Let me start by saying that I can't prove I'm on the spectrum. I was diagnosed with a rare neurological disorder fifteen years ago, but after researching and reading blogs written by women on the spectrum, the characteristics are too similar to ignore. I suspect I was misdiagnosed. The official diagnosis doesn't really matter. ...more
I didn't get everything out about why I decided to join the Boycott Autism Speaks movement in my first post on the subject. I knew that I wouldn't, hence the "Part One" when I was writing that post. It's time to get to Part Two.Here's the recap from Part One:I decided to join the Boycott Autism Speaks Movement (visit boycottautismspeaks.com for more information) because:...more
I couldn't finish reading it.I know it is dangerous to rely on other people for information, especially if I am going to form an opinion or have an emotional response to that information. The source document was readily available, so I had no excuse for not reading it myself. In fact, its widespread distribution was one of its disturbing aspects....more
This is my autistic son Leo, my husband, and me, right around the time Leo was being evaluated for autism. And, just to hedge our bets on the Original Sin matter, being baptized.Obviously, we were miserable. Can't you tell by the way Leo is laughing? ...more
A few years ago, Hubby and I noticed that our middle son had some ongoing issues. At first, it was humorous to find him wandering through the house, shutting some doors, keeping others open; some light switches left on, while others were turned off. He eventually grew out of that phase and Hubby and I moved on. Then, when he started preschool in preparation for kindergarten, we started noticing some social issues. These issues didn't necessarily go away and Hubby and I began to worry....more
Before I was Leo's mom, I would have been likely to choose defenestration over confrontation. But kids like my son, who has intense autism, require advocacy, and advocacy requires standing up and speaking out on matters that conflict with his best interests. We parents and caregivers who want real change, real results, and real information for our children with special needs have to be smarter and stronger than perhaps we ever imagined. Here are four approaches to the advocacy our kids deserve.
1) Get Informed.
Please join me in my fight to make a difference in the lives of the more than 1 million Americans living with autism today. Read More...
by Tamar Bihari This past weekend saw the cable TV premiere of a movie about animal behavior expert and autism advocate Temple Grandin. WVFC contributor Tamar Bihari writes about watching the film with her son, who had been diagnosed as being on the autistic spectrum. ...more
When my nephew, my sister's youngest boy, was diagnosed with Duchenne's Muscular Dystrophy, I started paying attention to Jerry Lewis and his 'kids.' This was, of course, after wailing and weeping and rending my garments. I think that it might be the third stage of terminal illness/disability grief: looking for famous examples of said illness/disability and/or advocacy thereof. I looked to Jerry, because his telethons were all I knew of muscular dystrophy.That was a mistake....more
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