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I am the author of one novel (so far), freelance copywriter, mother, and former military wife. As the owner of the blog Pocket Parks of NYC, I commen...
 
 
 
 

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Dementia ... the cruelest disease

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I just received a second call from my grandmother, wishing me a happy birthday. My birthday is next week, but my youngest son's is today. During the first call, she thought my youngest was my oldest and my oldest was his cousin!

 

This could be funny if it were not so sad.

 

The confusing call had to be explained, of course, but the little one is still not going to understand what's going on.  My goal is to just enjoy whatever part of her we have for as long as we have her. She is still a lot of fun, but I guess I can no longer go to her for advice. That makes me very, very sad because I used to love speaking with her. Now I can't wait to get off the phone. I'm a terrible person, I know, but I don't want to burst into tears in front of her and then have to explain and watch her forget five minutes later. (Seriously...five actual minutes.)

 

Has anyone else dealt with dementia in a close relative? How did you cope?

 

I'm off to use my brain writing while I have my senses.

 

Rosemary O’Brien

Owner, A Word or Two, LLC

Email: writerobrien@gmail.com

Web: http://www.awordortwo.net

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karebear418 5 pts

I am a social worker in a nursing home and I am a granddaughter to someone with dementia. I will agree, it is an awful, awful disease. And after being on both sides, I will say that it is hardest to deal with my grandmother. I work with my residents with dementia every day and love it. I am so good with them- I am patient, creative, loving, etc. But when it comes to my grandmother, I struggle to be with her. She is in the beginning of the disease, so she still feels like she has to be a part of every conversation, has to know everything/one we are talking about, but really she doesn't. And she realizes this. So she has come up with one liners she will use to be a part of the conversation- "why do they look familiar" "a fish wouldn't get caught if he didn't open his mouth" " oh the food!" It gets to be annoying- which I hate to admit.
So my advice to you as a social worker would be to talk with her about the past. Have her describe the past to you. What her schooling was like, what she did for work, what the town was like she grew up in.... This will be where she is the sharpest. Take all of these descriptions and memories and write them all down. Because one day she won't be there. But you will have her memories in her own words.
I should listen to my own advice, because one day, I won't hear my grandmother say those silly one liners, but wish so bad I could.