Lullabies for Getty: Beautiful Music, Beautiful Girl

The internet is magic. A few months ago, Stacey -- a reader of my personal blog -- got in touch with me about Kate and Mark Storm, close friends of hers whose sweet baby Getty had been diagnosed with SMA1; the number one genetic killer of infants under the age of two. My daughter Delilah is only a few months older than Getty and as I read Stacey's email I was reeling. How unfair. The devastation of such a diagnosis felt tangible to me. ...more

Thanks Melissa - it was really just one of those weird internet-y kismet things. And so far the ...more