I knew because I have Marfan syndrome too. I knew that any children I had would have a 50% chance of inheriting the disorder. My husband and I went back and forth on having children, weighed the pros and cons. Would it be selfish? I wondered that sometimes. But I also believe that motherhood, however you come by it, is one of the most selfLESS things a woman can do, so maybe wanting to be pregnant wasn’t so bad. Read more >
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My life as a mother to two boys with special needs, while having Marfan syndrome myself











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