Lullabies for Getty: Beautiful Music, Beautiful Girl

The internet is magic. A few months ago, Stacey -- a reader of my personal blog -- got in touch with me about Kate and Mark Storm, close friends of hers whose sweet baby Getty had been diagnosed with SMA1; the number one genetic killer of infants under the age of two. My daughter Delilah is only a few months older than Getty and as I read Stacey's email I was reeling. How unfair. The devastation of such a diagnosis felt tangible to me. ...more

Thanks Melissa - it was really just one of those weird internet-y kismet things. And so far the ...more

Lullabies for Getty (Help find a cure for SMA)

Today is a big day in the world of SMA research fundraising.  An amazing album, Sweetwater Child--lullabies for Getty, by the Damnwells, dropped today.  The proceeds are going to the Getty Owl Foundation.  This foundation, started by the parents of sweet Getty Owl, raises money to go to the research for a cure of SMA (Spinal Muscular Atrophy).  Please go read more about this foundation and this album in a recent blog post I was honored to write ...more