Lullabies for Getty: Beautiful Music, Beautiful Girl
By Morgan Shanahan on April 05, 2011
BlogHer Original Post
The internet is magic.
A few months ago, Stacey -- a reader of my personal blog -- got in touch with me about Kate and Mark Storm, close friends of hers whose sweet baby Getty had been diagnosed with SMA1; the number one genetic killer of infants under the age of two. My daughter Delilah is only a few months older than Getty and as I read Stacey's email I was reeling. How unfair. The devastation of such a diagnosis felt tangible to me.
In the weeks that followed, I couldn't stop thinking about about Getty, Kate and Mark. When I discovered that Stacey was [completely coincidentally] a fan of The Damnwells, a band whose members include two of my best friends Alex and Angela Dezen, sparks started flying, and soon, Sweet Water Child: Lullabies for Getty was born.
Sweet Water Child is a beautiful album of lullabies my dear friends wrote and performed, the proceeds of which will go entirely to The Getty Owl Foundation, a newly established non-profit which Kate and Mark set up in their daughter's honor.
Last week, Getty Storm turned ONE. A huge and exciting milestone proving she can fight like every bit the femme fatale her name suggests. We wanted to give her this very special album of Lullabies both to commemorate the occasion, and help her brave and determined parents work to ensure that other families won't be faced with that dark and devastating diagnosis. And a cure is so close.
So please, listen, fall in love with the music, and the girl who inspired it. And if you're able, buy a copy of Sweet Water Child: Lullabies for Getty . If you're not able to purchase the album today, consider telling a friend about SMA1 and the havoc it wreaks. Like the album on Facebook and ask that your friends do the same. Follow @lulbiesforgetty on twitter, send a tweet, and encourage people to check out www.lullabiesforgetty.com.
Please, spread the word about Getty and those fighting alongside her, and help us knock out SMA1 for good. And also listen to the album, because it's beautiful.
Morgan (The818) is a blogger and screenwriter living in Los Angeles. She overshares her personal life - complete with curse words - at The818.com, talks art and design over at Cargoh.com, and tweets: @the818.