Bio
I'm the BlogHer Contributing Editor on parenting children with special needs, and I'm at your service.  I am more than a parent, but with three...
 
 
 
 

What’s Hot on BlogHer.com

Recent Comments

My Child Has Autism and I Vaccinate

  • Share This Post
  • submit
  • 47
  • Sparkle (
    )
     

Have you or would you ever let your children travel by airplane? If your answer is "yes," then you should re-examine any concerns about vaccinating your children. Both flying and vaccination carry real risks, but those risks are statistically unlikely to affect your family.

I know it's more complicated than that, so keep reading. I also understand the fear behind not vaccinating, as I've been there myself. I clearly remember the stone age of 2003: my two-year-old son was newly diagnosed with autism, and I was desperate to help him.

The first thing I did was to enroll Leo in an ABA program, because that was the only method proven to help children with autism gain skills. But ABA is hard work and doesn't promise miracles, and I wanted changes, fast. I craved a son who could tell me, "Mommy, I love you!," so I started exploring alternative autism therapies.

And indeed, I found many self-appointed autism professionals willing to tell me to look past the challenging but loving boy I already had and focus on a theoretical Recovered Boy of the future. I tried not to be bothered that these people were (and still are) promoting scientifically questionable approaches, and focused on one of their popular theories: they thought that mercury in vaccines caused autism.

Those anti-vaccination people were passionate about "curing" our autistic children. I was passionate, I wanted to cure my autistic child. I did what they told me.

I stopped vaccinating my kids.

My youngest child was born in 2004, eighteen months after her brother's diagnosis and during the thick of my alternative-treatment frenzy. I was so freaked out by being told, repeatedly, that Leo's autism was likely caused by an injected environmental factor that there was no way in hell my new baby was getting a shot of anything. Not even vitamin K.

As that fortunately healthy baby grew and thrived, so did the evidence refuting a thimerosal/vaccine/autism link. Unfortunately, so did the rates of preventable and potentially lethal diseases. Turns out I wasn't the only parent who'd freaked out and stopped immunizing his or her kids.

I needed to know if vaccinations had in fact affected my son, so I formally investigated the possible correlation between Leo's autism and his immunization schedule: I enrolled him in a MIND Institute study that tracked the emergence of his autism symptoms via home videos, medical records, and my own journals.

The result: there was no evidence that Leo had regressed into autism after being vaccinated.

I thought long and hard. And decided that the risks of vaccinating my children were acceptable .

I started slowly, under the supervision of a pediatrician who was willing to listen to my concerns. My daughter initially got only one shot at a time, only when she was healthy, and with a month between doses, because I wanted to see how she reacted to individual vaccines. Once she showed no adverse reactions, I began to allow vaccinations in small batches. I also resumed vaccinating my son -- you know, the one with autism. Both kids remain fine, or at least no quirkier than they were before their shots.

Mine is not the only vaccination perspective you should be familiar with, however. As you probably know, there is no talking about vaccines and autism without mentioning "safe" vaccine advocate Jenny McCarthy. Ms. McCarthy recently declared:

"If you ask a parent of an autistic child if they want the measles or the autism, we will stand in line for the f___ing measles."

Really? If we're going to media mouthpieces rather than experts for our information, I have to counter with a recent Law & Order: SVU episode, in which a child too young to be vaccinated died from encephalitis as a complication of measles, which was acquired at a neighborhood park from an unsymptomatic carrier kid whose mother had refused to vaccinate him.

I'm sorry, Jenny, but Mariska Hargitay, Christopher Meloni, Ice-T, and Stephanie March say that measles kills and that we need to vaccinate our kids not just to keep them healthy,

  • 47
  • Sparkle (
    )
     

Comments

Post comment as twitter logo facebook logo
Sort: Newest | Oldest
Shannon Des Roches Rosa 5 pts

It sounds as though your kids have a rare reaction to the MMR vaccine. All the more reason why other people should vaccinate their kids, to help protect yours.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

BrysMyKid 5 pts

I have 3 children, they all recieved all thier vaccines accept my youngest...he has not gotten the MMR. Both my older children have learning disabilities (not Autism alhtough they though my oldes was Autistic)

DO I think the Vaccines cause it, not directly, I think something in my genetic make up ( so to speak) gave my kids a better chance at developing these issues.

