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The iPad: a Near-Miracle for My Son With Autism

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My son Leo's life was transformed when a five-dollar raffle ticket turned into a brand-new iPad. I'm not exaggerating. Before the iPad, Leo's autism made him dependent on others for entertainment, play, learning, and communication. With the iPad, Leo electrifies the air around him with independence and daily new skills. People who know Leo are amazed when they see this new boy rocking that iPad. I'm impressed, too, especially when our aggressively food-obsessed boy chooses to play with his iPad rather than eat. I don't usually dabble in miracle-speak, but I may erect a tiny altar to Steve Jobs in the corner of our living room.

Irony: We hadn't even considered getting Leo an iPad. They seemed awkward and fragile to me, with oversized touch screens that looked as vulnerable as a hermit crab's exposed backside. I felt more comfortable with the sturdy iPod Touch we'd purchased just two weeks before winning the iPad, and which Leo seemed to enjoy well enough. But our boy has difficulty with fine motor tasks -- with making his fingers do small-scale manipulations like pointing and writing -- and also, as it turns out, with the tiny iPod touch screen navigation. He can use the iPod Touch, but it doesn't compel him the way the iPad does.

After Leo spent five minutes with his iPad, I realized that any assumptions I had about it being merely a bigger or a more breakable iPod touch were idiotic. It's a tough little device. And for Leo, the larger scale of the iPad makes everything he wants to interact with just the right size, and therefore totally accessible. He may have a hard time writing on paper or typing on a computer keyboard, but he is a world-class iPad swiper and tapper, and his excellent visual memory means he can use that swiping and tapping to navigate between apps and videos with precision.

Leo mastered the iPad interface within a day. He explores it, he rules it, he loves it. Example: He used to beg me to play the same video sequences over and over again on TVs or computers, because that was the only way he could feel in control of his videos. Now that the iPad lets him choose exactly what he wants to watch, he's not only comfortable watching shows in their entirety, but he keeps checking the video home screen to see if I've downloaded new ones.

He's attempting drawings like we've never seen before on his iPad, via MagnaDoodle-y apps like DrawFree. It's so much easier for him to run his finger over the touchscreen than use a pencil, pen, or even crayon. The following drawing may seem simple, but until last week he had never drawn people as anything more than a smiley face with legs. Now we have ears, hats, arms, fingers, and toes! Serious mama bear pride.

Leo's Prompted Drawing

But it's the early learning apps that really let Leo shine, like the spelling program FirstWords. Leo loves this app because it's fun and easy. I love it because he's learning to spell words, and the interface makes that learning error-free. Witness how nimble he is, how engaged:

IWriteWords is another intuitively designed favorite, and includes writing as well as spelling -- both challenging areas for Leo. He adores it:

Those two spelling apps may be autism-friendly, but they're not autism-focused. The next app, Stories2Learn, is a social story maker for kids with communication difficulties who need support with excursions, routings, or transitions. Our entire family (and a friend) had a great time putting together the photos, captions, and voiceover for this social story about Leo visiting a local cafe -- the process was so easy, and fast, and Leo loves the story so much I had to have his sister demo it, as Leo likes the voiceovers to repeat several times:

Leo may have communications difficulties, but he is a visual boy and a visual schedule pro. We have started using a visual schedule app called First Then Visual Schedule. It comes with a library of stock images, though you can add your own. It took me about 20 minutes to set up Leo's exact morning schedule, from getting out

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joe-mark-dad 5 pts

Shannon, I have just discovered your blog, and am excited about it. I am just in the first steps of planning to expose my son, age 50, to an iPad, as he has not talked in about 40 years. He can, but he won't. He has Down Syndrome. I had planned on starting with an iTouch, but after reading some of your blog, I realize that I should go for the iPad instead.

I have a question for you or anyone. The iPad seems awkward to carry around, expecially for a handicapped person. My guess that the solution is something like a purse with an over-the-shoulder strap. Suggestions appreciated.

Joe,

jmw2311@comcast.net

WC_Dad 5 pts

Hi Shannon,

Your story about Leo and his progress with the iPad is so inspiring!

We live in Walnut Creek, CA and have a non-verbal 13 yo son with autism.

I'd like to find a tutor who lives in the Bay Area that can help our son (and train his parents) on how we can take his iPad/PLQ2Go skills to the next level (e.g. social interactions, commenting, expressing emotions, math, reading, spelling, etc.).

