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I'm the BlogHer Contributing Editor on parenting children with special needs, and I'm at your service.  I am more than a parent, but with three...
 
 
 
 

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When the Best Place for Children Is Not With Their Mother

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I can't stop thinking about the story of Anita Tedaldi, who, after eighteen months of mothering an adopted special needs son, decided that the best place for her son was with another family. Anita's story hits me in two of my tenderest spots -- as the mother of a son with special needs, and as a birth mother who placed her first son in his adoptive parents' hands almost twenty years ago.

It would be easy for me to condemn Anita based on her story's two pages of pixelated type. I would be several shades beyond horrified if my biological son's mother had given him to another family after she took a sacred and legal oath to be his parent. And how about women who parent adoptive children through special needs challenges much more intense than Anita's brief account makes her son's seem, and are still holding on? It is tempting to shriek about bad examples and demand to know why she didn't try harder!

So, I could judge Anita, that other mother inside the computer -- I've got the sanctimonious positions, and I've got the ammunition. But I won't. It's unfair. I do wish she'd been able to choose differently, but I also understand that not every one is cut out to parent a special needs child, even if they think they are, even if they've done all the adoptive parents' training and received their social workers' blessings.

I also have to wonder: was Anita's concession entirely her own doing, or could it have been prevented if she'd been given enough support and information to properly parent her son? She emphasized that her struggles were not with her son's special needs but with his attachment issues, but I'd be surprised if those two issues were separate in such a young child.

She didn't elaborate on his special needs, other than delays and coprophagia; she mentioned that when she told him he would be going to live with another family, he "didn't react to her words," but supplied few other details about his symptoms. She mentions attachment therapy, but nothing else, no speech, occupation, feeding, or behavioral therapies. If she was truly his full-time caregiver, if she had little professional therapeutic support for his needs, if she didn't even have diagnoses, then how was she supposed to feel like a capable mother to him? How much more pressure was she under from her five other children, while being a de facto single mom during her military spouse's frequent deployments?

I don't know where Anita lives, but I do know that special needs diagnoses, services, therapies, and supports are spotty in many parts of this fine country of ours, especially for special needs children of very young age and/or indeterminate diagnosis. Pediatricians may mean well, but unless they are specialists are not always aware of the resources or even diagnoses their patients need. The online and social media support networks that have transformed my special needs parenting perspectives for the better, that have dragged my sobbing, wrecked, defeated self back to competence and optimism so many times, aren't always on social services agencies' or pediatricians' radars. Parents often stumble upon social support networks on their own, and they don't always do so within eighteen months -- which is all the time Anita and her son had together.

Choosing to parent special needs kids isn't something we're all capable of, even if we are fully informed and supported. Some parents aren't cut out for it but try to struggle through anyhow, becoming disengaged, neglectful, abusive, or worse. While we need to keep encouraging each other to carry on, be our best, love our children, and rally through, we also need to be aware of situations in which parents have reached the breaking point -- and do what we can to protect their children, even if this means supporting decisions for those children to be placed elsewhere.

It hurts, but it's true. Sometimes the best place for a child is not with their parents -- or even with another set of parents. My friend Rachel recently moved her son with autism into a residential home, because he needed a more structured environment than his parents could provide. It was the right decision. He's doing better all the time. But how many of you reading this paragraph are thinking, "I could NEVER put my child in a home"? And how many of you are thinking that not because it's how you

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Pickel 5 pts

Well written. I is so difficult because unless we are in her shoes we don't know exactly what the situation is. Parently an adopted special needs child is it's own "type" of parenting. You have to give up on traditional parenting and give in to your entire being. You have to go against what society tells you to do and go with your gut because there really are no answers. You are parenting both an adopted child and a special needs child and you have TWO strikes against you....meaning it is twice as hard to parent this child you so badly want to love and bond with.