So why didn't I give my little guy the MMR? Simple...Both the older children ran incredicly high temeratures after this shot. My oldest got the shot at 12 months and had a febrile seizure, this was repeated at four years old, and again another seizure. my second got the MMR at 12 months and spiked a temp well over 106, so when it came time for the second dose, I had her titers tested and she did not need the shot.

Maybe there is "evidence that the shot itself does not cause problems, but what about side effects? Did the high temps my two had, cause the problems they have today?

My little guy...No MMR...No problems...Am I scared of the Measles, Mumps and rubella..Hell yes...But can I give him the shot knowing what happened with my older two? Hell no...

Just this mom's oppinion, and for the record, no professional can answer my questions...

Barbara

ericds33 5 pts

"We live in a culture where some people make critical health decisions for their children based on the opinions of self-proclaimed celebrity graduates from "The University of Google." I'm asking you to help right the balance, to ensure that science-based viewpoints counter earnest but misinformed sensationalism in the autism -- and parenting -- communities' information flows."

Definitely true.

To be fair though (this is kind of off topic), this also describes why many people day opt to blindly take many pharmaceuticals, processed 'diet" foods, etc. While many people who are "anti-vaccination" are just wrong, like you have shown, I think that some others have a different point of view. Some people (or least me, haha) that are warning against vaccines aren't linking them to autism, or necessarily telling people to avoid them. They are just trying to make sure that extensive testing has been done, and showing people that just because a large company or even a professional says something, doesn't mean it's entirely true.

Of course, others are just propagandist, and I'm not trying to defend them, I'm just saying that there is misinformation on both sides, even those with all the "studies".

Shannon Des Roches Rosa 5 pts

Thank you, I'm so glad you read the entire thread.

I'm usually engaging with some variation on my antivaccinationist past self. And I know how I felt -  terrified. And I know what I needed - facts, a firm stance, and someone who was willing to engage me.

It's getting easier, with 2010's wave of rulings against any links between vaccines and autism, e.g.,:

A vaccine court has just ruled Thimerosal does not cause autism.

http://www.google.com/hostednews/ap/article/ALeqM5...

Mom101 5 pts

I just spend a good long time this early morning reading this thoughtful argument and the entire comment section, and want to commend you on your research, your thoughtful but respectful disagreement, and your commitment to combatting theory and feeling with facts. I learned a lot - in terms of vaccines, and how to have an debate.

Reading blanket statements like "you can't trust any doctors" or "I had x disease and I'm okay" or "vaccine manufacturers don't know what they're doing" is simply mindblowing to me. Your responses have been way more measured than mine might have been.

Exploradora 5 pts

I'd take the autistic, challenging, loving, wonderful little boy over measles any day ;) .  Seperating the autism from who he is as a person is impossible- I wish his life was easier and I wish people were more accepting, but I don't know how to wish away the autism and not wish him away.

I would be less annoyed with anti-vaxing community if they weren't so committed to spreading confusing misinformation and disinformation.  And if they weren't putting immune compromised children, infants, children who medically cannot recieve vaccinations, etc, at risk by not only choosing NOT to vaccinate but also choosing to fearmonger their friends and neighbors into not vaccinating, thus putting us dangerously close to a threshold that could cause the reintroduction of many serious diseases in our country.

moonfever0 5 pts

Has it ever occurred to you that you are healthy because everyone else vaccinated around you?  Would you have been so lucky before the days of vaccinations and been immune to diseases such as polio and smallpox?

It might have worked out for you, but for reasons different than you believe.

Angela at mommy bytes ( http://www.mommybytes.com ) BlogHer Contributing Editor in Mommy & Family Cribsheet

Shannon Des Roches Rosa 5 pts

I'm glad you've been fortunate enough to remain healthy. But you might as well write, "I've never worn a seat belt, and I've always been fine."

