Niksmom

n/a

How I Took My Autistic Son Off His Meds

My 12-year-old autistic son Leo was on the black box anti-psychotic medication Risperdal for almost four years. As of this writing, he's been off it for almost four weeks. Will he be okay? I hope so, but I'm not sure. Not yet....more
I am thrilled to read how we'll Leo is doing right now. I agree, completely, with what ...more

Special Needs Community Outrage: Where are the Marissa's Bunny iPads?

I spent yesterday morning at a local university, participating in an autism study. Part of the study was an interview about my experience as an autism parent -- including whether there were any benefits to my son Leo's autism diagnosis. "Absolutely," was my immediate reply, "We have become part of an amazing community -- full of people who support, understand, and trust each other unreservedly." But what happens when someone in our special needs parenting community abuses that trust? That's what many of us are worried about, after the Marissa's Bunny Foundation solicited donations from parents of kids with special needs for the chance to win iPads -- and those iPads never materialized....more

As one who has benefitted tremendously from the generosity of both friends and strangers via the ...more

Grief: Life After

Generally, an illness or injury is what forces me back into my body. Like any structure left unattended, my body starts to break down. My blood sugar rises. I gain weight. My pap smears come back wonky. I get shingles or start to consume bottles of liquid ibuprofen at a truly alarming rate...You know, the sirens to pull over and get my collective self together. ...more

This was very powerful for me today. I know I harbor years' worth of grief in my body. So much ...more

Parenting Kids With Cerebral Palsy

I'm used to Leo's quirks, I'm comfortable with them, they're just one part of the boy I love so much. But there's as much of an onus on me as there is on anyone else to get more familiar with other children with special needs and their stories. With that in mind, I asked three parents of children with cerebral palsy to tell us about their kids. ...more

So many people make assumptions about many disabilities and assume they only manifest in one ...more

OFFICIAL BLOGHER '10 LIVEBLOG: Blogging Autism - Shattering Myths, Finding Your Tribe

Welcome to the liveblog of the BlogHer '10 panel: Personal: Blogging Autism: Shattering Myths, Opening Eyes and Finding Your Tribe. Click here for more info. Shannon Des Roches Rosa, a parent of a child with autism, moderates the discussion with Shark-Fu, who is co-guardian of her autistic brother, Stimey from Stimeyland.com, who parents a child with autism, and Sharon daVanport, who is an adult with autism. Carol (@AspieAdvocate) has stepped in for Sharon daVanport ...more

Thank you Shannon, Pamela, Carol and Jean for a fantastic panel. I have to say, perhaps with a ...more

Leave a Comment Now to Donate a Book to a Child in Need (Really!)

BlogHer and BookRenter, a company that rents textbooks to college students, have joined forces because we know that books makes a difference. Help us meet our goal of 1,000 books donated -- we're not there yet! ...more

Play BlogHer Matchy-Matchy: Have You Met These Autism Bloggers?

Blogging isn't just about throwing your words into the internets -- it's about the connections you make. We thought it would be fun to bring you a little Matchy-Matchy game starring BlogHer communities, kicking it off with a few members of the BlogHer autism community (it's Autism Awareness Month, after all). ...more

Woot! My score was 4700 in 0:50 (I dunno, is that good?)

Thanks for the linky-love and ...more

Interview: Autism Parent Jean Winegardner of Stimeyland

Jean Winegardner, a.k.a. Stimey, is a mother to three boys, one of whom -- Jack -- has an autism diagnosis. She is empathetic, endlessly entertaining, and a fine writer. Many autism parenting bloggers identify with Jean, and feel about her the way the younger sister felt about Julia Roberts' character in the movie Notting Hill -- that she is destined to be Our Very Best Friend. Though Jean shares herself and her stories at DC Metro Moms Blog and Washington Times Communities as well as on her personal site Stimeyland, I know some of you want more. Read on. ...more

What a great interview. I can't wait to FINALLY meet both you and Jean at BlogHer. :-)

And, ...more

Did Autism Cleave Jim Carrey and Jenny McCarthy?

Gleeful tweets and DMs starting rolling onto my computer screen shortly after Jenny McCarthy and Jim Carrey announced their separation via Twitter. People wanted to know how I felt about the implosion of the Generation Rescue-fronting Hollywood couple's five-year relationship. Didn't I hate them? Wasn't I happy?...more

I'm sorry I wasn't as articulate (or concise) as I wanted to be when I wrote my reply to you. ...more

Interview: Susan Senator and The Autism Mom's Survival Guide

Did you know that autism parents can choose an identity other than Avenging Warrior or Martyr? That it is reasonable to aim for happy lives for us and our children, despite our kids' challenges? If this is news to you, then you need to read Susan Senator's forthcoming The Autism Mom's Survival Guide, A.S.A.P. ...more

Wonderful interview. Can't wait to read Susan's book.

more