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requests or updates to me at this link for them to be included in this
blog and my email. Also you can send me your email address here to be
added to my list or just subscribe to this blog.
Send prayer requests to the Prayer Warrior Network here
prayerwarriornetwork@live.com
To
any of the parents of these children...please forgive me if at times I
have to shorten the posts....my bulletins were getting so long my email
server would not send them out. And instead of making a 3rd bulletin I
am just editing these down some. I think you will find I am still
leaving most of the important info in. Let me know if you have a
problem with this.
Evon
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
UPDATE ON ARIEL...posted 8:54 PM Sept 30
DUE
TO THE SURGEON HAVING EMERGENCY SURGERIES ALL DAY, THEY ARE JUST NOW
PERFORMING ARIEL'S SURGERY. THEY SAID BETWEEN PREPING, THE SURGERY AND
THEN RECOVERY, IT WILL TAKE APROX. 4 HOURS. AS SOONS WE GET WORD...WE
WILL PASS IT ON TO YOU ALL. THANKS AND KEEP THE PRAYERS COMING.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Dakota
Monday, September 29, 2008
very quick update of Dakota
Current mood: excited
Well
I will tell more later but Dakota is not out of the woods yet. Dakota
and I are communicating by touch. He can hear us and will move his hand
one way or the other to give us answers and I mean very little. It is
taking so long to get him to wake up do to his liver and kidneys are
not working that well and he can not get the meds out of his system as
go. But I can not tell you how I feel to know for a fact AMEN that he
is there he ask for kisses and tells us that he loves us. Yes of course
we ask but says yes! I do not have time yet but will tell you more
later. I feel like my insides are on fire as if a light was turned back
on! Sorry I can not even tell you what this means to us. My wife was
the first one the communicate with him at about 0230 hours (2:30 am)
and call me short time later for he wanted dad too. WE ARE ON CLOUD 9
or 10 maybe higher!!!!!!! LOL
Love
Thomas, Candi, and my amazing Son DAKOTA E. HELM!!!!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Jeremy
Tuesday, September 30, 2008
Biopsy-Yes? No?...
Current mood: ecstatic
...MAYBE!!!
We
went to see Jeremy's oncologist today. The bad news is that Jeremy's
tumor grew another 4centimeters. The size is now 8x10x8. But good
news...
Obviously Jeremy's tumor cannot be removed, but they do
believe he is a candidate for a biopsy. Jeremy's neuro doc is supposed
to be calling me tonight so we can talk more about it, like the risks
and such. Stuart and I will have time to think about it, and then we
will let the doctor know. I know all of you are thinking "What is there
to think about? Do the biopsy!" But there are a few things to
consider-the big one, hemorraging. If the tumor hemorraged during
surgery, Jeremy would not live.
But, this is the farthest we
have been in almost 11 months! In 2 days, it will be 11 months since
Jeremy was diagnosed, and it will be 10 months and 1 week since they
said Jermey had 2-3 hours. Amazing!! We are so lucky to have this baby!
Thank you Lord!
For months and months, all we have heard is
"there is no more we can do for him" - "we've done all we can do" - "he
only has a little longer to live"....NOT ANYMORE!!! =]
Also, the
doctors never wanted to do physical therapy. Now they are all for it.
They want Jeremy to get into PT at Riley, and get a chair to help him
sit up. He can't hold his head up, so hopefully we can find something
to help him. He also wants to get a chair, I guess it's between a
stroller and wheelchair. Jeremy will also get therapy done on his face
to help him learn to smile! I am SO happy about this. The last time I
saw him smile was November 22.
I'll post again after the doctor calls! Thank you for all your prayers today-they sure were felt, and keep them coming!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Oliver
So,
Monday we were supposed to be
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