Bio
I'm the BlogHer Contributing Editor on parenting children with special needs, and I'm at your service.  I am more than a parent, but with three...
 
 
 
 

What’s Hot on BlogHer.com

Recent Comments

Disneyland: My Autistic Son's Land of Yes

  • Share This Post
  • Pin It
  • 19
  • Sparkle (
    )
     

Look, I grew up in Anaheim. Disneyland's fireworks exploded over our house every summer night, and I played Dopey the Dwarf in the Main Street Electrical Parade. I couldn't be more blasé about the house of Mouse, so if you told me that my former workplace would one day make me happy enough to cry, I'd have scoffed. But crying with happiness is exactly what happened during my autistic son Leo's birthday trip to Disneyland -- he had two full days of pure joy that melted my cold, hard, meh-filled heart. For my son, it really was a Magic Kingdom.

leo_disneyland_primary.jpg

Photo of Leo by his uncle Mike Des Roches

 

Leo hadn't been to Disneyland since 2004 because the interim years were challenging ones for him, behaviorally, and I wasn't sure if he and Disneyland were compatible. We plan Leo's excursions carefully and try to set him up to be a star, as when he's pushed past his tolerance levels he collapses, then goes supernova. That planning didn't seem entirely possible at Disneyland, plus I was worried about taking Leo to such a loud, bustling, potentially overwhelming place. But I also knew Disneyland was full of opportunities to immerse himself in beloved make believe worlds like Monsters, Inc., Toy Story, and Finding Nemo. The trip seemed worth the risk, and I figured we could always return to the hotel and go swimming if a retreat was in order.

I'm so glad we gambled, because Leo's visit was a huge success, and Disneyland turned out to his Land of Yes. He got to do exactly what he wanted all day long, directing the action according to his interests and impulses -- an unprecedented freedom for a boy with a heavily structured life. He was also never bored, which can be an issue for people with communication challenges. Because of a Guest Assistance Pass the Mouse thoughtfully provides for people whose behaviors make it difficult to wait in lines, Leo could get right back on any ride he liked, as many times as he wanted. (That pass also made him a hero in the eyes of his little sister Mali and eight-year-old cousin Christie, who got to tag along on all those instant-repeat rides.)

All that instant gratification was amazing for our boy. Leo went on Star Tours five times, Finding Nemo submarine ride four times, California Screamin' loop-de-loop rollercoaster twice, Tower of Terror, Monsters Inc., Splash Mountain, Toy Story, Haunted Mansion ... you name it. His grandmother and uncle can testify as to his continual giddiness, but I also shot video:

 

 

I just can't properly communicate how wonderful it was to have Leo accommodated nearly everywhere we went. The Guest Assistance Pass was the most visible evidence, but the park has also trained its staff well to support people with special needs. When my mother booked our breakfast at Disney's Storytellers Cafe, she told them that Leo has autism -- and they put us in the very farthest, quietest booth in that boisterous restaurant of freaky roving giant furry characters. (When the noise level rose, Leo kept himself calm via iPad.)

IMG_6088.JPG The characters were good with Leo as well. When Pluto approached him outside Space Mountain, my son used very direct vocalizations and gestures to discourage contact or any other interaction, and Pluto obliged graciously. When Mickey Mouse approached, Leo grabbed his nose inquisitively -- and Mickey laughed. I so appreciate it when any person or creature respects and responds appropriately to Leo's communication, regardless of the form that communication takes.

Leo After Grabbing Mickey's Nose Several features that made our trip easier for Leo were simply great for families in general, like the on-site Grand Californian Hotel, which let us walk back to our room and chill whenever we needed to. We were also allowed to check into our room early at no extra cost since the room was already ready -- though if it hadn't been ready they would have held our luggage for us while we played, also at no extra cost.

Staying onsite meant it was easy to let Leo have his evening bath at the usual time -- a boy's gotta stick to some part

  • 19
  • Sparkle (
    )
     

Comments

Post comment as twitter logo facebook logo
Sort: Newest | Oldest
johncohrs 5 pts

LOVED your post. As a southern californian, I, too, have had my moments of just being over the Disneyland thing. But, your experience with your son very closely matches the expereiences we have had with our son. The staff has been BEYOND helpful and gracious, well worth the investment every time we go. We recently visited a "neighboring amusement park" to try to save money, and the experience was so vastly different. In the future I will choose to spend more at Disneyland to ensure my son's experience is magical.

judy.sunsetcliffs 5 pts

I vote a wow as well. I'm jealous. I have a 21 year old with Down's and autism. We live in San Diego. We don't go to DIsneyland often because each experience has been so awful, just thinking about it makes my chest clinch.

