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The "Elaborate Fraud" Linking Autism to Vaccines

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It's about time. Researcher Andrew Wakefield's 1998 MMR study -- which kicked off a decade of misplaced fears about vaccines causing autism before the study was officially retracted -- has been declared an "elaborate fraud" by the British Medical Journal (BMJ). I fully hope that, as BMJ's editors asserted, "Clear evidence of falsification of data should now close the door on this damaging vaccine scare," because when the public's faith in vaccines wavers and vaccination rates decline, children fall ill from vaccine-preventable diseases, and some of them die.

I first saw the news during the late afternoon witching hour while I was cooking the family dinner, prepping for a meeting, and ignoring the post-holiday chaos in our house. Even amidst the overwhelm, I couldn't ignore the overflowing of my Tweetdeck stream as folks both inside and outside the autism community spread USA Today, CNN, and NPR articles on Wakefield's latest disgrace. I have to admit, I felt no small amount of schadenfreude over the public flogging, being a parent who once fell prey to the anti-vaccination movement's party line when I was in crisis and desperate to help my son, and before my rational self re-emerged. It is comforting to see legitimate science championed as Wakefield is once again revealed to be a liar, a cheat, and the mercenary orchestrator of bad science at the expense of vulnerable children (accusations he continues to level at his detractors).

You don't need to take my word for it. Wakefield buries himself quite ably in an interview with CNN's Anderson Cooper [video], raging about conspiracies and desperately holding up his book to the camera -- as if finding a publisher somehow invalidates the multiple official inquiries and extensive investigative journalism that led to losing his British medical license among other humiliations. Humiliations that now include Anderson Cooper telling Wakefield to his face that he's a liar.

Still, Wakefield supporters such as parent JB Handley from "Jenny McCarthy's Generation Rescue," an anti-vaccination autism organization, refuse to back down, clinging to anecdotal evidence and debunked research like Generation Rescue's own Fourteen Studies and the Infant Macque paper that won't go away. Handley also was interviewed on CNN [video], where his defense of Wakefield consisted of denying evidence he didn't agree with, referencing his personal beliefs, and citing flawed studies. (As of this writing, Jenny McCarthy herself has declined to comment on the Wakefield "fraud.")

Handley is not alone. Parents like Tammy, who left the following comment on Handley's CNN interview, remain convinced that Wakefield is not just falsely accused but a hero:

I had a perfectly normal child at birth in 1996. When she took her MMR vaccination 2 months later my daughter was diagnosis with autism. Now my claim is Facts! I appreciate Dr Andrew Wakefield study and I love the way he stood up to Anderson Cooper also I will no longer watch Anderson Cooper ever again. Parents please embrace Dr Andrew Wakefield study and research and lets stand together to ensure the vaccines will not harm the next generations.

Other Wakefield parent supporters, including Kim Stagliano, managing editor of the anti-vaccination blog Age of Autism, follow Wakefield's example in crying conspiracy. Kim specifically accuses anti-vaccination movement critic Paul Offit of using the timing of the BMJ's announcement to promote his new book, Deadly Choices: How the Anti-Vaccine Movement Threatens Us All (in the same interview and same paragraph that unironically cites Kim's own new book: All I Can Handle: I'm No Mother Theresa), even though Offit himself will not personally profit from his book, as all its royalties "will help fund the Autism Science Foundation."

With criticism flying fast and thick in both directions, there is one thing we all need to remember when speaking to parents who still believe their child's autism was caused by vaccines: those people are in real pain. They want answers and need support. They are likely not getting either, except through the anti-vaccination movement's mostly negativity-filled channels, which is why they become so entrenched and remain in denial. But they are also the ones responsible for the upbringing of a child with autism. We need to be mindful of those children, and help their parents gravitate towards towards positive communities and attitudes, plus parent and adult autistic role models.

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AmyandJoanne 5 pts

Hi Shannon, My sister and I have written a novel together about a mother and her 15 year old son who has Aspergers. It's already posted at www.wickedgoodthebook.blogspot.com ( http://www.wickedgoodthebook.blogspot.com ). We have just posted the first 2 chapters on BlogHer. We hope you will check it out. If you're interested, I can e-mail the manuscript to you or your e-reader. Thanks, Jo

Amy and Joanne

www.wickedgoodthebook.blogspot.com ( http://www.wickedgoodthebook.blogspot.com )

jtawnylewis@gmail.com

Shannon Des Roches Rosa 5 pts

That is indeed one take. Intelligent readers can read both sources and evaluate them on their own.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

darkdaughta 5 pts

Because it's important to also contextualize this conversation historically, here's what multiple investigations and years of investigative research have also revealed. ( http://www.naturalnews.com/022383.html ) When I think about vaccinations, I think about what's in them and their after effects, but also about how these supposed gains were arrived at and on whose backs.

i blog what i like.