The tutor could be another parent, a workshop group, student, SLP, etc., anyone that can help our son/his parents more fully realize the potential of this amazing device and apps.

We of course, are willing to pay for this service.

Feel free to call me at 925-705-3960. Any information at all would be appreciated. Thank you!

Garett, dad

emilySLP 5 pts

Hi Shannon,

I'm a first year Speech-Language Pathologist, working in the school setting. I came across your article while researching using IPAD as a communication device (and the possibility of using it with some of my students). I really enjoyed your fresh, straight-forward and personal perspective. It is exciting to see this technology evolving and becoming more affordable, accessible, and adaptable!

As an SLP, I'm excited to see such a "popular" technology bringing more awareness to the complex communication needs and ABILITIES of the children in our midst! So incredible to see a child's VOICE grow in leaps and bounds, when provided with the right tool for expressing it!

I hope that Apple's IPAD and the Speech/Communication apps that are rapidly emerging, will not only increase public and professional awareness, but provide greater accessibility to children AND adults with unique communication needs.

Thanks for sharing your story! :)

Shannon Des Roches Rosa 8 pts

So glad to hear about your brother's success - thank you for sharing, and I wish him & your family more future iPad excellence.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

jmlutz1 5 pts

I just wanted to thank you for this post. It is so nice to hear about another child with autism doing so well with the ipad. I somehow convinced my parents to get my younger brother (who is autistic) an ipad for christmas. We've downloaded a few applications for him to use, they all have to be used with one of us helping him due to his severe autism and frequency of broken electronics. He is the type of kid that is always on the move and usually tends to get bored with toys and games, but with the ipad there is so much for him to do that we even got him to sit for an hour today and just play with it. He is fascinated with one app with the song itsy bitsy spider. Thank you again for this amazing story, I wish you the best of luck with everything!

Shannon Des Roches Rosa 8 pts

Thanks for setting up such a useful site. I look forward to your reviews!

-Shan

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

fsistach 5 pts

My five-years old daughter is absolutely happy with HER iPod touch and even more fascinated with MY iPad. Perhaps I should say HER iPad :-) She is very happy with games, painting apps and some other applications, and now I am starting to use some apps specifically designed for children with ASD.

Thanks a lot for sharing your experiences, Shannon. And thanks a lot to all the developers that are working on ways to improve our childern's life.

I have started a blog devoted to iPad/iPhone and autism. Right now it is basically in Spanish, but I have compiled a list of nearly 50 applications (also in English) that I think can be useful. You can see it at http://iautismo.wordpress.com/2010/09/20/applicati...

Shannon Des Roches Rosa 8 pts

Forgot to add: The SF Weekly did a 8/11 cover story on Leo and his iPad, based on this post. Reporter Ashley Harrell and photographer Kelly Nicolaisen did a great job, methinks:

www.sfweekly.com/2010-08-11/news/ihelp-for-autism ( http://www.sfweekly.com/2010-08-11/news/ihelp-for-... )

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

mom2mikey 5 pts

I just bought and iPad thinking to see how beneficial it will be for my son (11 years old with Down syndrome and Autism Spectrum Disorder) as well as some of the students that I teach as I teach in a room for students with multiple, complex needs. I'm excited to read your story as this reflects what I was thinking when I got the iPad :). Way to Leo!

autismhangout 5 pts

Thank you Steve Jobs, thank you wonderfully creative app programmers, thank you Shannon for publicizing how well the combinations work!

I want to tell more people how they too can use the iPad to thrive with autism!

www.autismhangout.com ( http://www.autismhangout.com )

lbrandolo 5 pts

It is awesome to hear how the iPad and all of these apps are helping your family and your son. My husband and I created iCommunicate (as you know) based on my own sons needs for visuals and storyboards. It will always give me a moment of pause when I hear how an idea that came from our experience with him is now helping many other kids so thanks for sharing!
I also want to add that writing about this is going to make alot of people aware of the possible benefits these apps and devices might hold for one of their own kids.
It feels like a grassroots movement right now, some speech therapists, assistive tech specialists, special ed teachers etc may be aware of the potential benefits for kids and they are sharing info. It is nice to see it coming from a parents perspective too.
Hopefully we will see some research on mobile technologies in the near future.
Keep up the great work!

