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To
any of the parents of these children...please forgive me if at times I
have to shorten the posts....my bulletins were getting so long my email
server would not send them out. And instead of making a 3rd bulletin I
am just editing these down some. I think you will find I am still
leaving most of the important info in. Let me know if you have a
problem with this.
Evon
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Gavin Owens
Wednesday, October 1, 2008
We Are Still Here...
It's
been a long and difficult day -- there is no denying it! We were
originally told that we would be leaving today and then this morning we
learned that the final reading on the fungus has not come back yet,
which means we don't really know what exact anti fungal Gavin should be
on and also means that a new line cannot be placed. We spent the
morning down at Child Life where a very odd yet friendly clown playing
somewhere over the rainbow on her miniature violin almost sent me into
an emotional breakdown :)
It was hard to tell Madison that she
wasn't going home, I even think Gavin was bummed. Adam took a half day
to give me a much needed break outside the hospital, which I enjoyed
but in reality -- I couldn't find a darn thing to do.
So I came back.
The
"plan," which neither Adam and I believe, is to have the line placed
tomorrow. We have an OR time of 11am. We'll see if it happens.
Hopefully my next update will be from Good Ol' Home.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Charles Grauber Jr's Updates
October 1
Posted 7 hours ago
Yesterday
the physicians scheduled Charlie's MRI, MRA and sedated echo for 7 am
this morning. They also needed a phenobarbital level so blood was drawn
this morning, a normal level would be 20. The nurses from the CPRU came
to get Charlie at 6:45 am. I carried Charlie into the CPRU while the
anesthesiologist were prepping Charlie and administered the medicine.
There was a fuss this morning on whether or not his IV was properly
working. But I told them to please save and use the one that is
available my baby since Sept 19 has been pricked 32 times. They were
able to use the IV and Charlie 15 minutes later was asleep. I waited in
the waiting room and 2 1/2 hours later I was able to see Charlie, feed
him and give him his phenobarbital. His phenobarital level from this
morning was 24! I'm still waiting for the results of the MRI and MRA
which should be early evening.
Through the rumor mill: We may be discharged tomorrow?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Tyler Sincavage
Pray for Tylers liver to be OK!
Tyler's
liver numbers are elevated so he is going for a liver biopsy today.
Please pray for everything to be OK. I am so nervous!
Mandy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Taylor Kiser
Taylor
has been doing good all day, now she is sick again. Dr. Moon came in
just minutes ago and told us that her surgery will be October the 10th
her @ Greenville Hospital. They also will have to do another MRI today,
because the one from yesterday did not show the whole leg. I will
update everyone on her progress. We Love you all!!! God Bless Keleigh
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Matthew Brand
Day +175 - Stem Cell Transplant. Day 230 - Inpatient.
Matthew
had a restful night, the stomach aches gave him a break for a while,
but this morning they are back. Dr. Teachey is changing some of his
stomach meds in the hopes that they help with the pain. Many times
through the last week the pains have gotten so bad and Matthew has been
offered oxycodone, he refuses to take it. He says he will deal with the
pain, so today I asked Dr. Teachey to talk to him about taking it if he
needs it. Matthew is afraid of any kind of opiate, he doesn't want to
become dependent on them. So, he was spoken to about it and he said he
will only take it if the pains get really bad.
Last