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I write Stirrup Queens when I'm not reading other people's blogs, cooking, or chasing after my twins. I'm the author of two books: Life from Scratch,...
 
 
 
 

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Blogging Through Adversity: WhyMommy Susan Niebur and Others Fight Cancer One Word at a Time

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Astrophysicist, mother, and BlogHer extraordinare, Susan Niebur, learned that her cancer had returned this week. So what did she do? She wrote the same as she always does with honesty and a touch of sarcastic humour: "Awesome! I wasn’t really looking forward to BlogHer, swimming lessons and preschool for the kids, and catching up on my sleep." And then, after you snickered, she brought it back to the heart of the matter with a soft, wistful landing: "we gulp, feeling woefully unprepared to know how to fight the cancer."

Susan has been writing about cancer (among other topics such as outings with her kids and all things outer space) since her initial diagnosis with inflammatory breast cancer in 2007 -- including the post about it that has been linked to on hundreds of blogs under the Team WhyMommy label. Go read that post. It might just save your life.

Which is a far cry from the other side of awareness that she has railed against: awareness for solely awareness' sake. Susan is a fighter, an eye-opener, and a protector of women everywhere. She writes eloquently about not only being an advocate for your own health, but to not fall into the easy trap of simply being aware. Take that awareness and run with it--not just for yourself but for all people, everywhere, who are fighting against cancer.

Team WhyMommy is about building a wall of support for a smart and funny woman. It's about getting word out there about women's health in order to protect all women.

Susan isn't the only woman out there blogging about cancer. I started reading cancer bloggers after meeting a few at BlogHer back in 2008. A great starting point for finding cancer bloggers is WhyMommy's brain-child, Mothers with Cancer. Here are 10 bloggers who have made an impact on me:

  • Not Just About Cancer: author, mother, and excellent blogger, I met Laurie at a BlogHer party for speakers at the conference in San Francisco. In addition to so many other things, she writes about her battle with metastatic breast cancer both on her blog and in her book, Not Done Yet.
  • MLO Knitting: a blogger I've read since I started blogging years ago, she was diagnosed almost a year ago with stage 1C ovarian cancer with a grade 3 tumor. This year, her blog turned from books and IVF to books and chemo.
  • The Maybe Baby (Babies): a childhood cancer survivor who writes about trying to build her family after her ovaries were damaged during chemo and radiation, as well as the brief life and death of her daughters, Jovita and Isobel.
  • Just Enjoy Him: an adoption blogger who also happens to be battling breast cancer. I love this recent post as a starting point to her circumspection and intelligence.
  • Never Lose Spirit: overcoming other personal trials in life, she approaches fighting breast cancer with the same grace. A new blog since she was diagnosed only in February.
  • Sprucehill: also writing currently about her recently diagnosed recurrence with breast cancer. Her amazing photography accompanies her words.
  • Clergygirl: one of the most accessible Christian bloggers I know (so says the Jewish girl!), she also writes about her battle against inflammatory breast cancer.
  • Kicked by an Angel: who is funny and sassy whether she is writing an ode to her port or a request for those at concerts to shut-up.
  • Radioactive Girl: a fellow BlogHer and twin mum, she also writes about thyroid cancer.
  • Evil Stepmonster: step-mother, IVF veteran, and now fighting melanoma.

And no list would be complete without a mention of Cancer Baby, whose blog was deleted over a year after her death in 2006. Posts about her live on in the blogosphere to this day, and her wit, talent, and grace are greatly missed.

Feel moved to help Susan fight the good fight? Help keep the work of Team WhyMommy alive by linking to her original blog post about inflammatory breast cancer and ensuring that more people read about this lesser-known form of breast cancer.

Melissa writes Stirrup Queens and Lost and Found. Her book is Navigating the Land of If.

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LadyVroom 5 pts

Thanks for a great article! It's sad that there are so many blogs on cancer, that so many people are suffering from it.

Can family members of cancer survivors/fighters also participate in Team WhyMommy? Both my mom & brother are fighting cancer right now. Here is my latest blog about it: http://unravelcancer.blogspot.com/2010/08/project-...

Here is the project I"m working on to honor their fight: http://www.facebook.com/StanleyCup4Cancer

If you or other survivors want to participate, email me your name or names of other survivors at: StanleyCup4Cancer@gmail.com

Melissa Ford 5 pts

Thank you for including your mum's blog in the roundup. Sending good thoughts to her and your whole family.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

allyson7657 5 pts

Never Lose Spirit is a very inspirational blog. My mother is the author of this blog, and her words help both my family, and our friends, understand exactly what is going on in her life and cope with the ever changing dynamic cancer presents in her life.