chandu 5 pts

It is same with my 4 year old daughter who is completly non verbal and autistic. We brought ipad for our work related purposes in April. The day we brought it my daughter showed interest in the demonstration done by the sales person in bestbuy. Immediatly after coming home she grabbed it and started tapping and swiping it as a pro. So I went and downloaded some free prekindergarden apps and what we saw was a miracle. She knew a lot of things !! She was aware of house hold names, she knew all the alphabets, she knew few words and some daily living activities. We would ask her something and she would bring it up on the ipad. She was communicating in a strange way.
We would always teach her things and we would never know if she was learning anything at all. Seems like she was !!! This is all on the top of excellent ABA therapy she has been recieving at the local center. I went ahead and down loaded many ABA apps and she now knows a lot of stuff and she has been identifying them out in daily environment. ONly stupid thing I did was down loading movies recently and she is again consumed with watching them rather than laerining from all the ABA programs. We are thinking of removing her movies and get her back on track.
Her speech therapist thinks it had even made a difference in language. Now she has more than few words and she can communicate the things she needs independently, though its difficult at times, Love the ipad!!

Thedomesticgoddess 5 pts

That makes me so excited! My child is non verbal. He knows a few signs but he is starting to do VERY well with PECS and has trialed talkers. I checked out the iPad and thought "this would be cool for him!" Now that I've seen your story and hers, I know it would be AWESOME for him. Now, to get an iPad...

Domestic Engineer, Total Babe and SAHM

Thedomesticgoddess 5 pts

I saw this linked on your site. All I can say is WOW! I bet Apple never dreamed of this becoming a disabilities-accessible item. The possibilities are exciting. Good bye clunky talkers! Hello iPad!

Now, they need to find a way to get a Boardmaker App So I can talk my husband into getting it for my Bugaboo.

Domestic Engineer, Total Babe and SAHM

Nordette Adams 11 pts

You educated me, Shannon, on a use for the iPad I had not considered. (I've already said I want one, but I had some of your concerns about durability that you've addressed.) Your additional links let me know I've been completely unaware of how technology is enriching the world of children with autism. My children are both grown, but I remember the concerns I had about my daughter (and still do at times), who was not autistic but hearing impaired. We want to know our children will be able to cope with life when we're not around and anything that helps them do that is worth the investment.

Thank you.

Nordette Adams ( http://www.bookotopia.com ) is a BlogHer CE ( http://www.blogher.com/haystackprofile/viewprofile... ) & you can find her other stuff through Her 411 ( http://her411.com ).

Shannon Des Roches Rosa 8 pts

My colleague Becky ( http://misspriss.org/ ) pointed me to these wonderful posts about a little girl named Caleigh who is not just having great success using her iPad as an AAC with Proloquo2Go, but exceeding expectations:

http://hollydgray.blogspot.com/2010/06/ipad-proloq...

http://hollydgray.blogspot.com/2010/05/updates-fee...

http://hollydgray.blogspot.com/2010/04/caleighs-co...

Also Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

We just hit the 99.5% mark with potty training, so if you want to talk, let me know. It's been a long path for my son, but ultimately a successful one, and we are very proud of him.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

You are a hero! Thanks for being part of the solution, for being a positive force for our kids, for helping them be more independent.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

How lovely to hear from you! I love reading Carly's tweets, would love to see Leo get on Twitter when he's a teen.

I really hope that school board gets your friend's son that iPad. :)

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

Thanks! I hope your friend's son finds success too.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

Stories2Learn is awesome. I highly recommend it. If you use it, let me know (and no, I have no affiliation with them -- like you, I was just so thrilled that this Social Story app exists.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

...and?

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

Andrea, please do get back to me and let me know how your sons react. I'd love to hear.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 8 pts

Let me know how it goes! We have also resorted to scribbled post-its where needed for the visual schedule, but I'm hoping that once we get First-Then populated with enough icons, we'll be set. :)

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

starkravingmadmommy 5 pts

We're new to the autism world (my 4-year-old son was just diagnosed with Asperger's Syndrome), but I can see how he would love an iPad -- he's very visual. Now I just need a potty-training app.

p.s. Happy Autistic Pride Day!

Margaret Lozano 5 pts

What a wonderful post! My husband was not sure what to think about the iPad when it was first announced. Then he attended a conference on tablet computing and became a convert! They definitely have made a tremendous difference in terms of how information is accessed.

I'm so happy to hear that your son has had this wonderful experience with the iPad. They always say that advanced technology is "indistinguishable from magic," but in the case of your son, the magic is not just in what the device can do, but in how your son is able to interact with it.

