6 Tips for Caring for Someone with a Physical Disability

Giving care to the disabled is not an easy job. It requires a lot of patience, dedication and understanding. It is not everyone’s cup of tea. To be a good caregiver, you need to, first of all, look after yourself physically as well as mentally. That said, the life of a physically disabled person is no cake-walk either. It isn’t easy to come to terms with the fact that their life have changed forever and they may have even become completely dependent on others to carry out their daily tasks. ...more

Five Things You Should Never Say to the Mother of a Child With Disabilites or a Life Threatening Brain Tumor

Ever since my daughter, Bethany was diagnosed with a very large brain tumor I have been the recipient of much unwanted "medical" and "spiritual" advice and even though Bethany has been cancer free for fourteen years, because her life threatening illness left her with several permanent disabilities, people still often feel compelled to offer me their witty yet still unwanted advice or versions thereof that I first heard so many years ago....more
Listening and empathy can be our truest gift of compassion.more

Disability, Sexuality, and Faith

It has become quite obvious that my fifteen year old special needs daughter and a boy in her social club have a little romance going on!  I doubt if they've ever even uttered one word to each other but when they are together he gets right up in her face and takes her hands in his.  Then they dance and run around together, hand in hand!  It's just so incredibly  adorable! ...more
nomorenicegirl You are welcome!  Thanks for reading!more

"It Could Never Happen To Me"

I once heard a comedian/disability advocate introduce himself at the beginning of one of his shows as "not disabled yet." Nicely played, I thought.  Because while disability isn't inevitable for everyone,  there's a good chance that for many people, age (if not circumstance) is eventually going bring some sort of disability....more

Why I Joined the "Boycott Autism Speaks" Movement, Part One

I'm doing some research into Autism Speaks that I've been meaning to do for a long time, trying to understand what exactly has led up the wide-scale boycotts of one of the most well-known autism research and advocacy agencies in the US....more

Break Barriers, Open Doors - Top 5 ways to observe IDPD2013

Did you know that about 15% of the world’s population lives with some kind of disability? Whoa. That means more than 1 billion people are facing all kinds of barriers: physical, social, economic and attitudinal. According to the UN, we are disproportionately represented among the world’s poorest and lack equal access to basic resources in education, employment, healthcare, social and legal situations. Yet, we have remained largely invisible. Crazy, right?...more
Hi Christie - Great to find you here on BlogHer.  You're an inspiration!  Keep riding that bicycle!more

The Rabbi and her Green Stamps

Anyone who spends much time with me hears about Green Stamps. Once upon a time, the Sperry & Hutchinson Company printed these stamps.  Back in the 1960's we received them as a premium at the grocery store and various retailers, and if we saved enough (usually by pasting them in special saver books) then we could trade the Green Stamps for all sorts of goodies: toys, housewares and other loot....more

Such a Good Looking Boy: the Gift of Autism

“He is such a good looking boy” was in the first paragraph of a multipage report spelling out in detail that my son had high functioning autism. You see, it should not have come as a shock. We knew he was a very unusual boy early on. However, having a professional tell you that your son is autistic can still steal your breathe. I mean, isn’t this a life sentence?...more

The Wheelchair

Last night I had a conversation with a friend about grieving which got me thinking about my own grief in relation to my pregnancy, childbirth and everything that followed. Although I am grateful for our miracle twins, I also felt a deep sadness from having a very complicated pregnancy only to be followed with our micro preemie babies spending three long months in the nicu. The funny thing ( or maybe not so funny) is that it took me a long time to feel anything other than fear. Mostly I was just very tired and numb....more

Spoons on Strike

I wasn't expecting to add another post so soon after my last but what a nightmare i'm having!My spoons have gone on strike!! It's as if they won't replenish. Not with rest,  with coffee, hot baths, energy tablets, pain relief or any other way I usually blag extra ones. ...more