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LeAnn Rimes Interview: Her Courageous Battle With Psoriasis

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So...A few weeks ago I was asked if I would like to interview LeAnn Rimes about her struggles with psoriasis and her awareness campaign Stop Hiding & Start Living.  I think it's a great campaign and I was happy to help bring more awareness to this physically and emotionally debilitating skin condition. **Psoriasis is a chronic autoimmune disease that is NOT contagious.

As women we so often feel bad about ourselves because of the way we look.  We might be having a bad hair day, or have a bit of acne on our face, or feel like we could stand to lose a few more pounds...It's really a vicious cycle and sometimes even a pit of despair that we never seem to quite be able to climb out of. I think that's why stories like the one LeAnn Rimes will share with us in this interview are so empowering. 

The American Academy of Dermatology and the National Psoriasis Foundation have joined together to form the Stop Hiding from Psoriasis public education campaign. This campaign is dedicated to:

  • Educating the general public about how this chronic immune disorder affects nearly 7 million Americans.
  • Motivating patients suffering from psoriasis to Stop Hiding and
    Start Living.
  • Encouraging patients to see a dermatologist and discuss appropriate ways to manage
    their disease.

LeAnn Rimes stands up to psoriasis...

The spotlight has followed singer LeAnn Rimes for most of her life. Unfortunately, so has the embarrassment of her psoriasis. But not anymore. LeAnn is taking a stand to Stop Hiding from her psoriasis and wants you to Stop Hiding and Start Living too.

Earlier this week I spoke with LeAnn...

me1 How difficult was it growing up with psoriasis and at such a young age?

82543072SG004_LEANN_RIMES_S Well yes, I was diagnosed when I was two, so I pretty much don’t know anything other than having it...by the time I was six I was 80% covered, everything but my hands, feet and face. It was very debilitating physically and mentally. Even as a child having people really not understanding what the disease is and thinking it was contagious and trying to stay away from me. My parents really did a good job of covering it up, especially my mom, [with] the way she dressed me. And it was hard, it was hard being in the public eye.  'Til the time I was 13 I wasn't really able to wear dresses (short dresses) on the red carpet, or shorts in the middle of the summer…I would always wear jeans. It was really tough; it took a toll on my self esteem for a long time.

me1 Did other children tease you when you were a child?

82543072SG004_LEANN_RIMES_S Yes, I would sometimes miss out on pool parties and things because I would never want to be around other girls with my bathing suite on – because they really didn’t understand what it was.

me1 Was this before there were effective treatments?

82543072SG004_LEANN_RIMES_S There were effective treatments, but not as many as there are now. When I was six and I was really badly covered, I did a treatment where they literally take coal tar and wrap you in saran wrap for six hours, for two in a half weeks, five days a week. You sit there, and it’s just the most excruciating thing I think I’ve ever been through – but it works for like two and a half months, and then it comes right back.

me1 Are some of the treatments worth the trouble of side effects?

82543072SG004_LEANN_RIMES_S If I wasn’t on the medicine that I am on now (which has kept me clear for the last five years), I would be completely covered.

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Christian Hope 5 pts

Hello to you Leanne, I have just been diagnosed with a very rare skin disorder that is hereditary by a missing gene linked to my mother. it acts a lot like your
disease but is very very rare.
it is called Kertosis Follicularis I have just had a biopsy to confirm 29 years of pure agony and misdiagnoses
I am 47 and now have to tell my son I may have passed this gene on to him
I am just thankful to get a resolution to this life long agony i have had to live with Like you there is no cure but I can try and learn to maintain my disease.
Thank you for bringing this type of situation to the public's attention and yes you are right, people stare and just really dont understand that they cannot contract these diseases from others Thanks again for your support in this matter,
Christian Hope

Catherine Morgan 5 pts

Hey Lisa.  I just checked the site and you are right, there doesn't seem to be a way to purchase the t-shirt.  I emailed my contact there, but she is out of the office until Monday.  If they aren't selling it now, it certainly seems like it would be a good idea to start selling them.  Anyway, once I hear back on this, I will post a follow-up comment.

