Suffering the Silence: A New Book Advocates for Chronic Lyme Disease Sufferers

Allie Cashel, Lyme advocate and author of Suffering the Silence. Photos by Amanda Crommett Photography.I don’t think I ever fully woke up the morning of Allie Cashel’s book launch for Suffering the Silence: Chronic Lyme Disease in an Age of Denial.By 10am my happy little dog was ready to get up and go, but my body wasn’t. A walk, iced green tea, breakfast, and a few hours of work later, and I still felt in a funk. Joint pain crept in. I battled it with twenty minutes of gentle yoga, and for a short while I felt my body opening up and breathing deeply. But then it closed quickly again, worsening from the exertion, blowing into severe pain and threatening to go into full crash mode.By the time I’d made it down to the party, I was depleted, vulnerable, and in worsening pain. I stayed all of twelve minutes; long enough to congratulate Allie and her publicist Erica’s achievements, buy a few copies of the book, and wish them well on their book tour, before sneaking away without saying goodbye.I wandered the Lower East Side, lonely in my pain and anxiety, feeling inadequate in not being able to stay longer at a celebration I’d anticipated for months. I was angry with myself for not being able to filter out the loud hum of the celebratory voices filling the gallery space, which felt like lightning in my brain and on my skin. I was frustrated that I couldn’t just will myself into being bright and bubbly and social, as I truly wanted to be.I spent the entire weekend in bed, resting and trying to restore. This happens, sometimes. Because I’ve dealt with Lyme disease - with its co-infections and mysteriously endless, wavering symptoms - for over twenty years....more
It's all true and terrible. It's also underfunded and widely mistreated and denied. But there is ...more

This Lyme is a Lemon! Entry 2

I felt great yesterday. Ignorance is bliss. I carried on like a normal person and accomplished tasks. Today, I feel like crap. Headache, exhaustion. Time to go to work. ...more

Ticks are in season and here’s what you should know about Lyme disease

This post first appeared on Mona Andrei's personal blog, Moxie-Dude.Have I ever mentioned how much I dislike bugs?Deep life question #1: Why do we even have bugs???...more

Why I Take Ticks Very Seriously

One spring evening, when my youngest daughter was 2, my husband came home from work and asked if Little A had a sunburn on her face. I thought we must have missed a spot during her squirmy sun-blocking session, and I didn't think much of it until the next day. It looked almost like she had been whipped in the face with something, but I knew that hadn't happened. We gave it a couple of days, but the blotchy, rashy patches on her face didn't go away, they seemed to fade and brighten, and they became more pronounced. And she was a little cranky and warm....more

Lyme Disease: Tricky to Diagnose and Other Things You Need to Know

I have no medical training, so this should not be taken as medical advice. If you are wondering about symptoms, get off the internet and call a qualified physician! Let's talk about ticks. Ugh, my head is itchy just thinking about it. I'm going to go take a shower now. Okay, I'm back. Just thinking about ticks gives me the heebie jeebies. But I've got to write about them (and compulsively scratch myself all the while) because I've learned some things about ticks and Lyme disease that I didn't know two weeks ago. We just got the test results back. My little guy has Lyme disease and is on a course of antibiotics for it. Which means it's likely that there's a tick somewhere in my house. ...more
What weird timing that I looked at BlogHer today and saw your post. We went geocaching yesterday ...more

"To say I'm angry is an understatement" ~ Lyme Disease and Dysautonomia

A Facebook post from a Lyme patient about low blood pressure and unacceptable reactions from doctors--in this case neurologists and cardiologists.The bp photo is part of her post.  The photo is mine from Philadelphia, which I just thought to add.  Commendable rant, as well as commendable sign-making and advocacy, from Katie Eelila....more

Lyme Warriors ~ Lyme Disease Politics, Science, and Activism

You may have seen headlines in the past year about the increasing number of Lyme cases in the United States, or about the dramatic increase in the estimated number of annual cases.  But unless you've been afflicted with this illness or have known someone with it, you probably have no idea how infectious this topic can be, even aside from the illness itself....more

When life gives you a twist of Lyme Disease

This is the post I have been trying to get the nerve up to write for almost a year. ...more

My Kid Was Bitten by a Tick, Now What?!

My family spends a great deal of time outside. We run through the woods, we play in the gardens; we dig holes and look for worms. Not much has changed in the analog version of childhood fun since I was a kid. Except for ticks. ...more
There are so many cases here that many labs are back logged. It is easier to treat with meds and ...more