World Down Syndrome Day - a day of inclusion

“WDSD is observed on 21 March every year. On this day, people with Down syndrome and those who live and work with them throughout the world organize and participate in activities and events to raise public awareness and create a single global voice for advocating for the rights, inclusion and well being of people with Down syndrome. “ ...more

Sprout Film Festival Makes the Invisible Visible

We settled in for an afternoon of film. The stars, filmmakers, and audience comprised a demographic often forgotten about in the film world. The Sprout Film Festival travels the country delighting and promoting films, promoting social change. We sat with peers, families, and film buffs to enjoy the movie shorts. ...more

Carry a Big Stick

He held the stick up to the sky. Though he was laughing, I stopped. For a moment he wasn't a child out for a walk, enamoured with a big stick; he was a warrior. It took a lot of strength to steady the long piece of wood above his head. He smiled and grimaced all at once. It was difficult to balance, yet he held on. ...more

A Very Special Thank You To A Special Boy

Summer is almost here. I had picked my blue beaded sandal to wear that day. As I was waiting outside my daughter’s art class, I felt a little nudge on my feet. I looked down to find two tiny little shoes trying to fit into the curves on the side of my sandal. I said to the little boy who seemed fascinated by my sandals “Hi There, I think you like my sandals.” He looked up, his forehead covered with beautiful golden hair and smiled at me....more

Please Don't Lick the Car: Lines I Can't Believe I've Said to Get Through a Day

Mothers say the darndest things. My plate piles high with a delightful combination of "special" experiences. What comes out of my mouth makes no sense at times - even in context. The following lines actually came out of mouth in order, (I hoped) to move forward, save my son from hazard, or get through the day. A few days ago, a woman said to me, "Mothers with special kids are chosen and very special." She looked at my son with such endearment, I wanted to ask her if she'd like to rent him for awhile. Women started writing and talking about the odd and curious profession of motherhood....more

Midlife Cabernet: The World is a Better Place when Pooh Bear is Safe

 I enjoyed a social engagement this week with an extraordinary little girl I call Sweetie Pie....more

What Your Heart Around it... Around What? Dealing with a special needs child

When Life Gives You Lemons.... ...more

Life is more Beautiful because Reid Layne is here

My whole world has been turn upside down...But maybe that’s the beauty of life...That’s what I’m hoping...It’s really hard, heartbreaking actually to sit down & write the words I am about to share but for me I feel that it may bring some healing, some acceptance & if anything prayers or positive thoughts for my darling little girl...

Our Thanks for 2012: A Bright Future, A Changing System

When I was a little girl I was often asked “what do you want to be when you grow,” and although my answer changed often -- and still does change -- many of my dreams for my future were realized. When asked what Alex “wants to be when she grows up” she answers just like I did. She wants to have a husband, a job and lots of friends. She wants to play sports and participate in community activities, she wants to choose her own future and be a part of it. We will honor this. But for many of our young adults today, choice has been compromised....more

well baby, baby be well

With a Little MoxieWe went in for our Well Baby check right before Christmas and it was just a wild whirl of wellness...more