Since we are going to be spending time discussing how to handle your child's special needs village I have decided to create a list of personnel that are essential to a well functioning machine. I have found that at any given time I have had at least half of this list (at times in life almost the entire list in fact) working in concert making certain that the boys functioned to the best of their ability. By the way the list is as valid today, for my young-men, as when they were in pre-school : YOUPsychiatrist...more
My mom loves me. Even when I kick and scream, refuse to eat, or try to hurt myself when I’m mad. One time right before bed I slapped her right across her face. She didn’t get mad or yell though. She told me “no” and put my hands by my side. She still snuggled with me and read my books to me....more
Brandon is three. He has been in a crib up until about a month after his third brithday. This is fairly old to still be in a crib. He's had the ability to climb out of his crib for more than two years before we made the switch. He loved his crib, and bedtime was easy peasy for me, so we went with it! He climbed out a couple times, but that was a very rare occurance. As active, strong, and athletic as he is, he stayed in the crib....more
I’ve seen a lot of chatter recently about cell phones, and the call to action for parents to get off their phones, as quality time with their kids is a blur around them. It’s funny, there are so many things that being a special needs parent changes. When asked to think of something of the top of my head, I always pause. Maybe it’s just because there are so many, it’s hard to know where to start. How about this. Just name something you do with your kid, and I’ll tell you how it’s different for me…how it requires accommodations, extra planning, or all-together av...more
There are tons of blog posts out there for autism like… "Things Not to Say to an Autism Parent," or "10 Things You Didn’t Know About Autism," or "10 Things You Should Know About Autism." This post is about the brand new Autism Mom (or Dad!) who just got her world rocked. There are a million things to know. I have narrowed it down to 5 Things Every New Autism Mom Should Know. Now, that’s a new one! Having a child diagnosed with autism is overwhelming to say the least. Here are a few things to get the new Au...more
I sit at the kitchen table. Peeling and slicing apples for pie. Liamis in the other room, happily playing games on the computer.He's quiet. He's happy. I'm enjoying the "down" time. I gaze out the window at the freshly falling snow. I admire the beauty...more
Dear Good Samaritan, let me start by introducing myself: My name is Courtney. My husband and I have an 8-year-old son with autism and then some. Our little boy struggles with more labels than a clearance item, I have many chronic illnesses and my husband has more metal in his body than bones. ...more
Wobbly Wednesday is here. Nystagmus is a bounce of the eyes. This is a side effect but is not exclusive to albinism. It has been described similar to having ADD because the frequent bounce makes it harder to focus. There are ways to combat nystagmus to increase focus....more
I do. I despise functioning labels. I don't care for labels at all, but as autism parents, we all know these labels get our kiddos the help that they need. The functioning labels are the worst though. They are designed to show where our children are on the spectrum, yet they are actually limiting our kids. ...more
And here I sit… again. I've been thinking about a post on the reality of Autistic Spectrum Disorder (ASD) parental isolation for years, but have been afraid to publish.
And here I sit… desperately needing to talk to someone with no one at all to call. How could I possibly explain my child's latest antics to a parent of neuro-typical children. Heck, some parents of ASD kids can't understand my kid's behaviors, and they are up to their eyeballs in their own kids' stuff. My burdens will not help them.