My seven month daughter adores my iPhone - I can't wait to see what she's able to do with the iPad. What a wondrous thing, to be living in an age where we can share these devices with our kids!

http://www.theearthlyparadise.com/

kiwijanineb 5 pts

Thank you for your very inspirational blog! I am the developer of the First-Then Visual Schedule..it was so nice to read how it has helped your son.

I am actually a mom to three children and my eight year old boy is non-verbal and "very dedicated" to his Autism :0)

My son Will was my inspiration for creating this schedule and my hope was that some other family may benefit from it too. When I read your post, it made my heart soar! I love hearing how this app. has helped families like yours. I never got into app development for the money (my husband told me I have the worst business plan in iTunes)..my intent was to provide the best apps I could at the lowest price I could. As a parent of a child with Autism, I have first hand experience of the financial toll this disability can take on a family. I don't want any part of that...I want to be part of the solution. So, when I read your blog it reminded me that I am on the right path! So thanks, for sharing and inspiring me today. I appreciate it more than you know!

Best to you on your journey,

Janine
Good Karma Applications
First Then Visual Schedule

tamstarr 5 pts

My daughter Carly (www.carlysvoice.com ( http://www.carlysvoice.com )) LOVES her iPad! My husband has his toy, but for kids like Carly and people with autism and so many other types of disabilities, the iPad is a game changer. Besides everything you have stated, I am excited because I think it will finally show so many doubters that our kids are SMART!!! They will be able to show us what they know on this device in a way that I think was not available to them prior to the iPad.

Thank you for this wonderful story about your son and for all the resource info. I received a an email earlier tonight from a friend trying to convince her school board to provide an iPad for her son and immediately sent this to her as well as to my daughter' entire ABA team.
You are right -this gives her a level of independence that her laptop, netbook and even iPod Touch cannot match in the least.

I will stay tuned and am very grateful for what you have showed the world!

MarketingMama 5 pts

Love this post, especially the video clips. I'm very impressed with how this is helping your son - sooo cool!

Thanks for sharing - I just sent your post to a friend who has a son with autism and just posted to my facebook fan page as well. :)

themarketingmama.com

ssleeper 5 pts

I had no idea there was an app for social stories!! My 7 y.o. (HFA) is quite verbal now but has a lot of difficulty with transitions and responds very well to visual social stories. We have a whole binder of them. I had thought the ipad was really useful for kids who have severe communication delays, so I didn't think we could use it, but now that I know about the social stories...heck, boardmaker costs almost as much as an ipad!! I would love to have a sure-fire calming technique out of the house too. Great post & I'm so glad your guy is getting such benefit from it. Definitely post a list of apps in a future post, if you can.

Andrea Meyers 5 pts

I sent this post to my husband and we are now discussing how to use iPad apps with our two special needs sons, one with Aspergers and the other with ADHD and dyspraxia.

~Andrea Meyers
www.andreasrecipes.com ( http://www.andreasrecipes.com )

Q 5 pts

Shannon,
Thanks so much for sharing your trials and tribulations, and letting us know what works. I have checked out several of the apps you mentioned, even though I'm "just" using an iPod Touch. I have two auti sons and for the younger one, I usually make a picto-calendar (visual calendar) for months in which a lot (out of the ordinary) is going on, and especially for vacation weeks. I just purchased First-Then to try that out on the go. I also forwarded your article to a friend of mine with an autistic son as well. Thanks again!

Melissa Ford 42 pts

You've gotten the wheels turning in our head. Josh and I have now been discussing the iPad for the last 19 minutes and debating this out after reading this post.

Amazing job!

Melissa writes Stirrup Queens ( http://stirrup-queens.com ) and Lost and Found ( http://lostandfoundandconnectionsabound.blogspot.c... ). Her book is Navigating the Land of If ( http://thelandofif.blogspot.com/ ).

MobileMomo 5 pts

This is such an amazing story!

My goddaughter has special needs and I know what a miracle it is when she discovers something, be it a book, movie, or toy, that captures and keeps her attention. It's an even greater accomplishment when she gets to learn something new at the same time. I am definitely going to pass this along to her parents and the other special needs families that they know.

Thank you for sharing your story!!

Shannon Des Roches Rosa 8 pts

Very much enjoying the feedback. Thanks, all.

