Mama's cell phone has the same ring tone as TW's so I am constantly asking TW "Is that your phone or your mothers?" Which is ridiculous because nobody calls TW. The phone rings constantly -- for her mother.

It's like having a 14 year old girl in the house. I'm not kidding and I really was not expecting that. I should have though since TW has always talked to her mother on the phone every single day. I guess I just thought it was a TW and her mom thing, not that her mom LIVES on the phone. Now I know better.

I would really like to give Mama telephone hours - she can't talk on the phone after 9pm or something like that. I say this because the phone rings late at night, always someone saying something that gets her wound up and emotional. That's just not good for her - or for me. The drama level is high enough around here without that kind of thing late at night.

Trips to the ER, trips to the assisted living facility, trips to doctors offices - I don't go every time and it's already wearing me out. I'm not a doctor/hospital kind of person.

TW and I used to go out, on the weekends or sometimes weekdays, just to drive around and find some place new. Or to grab a quick something to eat. Now we don't go out together alone except to pick up Starbucks on M/W/F mornings

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Frances Ellen 5 pts

I recently had the experience of being the fun-sucker. From my point of view, it was humbling and humiliating, even though it only lasted a month or two. Also from my perspective, it was a real smack upside the head, because I saw how difficult and wearing it really is to be the caregiver. 

But your paragraph about the Fleets Enemas made me chuckle. It too has become a part of my life experience. Stuff happens, but sometimes it doesn't happen when it should.

A thought from me to you--When you pass by TW, a touch, a smile and a meeting of the eyes sometimes helps make the burden easier to carry.

 Frances Ellen is the Narrator of the Story of Nadia ( http://storyofnadia.wordpress.com/ ) - The continuing fiction story of a card reader named Nadia. She is also the voice at Frances E ( http://francesellenspeaks.com/ )

Denise 9 pts moderator

Actually, getting TW to switch her ringtone is a better option. Asking an older woman who is flustered by her phone anyway to change it to something like vibrate isn't a good idea. ;-)

Leaving the house to work isn't really a solution, though it may be a solution for TW at some point. I can get out of the house whenever I want, alone (and do so every weekend when I grocery shop.) The change is the time alone that TW and I are used to - that's where we haven't figured it out yet.

Nope, no Costco membership but it might be worth checking to see if prices there are cheaper than the Navy Exchange and Commissary (possible in some cases, unlikely in others.) I'll check that out soon.

It really is about choosing the small things you can fix but there are always going to be small things that can't be fixed. (Did I mention the oxygen tubing? The dog and I are constantly tripping over it and the oxygen machine clicks every 7 1/2 seconds.... lol.)

~Denise
BlogHer Community Manager

Flamingo House Happenings ( http://www.flamingohouse.net/ )

Denise 9 pts moderator

Now you've just touched on another issue I have but haven't been able to figure out how to blog it.

You've just inspired me to figure out how to do it.

In the meantime, I think it's harder on Mama than it is on us. She too feels like a fun sucker and she is - but not so much in the way she thinks she is. (This is the part I'm trying to figure out how to blog, lol.)

Thanks for leaving a comment, I'll be visiting your blog! (updated: oops, I see you have a private blog, I can understand that. Let me know if you ever start a public one, I'd like to visit.)

~Denise
BlogHer Community Manager

Flamingo House Happenings ( http://www.flamingohouse.net/ )

Denise 9 pts moderator

Is there anyone in the family who can take them in? Have you started exploring assisted living facilities?

It's hard, Kalyn.

It was hard when they were in Denver and we KNEW they shouldn't be trying to take care of themselves alone. It's hard now, just a different kind of hard. All future decisions will be just as hard.

It's just hard.

I feel for you and your family.

~Denise
BlogHer Community Manager

Flamingo House Happenings ( http://www.flamingohouse.net/ )

Denise 9 pts moderator

Goodness, I hope I don't sound like I am. Seriously, I'm not - which is why you see me whining in this post. ;-)

~Denise
BlogHer Community Manager

Flamingo House Happenings ( http://www.flamingohouse.net/ )

Elana Centor 5 pts

Well, I'm not trying to be silly,but taking care of some of these little annoyances could give you a semblance of your old life back --like some of the quiet you used to have.

1.Maybe mama's cell phone could go on virbrate? That way you won't hear it ringing all day.

2.Also, is there any way you could go to Starbucks several afternoons a week just to work there to get some time away?

3.o you have a membership to Costco? If you have to buy things like incontinence pads...probably worth the savings to buy in bulk.

4.Headsets? Seems to me I've seen commercials for some wireless gizmo where the TV watcher wears a headset so everyone else doesn't have to listen to the ambiant noise.

Don't have any suggestions about the food bill or dish washer -- well costco for the food bill but the extra dish washer runs is just one of those things.

Take care of yourself Denise -- caregiving is hard work.

elana
Blogher Contributing Editor,Business&CareersFunnyBusiness ( http://funnybusiness.typepad.com/funnybusiness )

peeps 5 pts

i'm sorry you are going through this tough 'adjustment'. i put that in quotes b.c i have learned to hate that word...oh, and 'transition'. b.c in reality, i don't think you ever adjust or transition fully. it is an ever-changing, rewarding, draining, life-altering, depressing, motivating (etc.) life experience. And more often than not it sucks. i think it's important for you to have outlets (like a blog) and other support b.c you will need them. and you are doing great. i was going to post some links as i was reading your post, then saw that you are already on the caregiving network and being proactive in managing meds, as well as tapping into other resources. my advice would be to hang onto that humor that you have. it will get you through. and remember to tap every resource out there. sometimes opening the phone book and starting there can help.

I should mention that i come at this from the opposite perspective, as i am a 38 year old woman with MS who feels like the biggest fun-sucker ever and drain on my family. It's weird b.c i always saw my mom being the caregiver of my nana (her mom) and thought what a sh*t sammi it is, and here she is, totally the spam in the sandwich, with me now!  not to mention my dh and the light of my life, our 3 year old. i do believe i understand both sides and can hopefully offer some words of wisdom or at least company in the situation. it is a totally stressful time. stick together. best wishes to you!!

warm fuzzies

Kalyn Denny 5 pts

My family is trying to deal with what to do about my 83 year old dad and stepmom, neither of whom is fully able to care for themselves or each other. I've been cooking for them on Tuesdays for a few years now, and other family members go some days too, but it's obvious they need more help than just that. I can't imagine taking on something like you're doing, but I do admire you for being willing to do it (even if you have misgivings, you are doing it!)

Kalyn Denny
Kalyn's Kitchen ( http://kalynskitchen.blogspot.com )

Zandria 5 pts

Even though you wish the situation were different, it sounds like you're doing what needs to be done. I hope I'd be as selfless if I ever found myself in that situation. :)

Personal blog: Zandria.us ( http://www.zandria.us )
BlogHer blog: Singles/Fitness ( http://blogher.com/blog/zandria )