Shannon Des Roches Rosa 5 pts

We all blog what we like. But here's what multiple investigations and years of investigative research have revealed:

"Wakefield had not been a disinterested clinician while preparing his Lancet paper condemning the MMR vaccine; instead, he'd received multiple payments to examine children as part of a lawsuit that was being prepared against drug manufacturers. What's more, almost half of the twelve children in his study had been funneled to Wakefield by Richard Barr, the class action lawyer representing parents convinced that vaccines had injured their children. The most shocking revelation came later [...] when Deer reported that shortly before his piece in The Lancet was published, Wakefield had filed a patent for a measles vaccine that could be administered independently of those for mumps and rubella -- which was just the product parents would be clamoring for if they became convinced that the MMR vaccine was more than their children's bodies could handle." [Seth Mnookin's The Panic Virus, p. 236]

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

darkdaughta 5 pts

Well, it turns out (big surprise) that the British Medical Journal may actually be the ones at fault and that they may have actually ruined a good researcher's name. He's demanding a public retraction. I'm one of the non-vaccinators, by the way. I for one have never doubted his work. Very brave man to stand up to big pharma. They have a good connections and deep pockets. They control the medical journals. Haven't you ever read any of the very well researched info that backs up this fact? Oh well...

i blog what i like.

Mominboyland 5 pts

It's not that I don't trust Big Pharma (which I don't) but more importantly I don't trust the FDA (who's job it is to oversee the safety of these vaccines )when their revenue is dependent on the same companies they are supposed to be regulating. We are relying on the FDA to be impartial, but when Merck is lining their pockets how impartial can they be? I know it makes parents feel better to blindly believe what corporations and the government tell us, but I know at the end of the day its all about the bottom line,not our children's safety.

daisymayfattypants 5 pts

are not different strains of "the same varicella virus." They are each a type of herpesvirus, but the herpesvirus family is a large one, and these two viruses are not in the same classification within that family and don't target the same tissues (chickenpox targets skin, nervous system; Epstein-Barr targets lymph). Other viruses in the herpesvirus group include roseola, the well-known herpesvirus that causes the STD simply known as "herpes," and a herpesvirus that is implicated in Kaposi's sarcoma. But being in the same family does not mean that the viruses cause overlapping diseases. Indeed, I have done a PubMed search on varicella and Epstein-Barr and didn't turn up any hits linking symptoms between the two. Most of us are infected with EBV when young and often show no symptoms at all. Your child apparently did show symptoms. Here is a great write-up of the different herpesviruses that affect humans: http://www.columbia.edu/itc/hs/medical/pathophys/i...

Sometimes, there are coincidences. Autism symptoms often don't show up until we anticipate certain milestones--motor or social--and they fail to materialize. It just so happens that there are many milestones--or expected milestones--that are coincident with the timing of vaccinations. That doesn't mean they're linked, and repeated studies across disciplines show no link at all.

Cheers! Emily ( http://daisymayfattypants.blogspot.com/ )

Shannon Des Roches Rosa 5 pts

I'd recommend people read books like Seth Mnookin's The Panic Virus, which explains how people end up believing in these kind of conspiracies. Here's a direct quote from Mr. Mnookin, from yesterday's interview for The Thinking Person's Guide to Autism.

"...the demonizing of pharmaceutical industries, and the assumption that if you can't trust the pharmaceutical industries, then you can't trust whether vaccines are safe. Which just seems so ridiculous. It's like saying you can't trust the makers of car companies, so then you can't trust the highway administration. We're not relying on vaccine makers to tell us that vaccines are safe, we're relying on governments, public health infrastructure around the world, and scientists. That's an example where a notion can take off. You can't trust the drug companies, and the drug companies are peddling these vaccines, and it can snowball until what's actually going on in this situation gets totally lost."

Full interview: http://thinkingautismguide.blogspot.com/2011/01/in... ( http://thinkingautismguide.blogspot.com/2011/01/in... )

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Mominboyland 5 pts

People should watch movies like this http://www.youtube.com/watch?v=Scl2rrq7hCY and decide for themselves. Should we be listening to companies that clearly have an agenda, who use fear and propaganda just to make a buck. I can't have faith in the FDA to regulate the drug companies when the FDA is completely dependent economically on those same companies. It currently costs over a million dollars to submit a new drug to the FDA for testing. Corporations account for a substantial amount of the FDA's revenue. It is in the best interest of the FDA to approve drugs for the mass market and keep the flow of income. Do you not see the conflict?

