I can say with great certainty that if you walk in to any ER and start screaming, "Get these ants out of my head!" you will get immediate attention. In most cases, that would result in restraints and a psychiatric evaluation. Lucky for me, the bandage on my head added credibility to my story. ...more
Systemic scleroderma can be characterized by the thickening of the skin caused by accumulation of collagen, and by injuries to the smallest arteries. It is an autoimmune or connective tissue disease, that arises from an inappropriate immune response of the body against substances and tissues normally present in the body....more
I have limited range of motion of my elbows, ankles, hips, shoulders, fused toes and wrists, bone spurs, calcinosis and a constant all over pain rating of 3 every day. You bet I exercise, but my ability to do so did not happen over night....more
I was planning on writing a letter to myself at age 23. It’s been almost twenty years since I received my Scleroderma diagnosis. Then something amazing happened and it made me realize I would not change a thing.My son and I had just finished reading The Lorax when I received a text from my boss. I recently started working with him as a member of the staff of The Southern California Scleroderma Foundation, tweeting for @WalkforCure. ...more
Originally posted on Scleroderma, Sarcoidosis and Box Wine 8/17/2011If you follow me on Twitter or Face Book, you already know I was admitted as an inpatient to the Veteran's Hospital near me. It's where I get my prescriptions filled, tests done and meet with 1/2 of my treatment team....more
."Keep, ancient lands, your storied pomp!" cries sheWith silent lips. "Give me your tired, your poor,Your huddled masses yearning to breathe free,The wretched refuse of your teeming shore."Emma LazarusBased on the cheers I heard about letting the uninsured die during the Tea Party Debate, I wonder if they would have led a protest against Emma Lazarus' poem. ...more
We don’t appear sick enough and I hear many complain about paying people to stay home. That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits. Yes, this girl from Westminster, California is finally living the dream. ...more
I have a beauty confession to make. Or perhaps, I should say beastly confession to make. Everyone has a good side they like to pose in photos with. Now usually our “good side” is all in our minds and we look fabulous from any angle. In my case, that just is not true. I suffer from severe Linear Scleroderma. In a nutshell, collagen overproduction has attacked my healthy muscle tissues and replaced them, for better lack of a word, with scar tissue.