Contributing Editor Catherine Morgan
at Catherine-Morgan.com ( http://catherine-morgan.com/ ) and Women4Hope ( http://women4hope.wordpress.com/ )

Lisa Stone 6 pts

Say Catherine, I've been all over their site now and cannot find the t-shirt LeAnn's wearing. Don't they sell it?

Lisa Stone
BlogHer Co-founder ( http://www.blogher.com/member/lisa-stone )
Surfette ( http://surfette.typepad.com )

BlogHer is non-partisan but our bloggers aren't! Follow our coverage of Politics & News ( http://www.blogher.com/topic/politics-news ).

Denise 9 pts moderator

http://www.publicity.org/trumpet2009silver.htm

Stop Hiding from Psoriasis
Edelman on behalf of Abbott

~Denise
BlogHer Community Manager

Flamingo House Happenings ( http://www.flamingohouse.net/ )

Lisa Stone 6 pts

Catherine, what a compelling interview. Thank you!

While I have nothing against ribbon campaigns, I've been waiting for a long time to see some new metaphors for the issues people care about.

My inner media strategist has to come out and talk about Stophiding.org and its campaign (see YouTube video embedded). The pink camo t-shirts are a brilliant metaphor. Love how the directors use the pink camo to show how this disease can come and go for an individual sufferer, and likely affects so many more people than one realizes. Love LeAnn Rimes, who strides through life, despite the disease, looking empowered and -- because it matters here -- lovely. Who created this campaign, do we know?

Lisa Stone
BlogHer Co-founder ( http://www.blogher.com/member/lisa-stone )
Surfette ( http://surfette.typepad.com )

BlogHer is non-partisan but our bloggers aren't! Follow our coverage of Politics & News ( http://www.blogher.com/topic/politics-news ).

Catherine Morgan 5 pts

Hi Wilma.  Thanks for your comment, I totally agree with you.  We need to leave judgment out of it, and be more understanding towards each other. 

Contributing Editor Catherine Morgan
at Catherine-Morgan.com ( http://catherine-morgan.com/ ) and Women4Hope ( http://women4hope.wordpress.com/ )

Wilma Ham 5 pts

Coming out is courageous and very helpful. Because the problem of course is that people notice but then what do they do with what they notice.
Little children do know what to do, they just say out loud with innocent perception what they see. There is yet no malice, no judgment in their shared observation and thus they learn about what they see. If they are NOT told to shut up and do receive an explanation that is.
As an adult I have it a lot harder, to make sense of things I notice, because how do you share what you notice and then make sense of what you notice.
Therefor if we as adults learn to leave judgment out and give the person a chance to explain then we all know where to stand and what we can do to support the person with a difference.
However as differences are mostly NOT embraced in our adult world, the person with the difference hides it and nobody gets any the wiser, hence chicken and egg issue.

I always love it when people are courageous to make a stand and inform us.
At least it helps me to make sense of what I observe and they no longer need to hide.

Wilma Ham

www.wilmasblog.com ( http://www.wilmasblog.com/ )

Frances Ellen 5 pts

I have psoriasis in my ears and on my scalp. Without the correct trreatment, my ears slough out dry skin out onto the surface of my ears and behind the ears. It appears I haven't cleaned my ears in a century. Thankfully, I finally went to the dermatologist and got the proper treatment for both my ears and my scalp. I didn't even know I had it in my scalp. I thought it was a bad case of dandruff--really bad!

Frances Ellen is the Narrator of the Story of Nadia ( http://storyofnadia.wordpress.com/ ) - The continuing fiction story of a card reader named Nadia. She is also the voice at francesellenspeaks.com ( http://francesellenspeaks.com/ )

Elisa Camahort 5 pts

Fascinating interview, Catherine, I had no idea Lee Ann Rimes suffered from this, and really knew very little about psoriasis at all, except for that well-worn phrase "the heartbreak of psoriasis".

Thanks.

Elisa Camahort Page
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elisa@blogher.com

My BlogHer profile ( http://www.blogher.com/haystackprofile/viewprofile... ) truly shows you everything I do online...Check it out!!