Celebrities. We need gas. We need groceries. Our kids want to go to the park. We push them on the swings. Sure there are some divas, but a lot of celebrities are pretty down to earth. And it’s the same for families with Down syndrome.Celebrities. And Down syndrome. We’re just like you.We’re in line at Starbucks. You see us. We see you see us. We see the stare that lasts a half second too long. You look away. But you’ll look again. You have to. You have to be sure of what you’re seeing. Something at once familiar and new.Wait? Is that…?...more
…like Ramma lamma lamma Ka dinga da dinga dong Remembered forever like Shoo-wop sha whada whadda Yippidy boom da boom Chang chang changity chang shoo bop That’s the way it should be Waooo Yeah!”These Kids Rock! They really do!...more
When you have a baby who has Down syndrome you find out that almost everyone in the world has a cousin with Down syndrome and they all work at a grocery store.And they’re all incredibly happy.You know, I hope most people are happy. I hope all kids are happy. And babies.Are people as a species so unhappy that my now five-year old daughter reading library books on the couch stands out in such contrast?...more
Commanding the physical world occupies much of my time. Washing hands, cleaning vegetables, vacuuming, picking up clothes, and all day long putting things "just so." My son and I don't always see the world in the same way. I've got a lot to learn to communicate effectively with him. His command of the world takes a twist he sees no reason to justify. To him, licking the window on the bus might be the greatest thing ever. Why not?
Once upon a time, there was a magical little girl. She brightened the room when she tumbled in and proceeded to share fierce hugs and sloppy kisses with everyone without hesitation for who they were, what they looked like, and what titles and possessions they owned. All shared equally in her unconditional love....more
Before my son was born, I knew nothing about it. I couldn't even recall ever meeting a person with Down syndrome. Then, everything changed. Rather than pointing you to charts about physical features and learning abilities, let's make an effort to really understand, even a little bit, about Down syndrome and the families it touches.
Special needs, cancer survivors, and all shapes and sizes of women and girls shine beautiful in the new video by John Legend, "You & I (Nobody In The World)." The melody is touching; the images will probably make you cry. I did. So what in the world could go wrong with a video like this?
Music tames the beast - meaning me. The insanity of daily life is drowned out when music comes on the scene. B.C., (before children), my music ruled. I spent hours making those cassette tape D.J. - mixes of my favorite tunes. All catered to certain mood, the songs gave me the perfect groove to workout or the rhythm to beat off a broken heart.
IEP? Are you ready? The big tool to carve an educational program for special children is the IEP - Individualized Education Program. Education is a big task; figuring out what to do with special needs kids in the educational system is gigantic.