Shannon Des Roches Rosa 5 pts

...and skirting the actual allegations. Though, admittedly, it is difficult to address all of Wakefield's wrongdoings in a single brief press release:

http://www.huffingtonpost.com/jenny-mccarthy/vacci... ( http://www.huffingtonpost.com/jenny-mccarthy/vacci... )

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

For those who prefer evidence to instinct, here is an excellent new vaccine information site that addresses the points you've raised:

http://immunizeforgood.com/

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Mominboyland 5 pts

I realize that this particular study has now been refuted, however that does not mean that the 49 doses of 14 different vaccines given to our children before the age of 6 does not have a negative effect on childrens' development. It just means that scientists have not yet researched enough to find evidence of such.

I don't have a child with Autism, but I have learned, being the mother of 3, to trust my motherly instincts. I think it would be a disservice to the autistic community to discount those feelings. If it were only a handful of parents noticing the correlation between their child receiving a vaccination and the onset of autistic spectrum behavior then perhaps we could look the other way. I was told that my 2 year old contracting Mono (2 days after receiving the Chicken Pox vaccine) was purely a coincidence, even though both mono and chicken pox are caused by different strains of the same Varicella virus.

I don't think the 12 years, since this study was done, is enough time to close the book on the vaccine-autism debate. I know many of you said this is not an epidemic, however the fact that according to the CDC the rate of ASD kids has increased by 25% from 2002 to 2006 (http://www.cdc.gov/ncbddd/autism/data.html) should suggest that it is most certainly on a swift rise. Every possibility for a cause should be researched.

Shannon Des Roches Rosa 5 pts

I know you recommend the book as well. But it's hard to take anyone who talks about the "autism epidemic" seriously if they aren't aware of how the DSM's diagnostic criteria have changed over the past 20 years.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

So we parents can focus on what our kids have in common and how to best support them now, and help plan for their futures.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

daisymayfattypants 5 pts

That entrenched mindset won't change, but hoping that the change in tides will wash over those coming up.

Cheers! Emily ( http://daisymayfattypants.blogspot.com/ )

Matt_C 5 pts

The benefit of statements like this by the BMJ are for future autism parents. Those already adhering to vaccines as a cause are likely to stay that way. But with luck, in 10 years, most new parents will be able to say, "glad I didn't get pulled into that"

Shannon Des Roches Rosa 5 pts

Thanks Emily, your straightforward, evidence-based comments are always appreciated.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Parents often rely on their memories in making claims of vaccine-sparked autism regression. Ideally, parents should review any records they have of their children's developmental progress: videos, journals, photos, medical records, etc. When I did this, I realized that my son's developmental delays became obvious in his early toddlerhood, even though they were always there (but harder to detect in a baby), and that the timing of the vaccines was a coincidence.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Thedomesticgoddess 5 pts

Thank you, Shannon, for saying what I've been trying to say. I finally got tired of talking about it yesterday. It's a shame that people in the newspaper today, including the president of our local autism parent group, are still clinging to the vaccine thing. They are so passionate about it. And I know they are hurting (because, believe me, it does hurt sometimes, no matter how positive I am) but it's time to move forward from here. At this point, I'm more interested in ways to help my son, NOT places to point my finger of blame, if you catch my drift.
Thanks for being a voice.

Domestic Engineer, Total Babe and SAHM

Shannon Des Roches Rosa 5 pts

You wrote "So many people believe science has all the answers," and then later wrote "[autism] needs a huge research agenda--not just for prevention..."

So which is it? Do you want research or not? Science isn't only going to give you the answers you like -- unless you have a compromised "expert" like Wakefield helming the study.

Autism and vaccines (and the lack of associations thereof) has been heavily researched. No legitimate study has ever been able to find an association, or even a correlation -- only coincidence.

And there is no autism epidemic. Diagnostic criteria have changed (and continue to change), the Internet/changing attitudes have made people with autism more visible, and given them and their families voices and connections. I suggest reading Dr. James Coplan's No Autism Epidemic series (http://is.gd/kaJ6k) in Psychology Today.com, or Roy Richard Grinker's book Unstrange Minds (required reading for those interested in this topic)*.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

*final paragraph copied from my comment at Seth Mnookin's "The Link Between Autism & Affluence" Newsweek article http://www.newsweek.com/2011/01/03/money-the-link-... ( http://www.newsweek.com/2011/01/03/money-the-link-... ), as there's only so many times a person can rephrase the matter.