For anyone who wants to know exactly what is going on in the world of IBC, check out my Mom's blog at www.neverlosespirit.blogspotcom ( http://www.neverlosespirit.blogspotcom ). You can learn something from such an amazing, tough spirited woman, like her.

And to all of the other bloggers out there, thank you for getting the word out about cancer and inspiring women around the world.

Melissa Ford 5 pts

There is a whole world of people secondary blogging the experience (meaning, they're once removed from the disease, but still affected because they're caring for the person who has the disease). I found a few that are now somewhat defunct in terms of speaking about cancer.

Can more people weigh in with blogs they read that fit the bill?

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

LadyVroom 5 pts

Thanks for your inspiring post. My mother's brain cancer has affected her nervous system so severely that her hands & arms are quite immobile, making it difficult for her to type. So, she can't write like all the other cancer ladies that inspired you. She also claims the chemo makes her brain spacey, and finds it difficult to focus at length for reading & writing.

Instead, I'm the one writing, about my experiences with her, and with my brother who's also got cancer. Do you know of other family members who are surviving cancer alongside their ill loved ones that you could point me to?

Much obliged!
LV

Melissa Ford 5 pts

B, I am so sorry about your mum. My heart is with you.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

lovenlaughterb 5 pts

Thanks for this post Melissa. I'm am excited to start following these women and their blogs.

I lost my Mom to breast cancer just two weeks ago and want very much to still champion and learn from others who have fought along side her.

b from http://www.notasparrowfalls.com/

ayasmonsterz 5 pts

it is very dramatic, seeing more and more women in this world suffering from cancer. What's wrong with them that makes them like that. But that was a twist of fate. People who experience it must kuta, got up and did not surrender to such a state. People with cancer need special attention. Do not taunting them especially cornering. If it was reversed into us, then the rose will be difficult.

Melissa Ford 5 pts

Thank you for adding your blog to the list too. I think it can only be a good thing to have people find one another.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

Melissa Ford 5 pts

What an amazingly profound thought--I love your words to describe Susan.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

Melissa Ford 5 pts

Thank you for adding another one. And I encourage others to list their own blog or ones that they read. I think this could be a great resource for someone newly diagnosed in the BlogHer community.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

Jaynie 5 pts

While I am always so sorry to read about a cancer recurrence, I want to thank you for introducing me to several new-to-me blogs that I want to visit. I have to agree that the cancer blogging community is quite awesome!

Jayne

Jayne's Breast Cancer Blog ( http://jaynesbreastcancerblog.com )
Journaling with Jayne ( http://journalingwithjayne.com )

Amanda_Magee 5 pts

I said it once in a comment at Susan's place, she truly took "why mommy" and turned it into "how mommy." The courage, grace and wit of these women that share their journey through words is amazing.

Amanda
http://amandamagee.com

Lisa Stone 6 pts

I wouldn't have been able to keep it together during my mother's breast cancer treatment were it not for you and your amazing book. Thank you.

Lisa Stone
BlogHer Co-founder
Surfette

BlogHer is non-partisan but our bloggers aren't! Follow our coverage of Politics & News.

Canape 5 pts

Thanks for highlighting all of these amazing women, and of course thank you for the love for Susan.

I wanted to add another Inflammatory Breast Cancer Survivor to the list, if I may.

http://imstell.wordpress.com/

She also writes for Mothers With Cancer, but this is her personal blog. I find her to be very inspiring.

Melissa Ford 5 pts

Cancer is awful, but the support system that has been built online is amazing. That support can come from all parts of the world.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

laurie 5 pts

I appreciate the kind words so very much. My heart goes out to Susan and to Spruce Hill who are both talented, strong, articulate women. Cancer is an awful thing.

Laurie

www.notjustaboutcancer.blogspot.com ( http://www.notjustaboutcancer.blogspot.com )

Melissa Ford 5 pts

I wondered if he took it offline or if the Typepad account expired. It remained up so long after the point when they said it would go offline.

You know why your husband would never take it off? Because you'd be such a scary ghost that he'd never dare.

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

MLOKnitting 5 pts

I remember when I was first diagnosed and remembered CancerBaby's blog. I read it just before it was taken offline by her husband. I made my husband promise to never take down my blog and, if possible, find a way to preserve it, if the worst happened.

Now, of late, I have been a bad blogger. I admit it. The combination of network troubles, colds that are putting people out of it for at least a week, and a little dog who has to be watched like a hawk so he doesn't hurt himself further has put a bit of a crimp on blogging!

I'm hoping April is a lot less eventful.

MLO / Melissa

Books, Movies, Games, Ovarian Cancer, and Life in General at http://www.mloknitting.com/