Fibromyalgia - reality or just making up?

 

Let me tell you a story that starts with pain and more pain. It is not what you see in the ad campaign that Lyrica would like to call Fibromyalgia but real all over pain that went undiagnosed for several years. It wasn't until I could not bear it anymore that I went to the doctor.

 

Let me tell you a story that starts with pain and more pain. It is not what you see in the ad campaign that Lyrica would like to call Fibromyalgia but real all over pain that went undiagnosed for several years. It wasn't until I could not bear it anymore that I went to the doctor. Grab your favorite snack, sit back and look at my view about a disease that affects more women than you know and many who you may not know. I have Fibromyalgia and here are some facts and personal experience.

Fun Facts about Fibromyalgia

Fibromyalgia is something that is still gaining notarity. It has many symptoms that are the same as other diseases such as Lupus, Arthritis or any other muscleskeletol type of disorder. It is never diagnosed with one visit. It usually takes a batter of test given over days, weeks or months. CAT scans, MRI's and blood work are just to name a few.

The Mayo Clinic on it webpage (http://www.mayoclinic.org/diseases-conditions/fibromyalgia/in-depth/fibromyalgia) offers this statement,"In people who have fibromyalgia, the brain and spinal cord process pain signals differently. As a result, they react more strongly to touch and pressure, with a heightened sensitivity to pain. It is a real physiological and neurochemical problem." Most people who have Fibromyalgia do not like to be touched. It is not because they are being stuck up or rude they just know they will feel pain if touched in abrupt manner. Most people with it will deter from hugs because it is going to hurt, even though they would love to have one. Someone bumping into you at the grocery store can cause pain and make a person who has to feel discomfort.

Drugs okayed for use with Fibromyalgia

Lyrica is a story in itself.   I was prescribed it when it was introduced however, side effects became very apparent.  The list provided in the add where very true and present.   I gained weight, tongue swelled and everything else went hay whire in my body.   I discountinued the drug.   

The next round hit when I was doing a drug study for Cymbalta.    The study was a double blind study and involved placebos and the real drug.   You did not know which one you recieved.   I did okay with that so I asked my doctor for some.   It worked for awhile, until they changed my blood pressure medicine.   I went from one blood pressure medicine to another and when taken with Cymbalta created an attack on my system.    I felt like I was having a heart attack,  I was sweating, shaking and feeling like my body was under attack.   I sat on the floor and tried to breathe to calm down.    I found a glass and got some water, I was in the bathroom.   I sat there sipping water and trying to calm down my body.    It seems hours but was only minutes.    I finally relaxed enough to go back to bed.    The next day I thew away both medicines and started looking for alternatives.   I now only take a water pill and a low dose at that, be aware of side effects, they can harm.

My personal experience with doctors to date

My experience was not with founded of the earlier evidence. I had no idea why I was in so much pain. I worked at night, in the cold in a meat processing plant. I thought it was related.

My first doctor who diagnosed me after lots of testing informed he did not know much about Fibromyalgia.

He proceeded to prove it by giving me two anti-depressants that brought on Bi-polarism behaviors. In a factory setting that does not work. So I had to take time off work to find another doctor who claimed it was all in my head and had to do with hormonal changes.

Ok, so I dumped him for a Rheumatologist who thought I had sleep apnea and I no longer see her either.

Two more doctors later and I found Sports Medicine specialists which helped but he went east and I went without a doctor until I found the wonderful doctor I have now. She not only claims it is real; she also will use alternative medicine to make me feel better.

 

Why we are still looking for answers

The reason that there are people still looking for answers is because no one clinical trial or doctor has come out with one. Most people go to the doctor to find out what it is and then when the diagnoses comes they want a medicine, however, the best way to treat Fibromyalgia is by life style changes and modifications. Some people do it with diet by avoiding certian foods such as refined sugar, diet drinks or even gluten. I do it through exercise and vitamins. Everyone is different. Doctors are accepting it as a disorder more now because more people are coming forward and letting the medical community know that the problem is there.

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Items compared to real life

This picture explains why most people with Fibromyalgia do not sleep. I have Migraines, and brain fog. It is very hard to remember things. I proved it by trying to memorize an a set of recital pieces. I could recall some of the words but not all, am alway misplacing things. I did the recital with a music stand in front of me to help. The other soloist did it all from memory, which at another time in my life I could have done but not now. I memorized two complete recital while working on my Bachelor degree in Music, but now I lucky if I can remember what I am currently doing. People with Fibromyalgia incompass a huge range of symptoms and everyone is different. Some people are completely debilitated while other like myself work and live normal lives. The range is from highly extreme to low or functionable.

 

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