
I was surfing the BlogHer Health and Wellness Blogroll, looking for something to write about tonight, and I came across a new blog on living with autoimmune disease. As you might already know, I live with Chronic Fatigue Syndrome, and other chronic health problems...So, I decided to do tonight's post, on living with chronic illness.
The new blog I discovered on the BlogHer Blogroll is - Life in the Autoimmune Lane
My name is Michelle and I decided to start a blog about my illness and my life. I became sick about 2 years ago and at that time I didn’t know what was happening to me. 2 doctors, 3 neurologists, and 1 rheumatologist later I now know that I have a couple of autoimmune diseases; still working on a definite diagnosis… So far I have Mixed Connective Tissue Disease, Dermatomyositis, and most recently what they think is the early stages of Rheumatoid Arthritis.
Another new blog to me - The ICI Experience
On The ICIE I blog about all kinds aspects of my experience of living with invisible, or concealed chronic illness (ICI or CCI). I'm finding blogging about it all to be very rewarding, very therapeutic, and I hope what I write about may help others in similar situations.
Dianna blogs about her journey of living with MS
I am a retired woman with oodles of interests. I have Multiple Sclerosis and work hard at learning, sharing and trying to stay empowered and empower others.
I've always loved the blog Fighting Fatigue, and it just happens there is a post on 104 Great Resources for CFS, Fibromyagia, & Interstitial Cystitis...
Check out these 104 great resources I pulled together that will help you with every aspect of CFS, Fibromyalgia and Interstitial Cystitis. Please leave me a comment and let me know if you found this useful! From articles, to quizzes, to videos, to support group listings, I’ve got these illnesses covered!
Here are the first 4 of 104...
1. Foods to Fight Fatigue. Exhaustion can be a constant problem for some people. Beat fatigue with five energy boosters and power up for a healthier you!
2. Massage Benefits & Massage Therapy. Massage is the systematic placing of the hands on a body and applying techniques to treat the body and the person to relieve ailments and stress.
3. Take A Break To Achieve Better Success At Work. Too much thought and too many hours invested in only one place lead to stress and fatigue.
4. Fatigue Fighting Tips. People who are fatigued feel chronically tired in both body and mind. Low energy levels can be caused by a number of factors working in combination, such as unhealthy lifestyle choices, workplace problems and stress.
Over at Keep Working Girlfriend, I found a great post by Sandy Lahmann, a women living, working, and writing about chronic illness and disabilities.
I am going to combine my ability to write with my knowledge of disabilities and create a business as a freelance writer specializing in disability topics and also offering myself as a disability consultant. With having a disability myself and having a college degree in special education, I believe I’m qualified. And I surely can write. And the money is in nonfiction. And all of this can be done at home on my computer and with my telephone.
Here’s how I’ve started. After having the umteenth million incident in which I’m out in my community and an able-bodied person does something that again shows that they just don’t get it, I called my friend, Anne, to complain. But then it dawned on me, we complain to each other, but who is educating the able-bodied? Then I realized, I could do that.
I had in mind a column. I started by submitting my first column as a letter-to-the-editor to my local newspaper, the Summit Daily. Right off, with the first one, they offered me the column. So I now have a column in my local paper called Disability 101.
Also at Keep Working Girlfriend...
Living with a chronic illness requires that you continually examine your priorities. Career or health? Hide and seek with children or health? Partying or health? Social life or health? Favorite foods or health? Movie or bed? Important business deadline or health?
In a new and revised edition of Think and Grow Rich, revised and updated for the 21st Century by Dr. Arthur R. Pell, there’s an entire chapter devoted to the 6 basic human fears. It looks like those of us living with a chronic illness get to tackle 3 of them head on: fear of illness, fear of criticism and fear of poverty. That’s 1/2 of the total sum of the basic fears for human beings! (The other 3 are fear of death, fear of old age and fear of loss of love of someone. Perhaps we really get to look at all 6.)
Truthfully, every human being faces each of these 6 fears at one time or another, so we’re not really special. However, when you live with a chronic illness, you certainly get a crash course dealing with the first three I named.
Also See:
Videos on CFS/Fibromyagia/Chronic Illness
Contributing Editor Catherine Morgan
CatherineBlogs, The Political Voices of Women, Care2 Election Blog
Comments
I suffer from severe asthma
I suffer from severe asthma and rheumatoid arthritis. I don't really know what it's like to live without pain or have long stretches without breathing problems. I was shocked a few years back to discover that people who suffer from auto immune diseases are more likely to end up with a second one as we get older. And I never would have thought of asthma as an auto immune disease until my pulmonary specialist explained it to me.
It's hard to have a chronic illness that others can't really see. My co-workers just think I'm being rude when the woman wearing too much bad perfume comes in, and I start coughing and choking.
Keep your chin up! It's good to know you're not alone out here!
Winter
“I was naughty. I wasn't bad. Bad is hurting people, doing evil. Naughty is not hurting anyone. Naughty is being amusing.” - Sydney Biddle Barrows
When you don't LOOK sick.
Hi Winter. Thanks for your comment.
I totally know what you mean about people not being able to "see" your illness...In some ways it's nice that we can get through the day without everyone we interact with knowing that we aren't like them (healthy)...but then it's also frustrating when others can be so judgmental.