Since he was little he will only go onto It's a Small World and Casey Junior's Train. After forcing him to go on the rides, whilst shrieking, he'll go willingly onto the Star Tours and Pirates of the Carribean (he's obsessed over the movies). Not in our wildest dreams would he go on a roller coaster.

We always try to get there as the park opens and leave before it gets too crowded. Anymore, we just don't go. His sisters are given the opportunity through their schools to go annually so we've given up as a family.

Several of my son's autistic friends have annual passes and go up to Disneyland at least once a month. They love the rides and the characters.

How did you go about getting the special pass to get on the rides first? What made you think to do that? My understanding is that you have to have a doctor's note saying your child is unable to wait in line. Is that your experience? We haven't tried that. My son is capable of waiting in line, though his trepidation that accelerates while we're in line is exhausting for the entire family.

Also, I'm curious about your son's ipad. Do you have a specific blog dedicated to that? Is there somewhere I can read more about his experiences? My son doesn't have one. Everywhere we go we make sure he has a book to read. If he gets bored he has something to do. Of course that doesn't work while waiting in line, or in a dark setting.

Congratulations on your fabulous trip.

Shannon Des Roches Rosa 8 pts

Hi Judy, I'd recommend getting that doctor's note -- it sounds as though the line-waiting is difficult enough for your son to warrant the pass. To get the pass you only need go to City Hall, right inside the gates and under the arch on the left-hand side -- everyone who helped us with Leo's pass was very kind.

I do have an iPad resource page, it's at: http://www.squidalicious.com/p/on-ipads.htmlGood luck! And if you do indeed live near Sunset Cliffs, then it's my turn to be jealous of you. (My husband is from your 'hood.)judy.sunsetcliffs

Whymommy 9 pts

Wow. I kept thinking of Stimey's kids and my own while reading this - I'm so surprised and VERY PLEASED that your trip went so well! And of course, I hadn't thought about the joy that the rides would bring sensory-seeking kids - that must have been amazing!

Good for you for making this happen. It sounds wonderful!

Shannon Des Roches Rosa 8 pts

I was surprised too, so was Leo. What a delight when our families can be so happy for each other. :) Whymommy

Leighbra 14 pts

Despite my die-hard frugal heart, I love Disney. This makes me love them even more. I want everyone to feel that "magic". The video of Leo made me cry really happy tears, thank you so much for sharing that. I'm glad he found his laughing place.

Shannon Des Roches Rosa 8 pts

Aw, thanks. I keep watching the video -- so does Leo. Leighbra

Stimey 5 pts

I'm so happy to read this. What a wonderful couple of days. I love hearing how much Disney takes care of kids like ours. Awesome.

Shannon Des Roches Rosa 8 pts

Thanks. It was a leap. A big one. And it worked! More incentive to keep leaping. :) Stimey

sassymonkey 601 pts moderator

Yay Leo! I'm so glad he enjoyed himself

Shannon Des Roches Rosa 8 pts

And I love that you're glad. Thanks for having Leo's back. sassymonkey

Conversation from Twitter

chrischandler
chrischandler

musingvirtual thank you so much for that link!!

musingvirtual
musingvirtual

chrischandler you're welcome! i thought it was a great story. i hope you are well!

jenleereeves
jenleereeves

shannonrosa Oh my goodness. I just read about your Disneyland adventure. How fabulous and special. I'm so happy for you! The video? Amazing

shannonrosa
shannonrosa

jenleereeves Hurrah! Well, someone had to follow up your Disney extravaganza. :)

jenleereeves
jenleereeves

shannonrosa I think you clearly rocked it!

HartGalla
HartGalla

shannonrosa Loved your post on Disneyland...the tense Factor for us is there even at bday parties..this helps with a diff perspective

shannonrosa
shannonrosa

HartGalla Thanks! The factors that made Disneyland work for Leo: Self-direction, never bored\/line pass, intense sensory input everywhere!

SHOUTwithCAABS
SHOUTwithCAABS

shannonrosa Please take a few moments to read and sign CAABS petition then RT: http:\/\/t.co\/XCgQObz0 #TY #CAABS