That time my son impressed a nurse by asking for a pillow

My son, B-man or Bucky, depending on his mood, had just awoken from a 6-hour surgery. The surgeon comes to give us an adrenaline-fueled recap. I will never tire of hearing this part: He's going to be fine. Everything is going to be okay. That pervasive melty feeling in my legs starts to fade....more

To my forever child on the eve of her 18th birthday.

18 years ago tonight, I was almost a week overdue.  She was due on June 28, but that day came and went with no signs of her wanting to make an outside appearance.  At my weekly appointment a few days earlier, my OBGYN said it rather plainly.  "The holiday weekend is coming up and I'm going on vacation.  I want her delivered before I leave.  We'll induce on Friday, the 4th".  Well, shoot....more
Love you colorful description of your birthing experience :). I don't think i will ever forget ...more

Pants on Fire

(from March 2014)We have heard a lot about RESPECT, AWARENESS and UNDERSTANDING over the past few weeks (End the r-word) and we will hear quite a bit more next month during Autism Awareness Month....more

My Son Has No Eyes!

My Son Has No Eyes It was during an ultrasound that I heard the terrifying words,  "I think that your baby's right eye didn't develop."About a month later at my next appointment, his concerns were confirmed.  Now it was my decision they said as to whether or not to continue with the pregnancy....more

You're raising a bully

  If you follow our page or my blog, you know that where we live sucks. No bones about it. We are surrounded by children who bully our child, and parents who could care less.     Matter of fact, here's a great example. Last fall Liam was outside playing with his old bike. It's beat up, it's too small for him, and it needs to be junked. You know as well as I do, that our kiddos don't part easily with certain things.  Anyway, he was playing with his bike, his father was in the yard preparing it for winter. ...more

Decision Making Style and Your Child's Future

The Wall Street Journal has an interesting article about how people make decisions and whether this actually leads to happiness.  Read it HERE. I am not certain if it is behind the paywall, so I have taken the graphic and embedded it below. Find out whether you are a satisfier or a maximizer....more

Decision Making Style and Your Child's Future

The Wall Street Journal has an interesting article about how people make decisions and whether this actually leads to happiness.  Read it HERE. I am not certain if it is behind the paywall, so I have taken the graphic and embedded it below. Find out whether you are a satisfier or a maximizer....more

The Stigma of Hidden Special Needs

I have children with special needs. Hearing loss, heart defect... those don't cause people to raise an eyebrow. A murmur of sympathy for my son who as endured heart surgery? Yes. A few polite questions about hearing loss? Sure. Judgment? No. But what about other special needs? Try telling someone your child was born addicted to cocaine. Or suffers from FASD (Fetal Alcohol Spectrum Disorder). These will get you a different reaction entirely. ...more
drannmaria Thank you so much for sharing this! I know there are many, many caring people out ...more

When our Parenting Insecurities Get the Best of Us

I was recently on the soccer fields waiting to pick up my daughters when a mom started chatting with me. She asked who my children were, and after I pointed them out she excitedly told me how great my daughters and the other two girls in the group were doing with the larger group of boys. I then of course asked who her son was and as soon as she pointed him out she began to ramble  on about how he wasn’t having a good practice today and they weren’t sure if soccer was his thing and he had a growth spurt recently so he wasn’t as coordinated as the other boys and he wasn’t as fast....more

Dear Parent of Typical Children: Teach Your Child About Disability

Your children watch and learn from you, every day, every moment. They listen to your words, imitate your actions, follow your cues on how to behave in new situations, and mimic your example on how to interact with people they meet. And they will learn, from you, how to understand disability. ...more
YES! I think talking about it is SO important! I have had the chance the past two years to share ...more
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