Alex@LateEnough 5 pts

What she said. Seriously.

Alex Iwashyna can be found blogging on Late Enough ( http://www.lateenough.com ) or tweeting at @L8enough ( http://twitter.com/L8enough ). Probably in her pjs.

kwombles 5 pts

Excellent post, Shannon.

We cannot move those entrenched into their positions by telling them repeatedly they're wrong. What we can do is show that regardless of their beliefs on causation that there is a large, warm and welcoming community online. It's one of the reasons Kathleen and I started the Autism Blogs Directory as an inclusive listing of autism-related bloggers. We now have around 500 blogs listed, and there is a diversity of voices. :-)

Kitaiska Sandwich 5 pts

Responding to "I think we need to thoroughly research early vaccinations for infants and babies."

Vaccines have been thoroughly researched. Seth Mnookin, author of The Panic Virus, recently pointed out in a CNN interview [http://leftbrainrightbrain.co.uk/2011/01/seth-mnoo...] that "this is probably the most studied public health issue involving children over the last 20 years."

Study after study has confirmed that following the AAP-recommended vaccine schedule in the first year of a child's life has no link to adverse health outcomes. One of those studies, which specifically compares the AAP-recommended schedule to alternative or delayed schedules, is linked here:

http://pediatrics.aappublications.org/cgi/content/...

The study's conclusion is in its title: "On-time Vaccine Receipt in the First Year Does Not Adversely Affect Neuropsychological Outcomes." The authors used vaccine data from several thousand children. They compared children who followed the recommended vaccination schedule in the first year of life vs. those who did not, and compared neurological outcomes 7-10 years later. The data were unequivocal: there were no significant differences in neurologic problems between the two groups.

Delayed schedules reinforce unfounded parent fears about vaccine safety, and leave vulnerable infants at risk for life-threatening diseases.

daisymayfattypants 5 pts

around--recent outbreaks in Africa, for example--and it is literally a plane ride away from anywhere in the world. The vaccine is still needed.

Five antigens presented simultaneously to the immune system amount to nothing compared to the innumerable immune challenges infants (and the rest of us) take on every day.

There was no thimerosal in most childhood vaccines even before all of this nonsense, and there was never thimerosal in MMR.

Vaccines have been thoroughly researched, and counter to assertions I've seen all over the Web, they are subject to the same clinical safety trials as anything else. They are a remarkably safe and effective form of preventive care, one of the huge success stories of the 20th century.

The "epidemic" idea of autism has met with several challenges, the most persuasive and best supported being that it was previously under- or misdiagnosed and that diagnostic criteria changes have also contributed.

Cheers! Emily ( http://daisymayfattypants.blogspot.com/ )

ciara 5 pts

being in california, we have seen the rise of whooping cough here...some deaths from it even (which probably could be due to the fact that some parent are against immunizing or that some have not gotten their boosters). now they are requiring that the pertussis (whooping cough) immunization be up to date before you can get into high school. i just recently got the booster which is good for another 10-15 years i believe. polio might not be around now, but i think that's thanks to the immunization. i have never bought into the vaccination & autism link. when i was reading the quote of the mother who said she had a healthy child until she had her shots & 2 mos later she had autism. i don't believe autism is something you can diagnose from the day they are born. It takes a bit of time to see if the social, cognitive, and emotional milestones come in the appropriate time. i guess they need something to blame, but i really think that autism needs to be studied further.

Ciara

Mary E. Ulrich 5 pts

Mary E. Ulrich

So many people believe science has all the answers. This is just another example of having the "experts" go for their personal gain.

I feel so sorry for the parents who bought into this. I hope Autism Speaks gets a clue about this and ABA and other "research" which they say cures autism.

The one good thing about the vaccine discussion is that there is no longer mercury in vaccines. But that should only be the start.

It makes no sense to me, that in the US, we routinely give 5 vaccines to infants at one time. That is nuts. There is no polio around, why can't we spread out the vaccines over a larger number of office visits.

Thomas Edison said, "We don't know one millionth of one percent about anything." I think we need to thoroughly research early vaccinations for infants and babies.

And, autism is an epidemic. It needs a huge research agenda--not just for prevention, but how to help children and adults and families.

Mominboyland 5 pts

Thank you for presenting facts for people brave enough to question authority.

Shannon Des Roches Rosa 5 pts

The FDA is far from perfect, but those are serious accusations to level at a not-for-profit government organization. Let's see some evidence. Real evidence.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )