ReclaimingNina : MyBlogHer Profile

My name is Nina, I am  25 year old from the Dirty Jerz! I was recently diagnosed with Acromegaly (www.acromegaly.org) as a result of pituitary gland brain tumor which produces excess human growth hormone. This tumor was found originally when I was 20 years old, and was the size of a pea, now it is the size of a peach pit, and has completely compromised my pituitary gland, and has somewhat started to disturb my eyesight in my right eye. I blog to bring awareness to my tumor, to Acromegaly, and because I am damn pissed off! I don't want anyone else to go through what I have been through having been failed by my doctors for almost five years. As of now I face transphenoidal surgery (a type of brain surgery done through the nasal passage) and years of radiation therapy. I am extremely thankful that I am not fighting for my life!!! However, I still want people to know what it is like to have Acromegaly, a condition that I might not have ended up having. I want people to go on this journey with me as I have brain surgery to remove the tumor, and with it my pituitary gland, a vital organ in your brain, and I want people to know what its like to endure radiation treatment for something that could have been prevented. I am not a complainer. This needs to be understood, some of these blogs might seem like I am complaining. This will all be my reality as I am experiencing it. Acromegaly is a serious condition that takes a very huge toll on the human body. My first blog will be devoted to explaining all of that. Just know that I am here to be an activist. I am here to vent, and I am here to comfort others who are dealing with a serious illness. Nothing can be worse. Nothing.