For a child who is adopted and has special needs it is even more difficult because they are grieving, most likely have trauma, and are, in most cases, learning a new language.

Combine all of those things and you have one hell of a mess.

It's why I don't judge anything anymore.

http://growninmyheart.com

CharmingDriver 5 pts

Thank you so much for writing this Shannon. It is easy to forget there is likely far more to the story than the media can accomodate or in this case than the first adoptive mother wanted to share; she seems fairly rigid in guarding the child's right to privacy and discussing only what she can truly speak to which are her issues, not his.

I agree that surrendering a child that has already been surrendered or rather abandoned as was the case with this child is one of those topics that elicits visceral, self-reflecting reactions (ie How could she?!! I would NEVER!!!). But I also know in my heart to judge that mom is to judge every other parent who has, for whatever reason, surrendered a child. It is never an easy decision or one made lightly and again, rarely do we on the outside know the whole story. And it is almost never our right to second guess what is done in the name of giving a child a better shot at a good life.

Shannon Des Roches Rosa 5 pts

I had to take fetal-position-curling-up breaks many times while writing this post. But I am grateful to those who found it of merit, and humbled that @mnicolem ( http://twitter.com/mnicolem ) found it to be of use.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

mnicolem 5 pts

I teach elementary school aged students with severe autism, and last week I had a parent come to me distraught because she was struggling with the decision of whether or not to put her son in a residential facility. I, in turn, am struggling with what advice to give her!! When I stop to consider the extent of the student's aggression coupled with his size and the fact that she is a single mom with 3 other children to take care of, as much as it breaks my heart to lose this amazing student, part of me thinks it might be the best thing for the child, his mother and his brothers.  Until reading your post, I felt guilty for thinking that but couldn't pinpoint why.  Now I realize where that guilt was coming from and can let go of (most of) it.  I hope his mom can do the same!

kristenspina 5 pts

It's so complex, isn't it? Thank you Shannon for another thoughtful post.

autismvox 5 pts

I started reading this post with trepidation and ended up tearing up......thank you so much for your kind, warm, powerful words, Shannon. Just today as I was driving Charlie home while listening to the same CD for the 6th time in one day all I could think about was how there's nothing else I'd rather be doing at this moment.

thank you from Kristina

still soapvoxing, now @ ( http://twitter.com/ ) kristinachew.com

aspergers2mom 5 pts

Elise http://asd2mom.spaces.live.com

You put an interesting spin on such an emotional topic.  Thank you for your perspective and  bringing to light the lack of proper supports for the disabled and their families in a large part of this country. You have a unique heart.

I did want to add one thing: I have a dear friend who just put her teenage(16) son into a residential placement. He is severely physically handicapped and classically autistic. It took years of mental anguish on her part to do this. But finally she decided that it was the best thing for him and for her other two NT children. She visits him regularly and maintains a good relationship with the school staff. She tells me that her son is happy and thriving. I  know there is still a huge part of her that feels that she failed in some way as his parent. But I try to remind her that sometimes we are at our best as parents when we acknowledge that we need help and that it is a sign of strength to know what are our limits. By placing him at this residential placement it also did not mean that she has given up her  responsibility to him. She will always be there if he needs her and will always stay on top of what ever issues he has and will always review any and all supports that he will need for the rest of his life. Of course it is easy for me to chime in, for I have never been in that situation, and do not think that I ever will. I can only lend the support of an outsider, but one who truely cares and hopes that my friend and others like her find peace with their decisions and hope that they understand that they have done the best that they could considering the choices that life has presented for them and their children.

micrimas 5 pts

Basically I now bear a huge emotional responsibility towards my sister, upon the death of my mother.  She was thrown to the wolves after mom died.

Unless you walk in the shoes of someone like me, who defended my sister from being taunted and treated marginally in school, who helped her do volunteer work just to get out of the house, so few people wanted to be friends with her, she lived for the TV and nothing more... for my other sister who worked diligently to get her in therapeutic riding when she was younger.  I tried to get her involved in programs where college kids befriended handicapped adults, to no avail since there were so few students interested in befriending her.

