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I'm the BlogHer Contributing Editor on parenting children with special needs, and I'm at your service.  I am more than a parent, but with three...
 
 
 
 

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Having a Merry But Modified Halloween

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Halloween should not be a time for parents of kids with special needs to dwell on Ghosts-of-Halloween-Past or Ghosts-of-Halloween-That-Might-Have-Been, because there's far too much fun to be had. We do, however, need to approach Halloween with clear-headed creativity and flexibility, and prioritize our kids' needs and stamina. So, if you're in the market for Halloweening advice, let me dump some on your head, courtesy of personal experience, friends' adventures, the Internet, and the Twitterverse.

  • Does your child find the entire concept of Halloween overwhelmingly frightening? Then sit down with your child and read as many books about Halloween as you can, talk about what kinds of activities may be available, agree ahead of time which activities your child will participate in and to what degree, and reassure them that they can opt out of anything, any time (and then weave behind-the-scenes spells to ensure that your promise holds).
  • Does your child need encouragement to try new or different things? Trick-or-treating may be just the ticket -- and if your child is used to ABA therapy, you can treat the heavily scripted and repetitious activity of trick-or-treating as an extended discrete trials session, complete with fabulous built-in candy reinforcers. (Trick-or-treating can also be awesome for kids who thrive on scripted activities or routine.)
  • Do you think your child will enjoy trick-or-treating, but are worried it may not be appropriate for them? If they tire easily, or have easily-triggered and unpredictable meltdowns, then plan a limited route close to home, or have another adult trail your crew in a getaway car. If your child has limited mobility or is in a wheelchair, scope out your trick-or-treat route ahead of time so you can note non-accessible houses and avoid them.
  • Does your child have sensory issues that make Halloween a horror show of overwhelming strobing lights, loud noises, and scary, unpredictable decorations? Skip trick-or-treating, and instead plan a sensory-friendly Halloween party. If your house isn't the right spot, rally a group of parents and ask a local church or school to donate party space (don't be afraid to politely opportunize the 'kids with special needs' angle). A dedicated party also allows parents with children on special diets -- or those who prefer to sidestep sugar-based temperament detonators -- to plan appropriate menus.
  • Do sensory issues also limit Halloween costume choices? Are scratchy seams, tags, and headgear all deal-breakers? Consider pajama-like costumes without headgear, like Superman or Supergirl, Jedi, or Ninjas. If your child does martial arts, let them wear their uniform. If they want to go trick-or-treating but don't want to wear a costume, then who cares -- let them wear their regular clothes.
  • Do you suspect that your child doesn't yet grasp the concept of Halloween? Then don't force them to participate Halloween traditions unless they want to. Instead, plan alternate recurring seasonal activities your child will enjoy, and look forward to.

My son doesn't care about Halloween, but he does like to mill about with other kids and to climb things -- so each year we take him to our favorite local Pumpkin Patch. It's not the fanciest pumpkin environment, nor does it have bouncy houses, inflatable slides, or train rides. What it does have is a huge open field of pumpkins, a old truck for climbing and jumping on, a hay bale pyramid for surmounting, and endless running around opportunities for Leo to hang out and groove with other kids in the pack-like manner he prefers.

Pretend you can't see the straw in Leo's mouth. Would you otherwise be able to tell which of the kids atop the giant hay bale pyramid receives government-funded respite hours?

Nothing like a good weight-bearing gross motor activity, especially for kids like Leo whose occupational therapists have advised more upper body- and trunk-strenghtening exercises.

Leo and his siblings and cousins spontaneously playing Herd in a Truck. They're good at it. They love it. Leo's included. No one had to structure, plan, or facilitate anything beyond delivering these kids to that field.

This is not a boy who plans for or cares about Halloween. This is a kid who enjoys the moment.

Good luck, friends. Have a safe, happy, fun, and regret-free Halloween, and feel free to send me any leftover candy.

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Additional resources for Halloween-favoring families of kids with special needs:

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femininetomboy 5 pts

I went to a neighborhood halloween party where a boy in a wheelchair had an Emeril costume, complete with table and baking supplies.  Bam!

It's so uplifting when people use their imaginations like this.

Claudia Broome 5 pts

Had to share a Halloween story about how the mom of a disabled child who uses a wheelchair had the imagination to create a costume for her child that was a cupcake! Just an amazing attitude shared by both the mom and child.

"Being A Cupcake Can help Self Esteem!"   http://bit.ly/am7FyA

Claudia Broome | Inspiring Disabled Children

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Willful Woman 5 pts

You're awesome. Just found you 'cause I posted my own Halloween tale here. Love the pix of Leo. What a lucky guy to have a mom like you. I really like your writing and with kids(and all kinds of other folks in my life) with their own quirks I appreciate the information and suggestions.

Always a... Willful Woman @ ( http://twitter.com/ ) www.besidethestonewall.com ( http://www.besidethestonewall.com ) Visitors always welcome! Bring your stories to share!

aspergers2mom 5 pts

Elise http://asd2mom.spaces.live.com

Always fun and informative to read your posts. Halloween was always a big scarey not-fun day for us in our house. Even to this day highschoolboy still hates it. Does not find enjoyment in being scared, costumes and the like. In fact as a small boy Halloween used to frighten him because he thought that all the people transformed into their scarey costumed characters. How's that for being a literal aspie?

BTW great pics.

Niksmom 5 pts

(aka Bubblygrl) Thanks for the shout out, Shannon.

Between Nik's not understanding what Halloween is about and last year's sensory nightmare when we tried to take him Trick or Treating...we're going to sit this dance out!  I'm printing this post to file away for ideas when the day comes that Nik might want to participate in Halloween.  Or, if not, to share with other families.

On another note, is it wrong of me to hear the theme to Green Acres as I look at the photo of Leo alone in the back of the truck? *giggle*

http://maternalinstincts.wordpress.com ( http://maternalinstincts.wordpress.com/ )

FelCard 5 pts

It's about to remember the past..this time is time is the time to refresh all the memories that you have with someone that has passed by and to have a time to thank or to give time to them this so called halloween is made..

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heatherbabes 5 pts

HI! I'm the special needs kids examiner at examiner.com and wrote about this post because I think you did a fantastic job and I couldn't have done better! You can read my post at http://tinyurl.com/yjtma7w