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Children with invisible special needs--treat them and their mothers with respect even if you don't understand it

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One of my dearest friends has a son who is just a few months older than my youngest daughter. We were together on a daily basis as our sons were also best friends. Together we watched for our younger children to reach their "projected milestones" together. From crawling to walking. From babbling to talking. As these moments came we watched my daughter reach these milestones and waited and waited for her son to reach them as well. When he was not reaching the "age appropriate" milestones, she began to worry that there was something that was not quite right. Her mother's instinct told her it was more than just a delay in development. The way he wouldn't make eye contact. The way he screamed if even the smallest things bothered him-- such as a tag on his t-shirt or music in a store. Finally, she took him to her pediatrician which let to more specialists and more testing. She eventually received the diagnosis that he was on the autism spectrum. Whereas it sounds so rainbow and pretty, it was a frustrating diagnosis for her. Yes, it answered a few questions. But for every question it answered, a hundred more were brought into her life.

Having been around her son for so long, I was used to the times he would scream in public or get furious over strangers trying to touch him or look him in the eyes. It was who he is. But to others, he was that "misbehaved child" or that "screaming toddler whose mother had no control over." Judgment. Everywhere judgment.

Karen Rani of Vodkarella recently wrote a post about this very issue. Judgy Judgmental Pants. A title I happen to relate to and understand all too well. In her entry, Karen shares with us the story of her friend (and fellow blogger), Sassy whose son has special needs. The entry is very educational and touching.

Ryan loves to sing and dance, as I mentioned. Quite often, it makes no difference as to where he is, he will sing, and skip and play, as young children do, and enjoy himself wherever he is. Sometimes that is in a store, or a parking lot, or in line at the checkout. He’s a happy kid, period.

So when your child, who sees Ryan enjoying himself, nudges you to point him out, and you turn to your friend and do the same, his mother is watching you. You can either choose to make this an educational time for your kid and say something about not judging others, or you could point, stare and call Ryan weird. But know this: his mother sees you.

While her heart is breaking at your actions, know that while you’re getting a kick out of making fun of a child with special needs, you are hurting a mother who cannot say anything for fear of calling attention to your abhorrent behaviour to her young and innocent son. She wants to protect him from this world of cruelty and people who judge based on looks.

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I know as a fact it hurt my friend many times when other children or parents would stare, point or give that judgmental look that these moms come to know so well. Sassy herself weighs in on this entry.

What Karen wrote today made me cry. I cried because what she wrote was awesome and also because it’s true and because it does break my heart when people stop and stare at my child and I hear someone call him ‘weird’, or worse. I live this almost every time I go out with my son. He’s constantly jumping, running, skipping, singing, talking to himself, making ‘blowing up’ sounds, acting out little scenes from a Scoobie movie perhaps…my point is, he’s usually doing something. He’s got a pure innocence about him and he’s usually oblivious to the rude people that we encounter. I, however, am not.

Sometimes we see kids doing things that we think might be misbehaving or just a child out of control. Do you look down at his mother? Do you look at that child as if he should "behave better in public?" I am sure at one time or another if you have not been in this position you probably have--intentionally or not. And most likely, his mother saw it and broke a little inside.

In an effort

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Mel 5 pts

Wow. Thanks for writing this........and for including The Boy and I in your article. Karen's post was awesome too, and I am so glad it is spreading. :) People can be so judgmental of anyone who is not what they consider to be "normal". They forget that their children are learning to be judgmental by their example...and that the people that they are staring at and whispering about have feelings. My son does not always notice the negative reactions, due to the nature of his Asperger's....but I do. And his four year old sister does. And watching him try to process it when he does notice is a heartbreak that I wouldn't wish on anyone.

Mel from Freak Parade

ShawnsBidness 5 pts

Great posts, info and views into the real life of mothers with children with special needs. Just read about September being Childhood Cancer Awareness Month here. And Sept. 10 - 16 is National Invisible Chronic Illness Awareness Week.

We must continue to spread the word about children and their families and how they fit into the equation of the disability advocacy movement.

Connie
Brain Foggles ( http://www.shawnsbidness.com/blog )
My Chronic Life ( http://www.mychroniclife.com )

Jody DeVere -- Ask Patty 5 pts

My life has been filled with care and concern for my special needs children, one son who is dyslexic, one son who is a paraplegic with MS and a grandchild who is austistic. I am confronted by many situations all the time with adults and children who have little to no communication skills along these lines. It's education and awareness training that is needed. I have a wonderful resource as a result of my work with www.unitedspinal.org ( http://www.unitedspinal.org ), they produce a booklet called Disability Etiquette. I have an entire case of these and give them out freely. Great tips on interacting with people with many types of disabilities.

Download the United Spinal Disability Etiquette brochure at http://www.unitedspinal.org/pdf/DisabilityEtiquett...

Jody DeVere
President

President - Ask Patty.com, Inc.
www.askpatty.com ( http://www.askpatty.com )
www.askpatty.com/carblabber ( http://www.askpatty.com/carblabber )
eMail: jdevere@askpatty.com

TXPoppet 5 pts

What a great post.
I used to blog about our experiences with Autism, but had to pull the site because of negative comments. Wow, it's really great to read something on the subject from the outside that has a positive message. You're my hero today. Joie
My Blog: http://www.txpoppet.blogspot.com

Jenn Satterwhite 5 pts

Learning from each other is the first step in stopping these ridiculous accusations that there is such a thing as Mommy Wars. Educating each other and supporting each other--as you have done-- is a huge counterstrike in ending judgment and harshness among parents.

We could all use some education when it comes to things we may not fully understand.

~Jenn~
Mommy Needs Coffee ( http://mommyneedscoffee.com ) | Mommybloggers ( http://mommybloggers.com ) | Fresh Brewed Reviews ( http://www.mommyneedscoffee.com/freshbrewed/ ) | Work It, Mom! ( http://www.workitmom.com )

Karen Rani 5 pts

From Ryan, Sassy and Myself - thank you for highlighting this post so wonderfully. Spread the word! Support is so important as we raise our future. :)
Karen

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Vodkarella ( http://www.vodkarella.com/ ) | Swank Web Style ( http://www.swankwebstyle.com/ ) | Drool.icio.us ( http://babble.com/CS/blogs/droolicious/default.asp... )