She was and is so hungry for friends, you cannot imagine.  She would go to stores just to try and befriend the cashiers since they could not leave the cash register.  It is so sad to watch her struggle in this world.

It takes a special person/parent to advocate for the handicapped and mentally challenged.  There are so very little services out there.  Siblings and relatives bear a huge emotional burden when the primary caregiver gets ill or dies.  People need to think of the long term ramifications of truly, what is in the best interest of the child. 

My children are not mine biologically, but they are my husband's.  We were blessed with children not through adoption but by traditional surrogacy, which the surrogate carries the child and also, her eggs are used vs. that of an egg donor.  In a sense, it is like adoption yet my husband is biologically related.  No, we did not have to do a step-parent or any other type of adoption for me to be on the birth certificate.  However, I will and do struggle all the time with worrying about issues regarding their identity down the road... whether they will be hurt by the way they were brought into this world.

As a matter of fact, when I read LainaD's last post, it rocked my world in a sense.  Every time I am confronted with a conflicted adoptee, I worry so for my children.  I will do the best I can, just as I do the best I can for my sister, who feels so alone and so fearful of being alone and with no one to help her if I should die (I am a renal cell cancer survivor, so her fears are valid enough) or move away (quite likely at some point due to my DH's career).  And then, if and when we do move, it will be really hard for me to deal... though we are lucky that our area has excellent services for adult handicapped/mentally handicapped individuals.

It still doesn't take away the worry.  The worry and emotional burden that was placed on me, by my mother, when my twin sister and I were 8 years old.  We constantly heard from her "you are responsible for your sister if I die".  And we are.  She left her entire estate not to my sister, but to my stepfather.  Who immediately remarried and basically, well, let's just say, I don't think her best interests are his first priority now that he has a "new family".

Half of a Duo, Raising a Duo

http://micrimas.blogspot.com

Lisa Stone 6 pts

I'm learning so much from blogs such as yours and Melissa's ( http://www.blogher.com/anita-tedaldis-story-and-wr... ) and LainaD ( http://www.blogher.com/voice-adoptees )'s.

Lisa Stone

BlogHer Co-founder ( http://www.blogher.com/member/lisa-stone ) ( http://surfette.typepad.com )

Surfette ( http://surfette.typepad.com )

BlogHer is non-partisan but our bloggers aren't! Follow our coverage of Politics & News ( http://www.blogher.com/topic/politics-news ).

urbanadventurer 5 pts

Thank you for your sensitivity and willingness to look at her perspective in this post.  I imagine that the issues that her child is dealing with are overwhelming and run very deep.  Children that are adopted, particularly at an older age often struggle with attachment issues and the therapy and attention needed to help mend these wounds is extensive and exhaustive. 

Basically, she is trying to teach her child to trust people and how to build relationships with caregivers.  If he wasn't given this foundation as an infant, or it was bruised due to several different placements happening in his life, then it can be very difficult to re-build.

My sadness comes when I think of how this new placement for him will damage any potential progress he'd made with her...

Holly (aka the Urbanadventurer)

http://urbanadventurertales.wordpress.com

aftercancer 5 pts

This piece was written so thoughtfully and with such compassion.

You are right that services for special needs children are spotty and I fear that the current economy is going to make them even worse. Anita's admission took more courage than I think I have.

It is very easy for those who don't know better to say things that they would never do, but unfortunately until you are truly challenged you don't know what you would do. Some children need a residential placement for reasons that those on the outside looking in can never understand. Other families want desperately to keep their children at home but the support is just not available.

If you are lucky enough to read a story like Anita's and you can't even imagine how she could make such a decision then take a moment and count your blessings before pointing out her flaws.

Kate

I blog at http://www.aftercancernowwhat.com