Contributing Editor Catherine Morgan
CatherineBlogs, The Political Voices of Women, Care2 Election Blog
Here is a timely blog idea.
Catherine, I like your approach. I recently came across a story that disturbed me on infant toxicity in babies using baby cosmetics. Seems you have a following, so what you write will likely be looked at. I will give you a contact for an expert on the topic, as well as another story written which I think does not go deep enough.
Contact: Dr Bruce Hoffman - (403) 206-2333, www.hoffmancentre.com
Give him a call and perhaps you can put together a blog that enlightens mothers on how to avoid inadvertantly toxifying their children.
STORY: Study finds high levels of chemicals in infants using baby cosmetics
Babies exposed to lotion, shampoo and powder had more than four times the level of phthalates in their urine as those whose parents had not used the products. Previous research found that the substances altered the children's hormones.
Los Angeles Times, February 4, 2008
Infants and toddlers exposed to baby lotions, shampoos and powders carry high concentrations of hormone-altering chemicals in their bodies that might have reproductive effects, according to a new scientific study of babies born in Los Angeles and two other U.S. cities.
The research, to be published today in the medical journal Pediatrics, found that as the use of baby care products rose, so did the concentration of phthalates, which are used in many fragrances.
The lead scientist in the study, Dr. Sheela Sathyanarayana of the University of Washington's Department of Pediatrics, said the findings suggested that many baby care products contain a variety of phthalates that enter children's bodies through their skin.
Manufacturers do not list phthalates as ingredients on labels, so it is unknown which products contain them.
The researchers at the University of Washington and the University of Rochester stressed that the potential effects on babies were uncertain.
But previous animal and human research suggests that early exposure to some phthalates could reduce testosterone and alter reproductive organs, particularly in males.
The three phthalate compounds found in the highest concentrations in babies in the study were linked to reduced testosterone in a 2006 study of newborns in Denmark.
Some scientists theorize such changes in hormones could lead to fertility problems and male reproductive disorders.
Representatives of the fragrance and cosmetics industries said they were surprised by the findings and questioned their validity. They said only one phthalate compound is used in baby products, and it is found in such low levels that they doubt it could explain high concentrations found in the babies.
In the study, doctors tested the urine of 163 children between the ages of 2 months and 28 months born in Los Angeles, Minneapolis and Columbia, Mo., between 2000 and 2005. All had detectable amounts of at least one type of phthalate, and more than 80% had seven or more types.
"Phthalate exposure is widespread and variable in infants. We found that mothers' reported use of infant lotion, infant powder and shampoo was significantly associated with . . . urinary concentrations," the scientists wrote in the new study.
In the study, babies exposed to baby lotion, shampoo and powder had more than four times the level of phthalates in their urine than babies whose parents had not used the products. The highest levels were reported in babies under 8 months old, and those exposed to lotions.
Previous studies have focused on a different route of exposure for children:
sucking on soft, vinyl toys. Phthalates, in addition to helping cosmetics retain fragrance and color, are used as plasticizers in some vinyl. A recently passed California law will ban six types in children's toys and feeding products, beginning next year. But no federal or state law in the United States prohibits their use in personal care products or cosmetics.
The study is the first to report that skin transfer may be a main route of exposure for babies.
In their report, the scientists advised parents who want to reduce their baby's exposure to stop using lotions and powders unless their doctors recommend them for medical reasons. They also suggested limiting use of shampoos and other products. Many adult lotions and other personal care products also contain phthalates.
John Bailey, chief scientist for the Personal Care Products Council, an industry trade group, said diethyl phthalate, or DEP, is used in the fragrances of some baby lotions and other baby products.
But DEP is used at "very low levels, in the part-per-million range, below what could possibly account for the levels they are finding" in the babies'
urine, Bailey said. "All of the other phthalates, if they're present, have to be coming from someplace else," such as plastics or other products, he said.
Bailey said he couldn't explain why the researchers found such high concentrations in the babies that used lotions and the other products.
But he said the scientists shouldn't have advised parents to stop using them because they did not test any products and cannot prove they were the source.
"The results that are being presented and the conclusions being made don't make a great deal of scientific sense," Bailey said. "There's a lot that makes you question whether their findings are valid."
Europe has banned some phthalates in baby toys and cosmetics, but not the DEP found in fragrances.
More than half the mothers in the new study reported using baby shampoos on their infants within 24 hours of the urine tests, and about one-third had used lotion, and 14% used powder within the same time period.
No link was found to baby wipes or to diaper creams.
The highest concentrations in the babies were for a phthalate known as MEP, which comes from DEP, the compound used in fragrances. One baby had an extremely high level of MEP -- 4.4 parts per million.
Cheers,
PF
Re: Hoffman
He also has a seminar series coming up in early March (1st to 2nd) on total wellness. Dr John Demartini from the Secret will be speaking there as well. Considering he is like the Dr Oz of Canada, thought it worth mentioning as non-quacks can be hard to come by in the field of wellness. He's the real deal.
PF
Macrobiotics
I'm super curious about the role diet plays in health and specifically chronic conditions. Jessica Porter is a macrobiotic authority who really made me think it's possible to change things around. Would love to hear more about other people's experiences. In my own life, a whole foods plant-based diet has alleviated anxiety issues, but I have no firsthand proof of other chronic illness!
Michelle
http://doesabodygood.blogspot.com