A glimpse into life with a tube fed child
By laurajbmartin on February 19, 2014
As originally posted on my blog: http://josephathome.blogspot.com
First, we have maintained power and have not had any emergencies during the recent winter storm. Yay!!! Yesterday (Wednesday), we had sleet, freezing rain, and a little snow all day. It started late Tuesday night and lasted most of the day. Late last night it all turned to snow. We woke up to the most beautiful snowfall this morning. We don't see this in Georgia very often.
We went outside and played this morning as a lot of it will melt this afternoon. The temperatures will drop below freezing again tonight causing a refreeze. I am dying to get out of the house. It's going to be interesting to see what happens with school. Scott has next week out of school for winter break. He will have two almost full weeks out of school. Joseph is out Monday for President's Day making for a week of unexpected vacation time.
During Feeding Tube Awareness week, I wanted to give a glimpse into our life with Joseph's feeding tube. Joseph receives over 500 mL of formula at night while he is sleeping. The formula is what gives Joseph the nutrition and the calories he needs to gain weight. With Short Bowel Syndrome and his multiple food allergies, Joseph doesn't eat enough by mouth to maintain weight gain.
On this particular night, Scott stopped Joseph's feeds during the night because his belly hurt. We gave him the remainder during his afternoon nap. Some days I will run his feeding pump during our one hour plus commute to school.
Just another glimpse into life with a g-tube.
Happy Feeding Tube Awareness Week!!
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