Life on a rollercoaster: Living with a SPD child

There are days when I feel like I can’t breathe…seconds, moments, hours…but sometimes, honestly, entire days. I have always been prone to anxiety, and “what-ifs” and worst case scenarios – and becoming a mother only intensified those feelings. I am also not an optimist by a long stretch, and am admittedly much more likely to see the glass half empty....more

Major discovery for basis of Sensory Processing Disorder in children

FACTS:1. Sensory Processing Disorders (SPD)  are as common as ADHD.2. SPDs are more prevanlent in children than autism.3. SPD hasn't been recognized as a distinct disease.4. SPDs affect 5-16% of kids.5. Kids with SPD can have hypersensitivity to sound, sight, touch (think fabric or food textures). They can also have poor fine motor skills and be easily distracted....more

Celebrating the Small Victories

Today I had one of those special moments. It took me a minute to realize the full magnitude of the event. You see this morning was just like any other morning. I walked into Bo's room and flipped on the light. She didn't stir. She's always been a heavy sleeper. I sat quietly on the edge of her bed watching her sleep for a moment, studying her face and thinking about how fast she's growing up. I then began my normal annoying mom routine of lightly tapping her shoulders, calling her name, and sometimes even resorting to singing obnoxious little made up songs to get her to wake up. ...more

Sensory Processing Disorder Versus DSM

 This weekend the sensory community received heartbreaking news thatSensory Processing Disorder is not considered a real diagnosis per theDSM (Diagnostic and Statistical Manual). The American Psychiatric Association (APA)  also clumped Asperger’s with Autism, putting them both on the Autism Spectrum (ASD)....more

Jacket Fail: The Ongoing Oddysey of Winter Coat Meltdowns

Just when I think I haveSensory Processing Disorderunder control, it rears its ugly head and reminds me who’s boss.With the return of winter comes hats, gloves and the ever-feared winter coat. We have made such phenomenal progress with Vman I naively believed we would coast into winter. SPD kindly slapped me across the face as a wake up call to realty....more

Stories That Touch the Heart - The Emperor's New Onesie

I almost started crying watching this video. The Emperor's New Onesie is a story many of us can relate to.When I think back to how upset my Vman was as a baby, I wonder what would have happened if I had let him be a naked baby... snow in Chicago be damned! Vman cried CONSTANTLY as a baby. And the entire time, people kept telling me tricks to deal with his issues. As an infant, people, including our caring pediatrician, kept telling us that he was just fine. Hey, babies cry, right?...more

momma needs her coffee (thoughts on autism & friendship)

I woke up this morning, and promptly wanted to go back to sleep.That has got to be a bad sign when you're ready to go back to bed before your feet have even hit the floor.I'm sure I'll survive stumble through my day without hurting anyone.I've got a list of things to get done for this birthday party on the weekend and to be honest I don't even know where to start. I wish I had started planning this months ago so everything was already in place and it was just a matter of setting it all out....more

Awareness, from the Beginning

What do I remember about O's early years? Misery. Heartache. Guilt. I am so grateful for the photos I took during that time, because through them, I am able to see that he and I really did smile....more

Ripping Off the Band-aide

Hello friends. It’s time to rip off the Band-aide and just start. No more excuses. No more thinking. Just do it already, Jennifer! After all, the journey of a thousand miles begins with one simple step....more

Parenting (or How I Know Nothing)

I was an amazing mother before I had children. My dog, Doug, was walked every day and was fed on a regular schedule. I even fed him the good food. And he ATE it. Happily. We snuggled in bed and on the couch and watched TV together. I was never late with vet appointments and I always gave him his heartworm pill on time. I brushed his hair and said sweet and loving things to him. He was my baby and I was the best mom ever. Other dogs were probably jealous. Just look at him. He's practically royalty....more