On parenting a child with special needs – Today isn’t your tomorrow

Raising a child with special needs is as much similar to raising a typical child as it is different.  Every parent wants the best for their kids.  We all worry about their future, their safety and what life will be like for them once we are no longer here to protect them.  These are all common concerns we have as parents....more
triciaharris wonderfully said \U0001f49cmore

Random Acts of Kindness Week is Here: Pay It Forward To Others with Chronic Illness

Would you like to know you made a difference or truly positive impact in someone’s life? By practicing random acts of kindness, and paying it forward, you can do just that. This is especially true and appreciated in healthcare — it can positively impact a patient’s day, treatment, and overall disposition....more

10 Tips for Making the Most of Your Child's IEP Meeting

Do you attend IFSP (Individualized Family Service Plan) or Individualized Education Program (IEP) meetings for your child?While many parents feel okay, content, or even thrilled with the way these meetings go, others find them incredibly stressful. They may feel confused, angry, or upset about the way they unfold....more
sfleming24 Thanks for your comment. I agree that meetings often bounce around. I agree that it's ...more

Left Handed

Josie tried to convince the aide at Religious Education that she wrote with her left hand.With 35 years teaching experience behind her, she could not be swayed. Josie is clearly right handed. My girl let her stubborn streak show as she argued, “My teachers make me use my left hand at school.”...more

We Survived The First Week

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Letter to God

Twenty-two years ago when inclusion of children with special needs was new and controversial, third-graders Libby and Noelle had become fast friends.  My daughter Noelle was the first and only child with intellectual disabilities in her elementary school of more than 800 students when Libby wrote this Letter to God (imperfect spelling included):...more

Baloney Macaroni! Don’t take no for an answer

That’s what I say, every time someone suggests something can’t be done. It happens a lot when you have a child with special needs. Our daughter is 31, and I was sick of hearing the word “can’t” by the time she was a kindergartener.At first I tried to be nice. I listened politely, for example, to our parish priest explain to me why Noni could not go to an hour of weekly public school religion class:...more

Handicaps Smandicaps!

Learning to ride a bicycle is a rite of passage, as is a parent running alongside the two-wheeler absent its training wheels. ...more

Should We Have Another Baby?

 Originally published on BaloneyMacaroni.com I’d always wanted a bunch of kids.But when we learned our secondborn had developmental disabilities, the unplanned diagnosis gave us pause.My life already was consumed trying to meet this child's every need. How could I have another?...more

WHAT DO YOU WISH FOR?

Originally published on BaloneyMacaroni.com  ...more
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