Along the line of Denise's comment -- it's implicit but I should state outright -- the cost of an iPad is often a fraction of what dedicated AAC devices cost. So, with the iPad, we can get AAC apps into the hands of kids who need them with fewer barriers than ever before. I would be behind a program to help donate them, we could feature it at The Thinking Person's Guide to Autism (http://thinkingautismguide.blogspot.com). Who wants to sponsor it? :)

Another way in which the iPad suits our family better: I lose the iPod touch about 3x/day, even though it has a fluorescent turquoise cover. I am looking for it as I type.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Kim Pearson 8 pts

Thanks for sharing this. I will share this story with my friends who have autistic children, as well as folks in special ed. Definitely sounds like an avenue for research.

Kim Pearson
BlogHer Contributing Editor ( http://blogher.org/blog/kim-pearson )|KimPearson.net ( http://kimpearson.net )|

meganaiemma 5 pts

Thanks for sharing your story with the links..I have a friend who is a developer (look for DevelopEase) who is developing apps for kids with disabilities...
I am a teacher in Australia and specialise in mobile learning, so it is good to pass these things on...
Look forward to watching more of Leo's adventures with his iPad.
Megan

mcwhclan 5 pts

I work with in a preschool that supports kids with an ASD diagnosis. This is amazing and filled with unique ideas. I really like the idea of social stories on the ipad. So cool! Thanks for sharing.

blogging about life stuff at http://mcwhclan.wordpress.com

foodiemama 5 pts

I'm so happy for your son, and this is such an amazing discovery! I agree with the other posters - it would be awesome if they could be donated to kids with autism!

www.quinoaandcornchips.blogspot.com ( http://www.quinoaandcornchips.blogspot.com )

Sharon Soliday 5 pts

Thank you for sharing this excellent post. The video examples and links are much appreciated. We are a group of specialists (speech pathologists, occupational therapists, and school psychologists) that service children with disabilities throughout the Northwest. We are sharing your excellent post on our website to share the good word about the iPad and your suggested links. Be assured, your efforts will ripple through the lives of thousands.

Finally, our company sends teams of specialists internationally to help staff and families support children with disabilities. Next June (2011) we are headed to Mostar, Bosnia, to support families of children with autism. http://www.thehellofoundation.com/Philanthropy/201... ( http://www.thehellofoundation.com/Philanthropy/201... )
Currently, there are no school options for children with autism for these families. The government and the University of Tuzla is committed to change for these children. We hope our participation can empower parents to support change. After all, Moms change the world. Now I want to take a dozen iPads in tow! To follow our adventure:

http://bosnia2011.wordpress.com/

Meanwhile, best of luck to Leo and his family! We are so proud of you all!

Warmly,
Sharon Soliday
The Hello Foundation
www.thehellofoundation.com ( http://www.thehellofoundation.com )

Karianna 7 pts

What a great discovery. :)

I definitely noticed an increase in "off screen" social behavior after my son became more interested in online social interactions (things like Club Penguin, Facebook, etc.) It is amazing how these tools can be terrific at modeling, and are definitely an alternative way of communicating. As a bonus, these devices are popular "cool" products!

Glad the iPad has been so successful with Leo. Hooray for visual-based communication!

-K

www.kariannaspectrum.com ( http://www.kariannaspectrum.com )

Elana Centor 5 pts

The happy kind. It is absolutely beautiful to watch. I've sent a link to my niece who works for an autism organization - hopefully someone will jump on Denise's idea of donating iPads to children with communication difficulties. Mostly, I'm just happy for your entire family. What a gift.

Elana

BlogHer Contributing Editor: Business & Career

FunnyBusiness ( http://funnybusiness.typepad.com/funnybusiness )

kimt205 8 pts

Proloquo2go is a great app! There are so many people that are using it, it has turned out to be a wonderful communication device!

Denise 529 pts moderator

This story makes me so freaking happy. I cannot even tell you how happy.

I wonder if there are organizations where we could donate iPads, or donate money to buy iPads for kids with communication difficulties? (I haven't clicked your links yet, that's next on my list. But I'd donate one if there was an organization that was working on this.)

~Denise
BlogHer Community Manager
Life. Flow. Fluctuate.

planetjoshmom 5 pts

Leo and Josh are alike in many ways, I'd never seen video of him before. Though I know Leo is higher functioning, reading this and seeing him in action have turned me in to a believer and I think I have to get one for Josh! May be pestering you for a list of apps, but this has given me a superb place to start, thanks as always, Shannon :)

Sarah

http://planetjosh.squarespace.com

Conversation from Twitter

shannonrosa
shannonrosa

elleinthecity Thanks! My iPads & #autism resource page is here, including apps spreadsheet: http://t.co/Auew7hVs