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

orlapeters 5 pts

My mother would not let the doctors vaccinate me when I was a baby, and to this day she was right.  I've never needed any vaccinations against anything.

Way back when, there was too much going on for my mom to let a doctor inject me and risk anything.  I'm glad she did as my immune system is like an ox.

Different thing for different people I guess.

Orla
Product Launch Manager ( http://www.productlaunchmanager.net )

Shannon Des Roches Rosa 5 pts

@Stephanie, the issue of adverse vaccine reactions was addressed in the first paragraph of my post, and also in the comment thread. Adverse reactions happen, they are very rare, and I'm very sorry they happened to your family, truly -- but all the more reason for the rest of us to get our kids vaccinated, to *protect your kids* by reaching critical population immunization levels.

Reactions to anesthesia during surgery happen, but they do not scare most people off of necessary (or even elective) surgical procedures. This is because surgeries generally treat rather than prevent medical conditions, & the risks vs. benefits are more concrete. Let's hope it doesn't take epidemics of vaccine-preventable illnesses to provide concrete evidence for the maintaining vaccination rates.

@daharja,

You had " measles, mumps, chicken pox, a host of flus, and viral encephalitis" and you're still here? I'm glad, and you're lucky. Roald Dahl's daughter only had measles, but she was not so fortunate:

http://boingboing.net/2009/06/03/roald-dahl-on-vac... ( http://boingboing.net/2009/06/03/roald-dahl-on-vac... )

Also, you keep writing things like:

"I'm not aware of, and could not find, any statistically significant
reduction in child or infant mortality from disease in the Australian population (I looked quite hard). But there *has* been a significant increase in autism rates, and in reported vaccination injury and illness."

In which you say your extensive research provides no evidence for that with which you do not agree, but then you do not provide evidence to support your own accusations? This is called Negative Evidence, it is a common disinformation technique, and I have faith that BlogHer readers are smart enough to dismiss such approaches.

Conveniently, Stephen Novella published another well-written article addressing @Stephanie's & @Daharja's concerns on Science-Based Medicine, just two days ago:

http://sciencebasedmedicine.org/reference/vaccines... ( http://sciencebasedmedicine.org/reference/vaccines... )

Here are the first two paragraphs, but I recommend reading the entire article:

"Vaccines are generally considered to be the most successful public health intervention ever devised. And yet there have been opponents of vaccines ever since there have been vaccines. So-called antivaccinationists have claimed over the years that vaccines do not work, despite the overwhelming evidence that they do. They often spread misinformation about vaccine, such as the notion that vaccines weaken the immune system, when in fact they work by strengthening the immune response against the target infection.

"In recent years the antivaccine movement has focused on the claim that vaccines are linked to neurological injury, and specifically to the neurological disorder autism, now referred to as autism spectrum disorder (ASD). However the scientific evidence overwhelmingly shows no correlation between vaccines in general, the MMR vaccine specifically, or thimerosal (a mercury-based preservative) in vaccines with ASD or other neurodevelopmental disorders."

As for mercury/autism/vaccines: How disappointing when intelligent people still parrot information that has been disproven so many times over.

Shannon Des Roches Rosa
( http://www.squidalicious.com )

Daharja 5 pts

Hi all,

 Out of interest, I was born in 1970 in Australia, and as a baby I was given the Triple Antigen (diptheria, tetanus, and pertussis), and polio.

It also used to be called the "vaccination" schedule. The naming of the schedule to "immunisation" schedule (a technically incorrect, but politically loaded, term) changed in the 1980s. 

When I was about 10 I had a booster shot for tetanus when bitten by a mouse. This was recommended by my GP, and not part of any schedule (an optional extra, you might say!)

I also had a TB shot when I moved to Hong Kong (in about 1981). Finally, my last shot was as a teenager (rubella - girls only).

That's it.

The current schedule in Australia lists 39 dosages, some of which are combined. Extra shots, such as fluvax and gardasil (for girls) are recommended and pushed by the GPs, bringing dosages up to sometimes more than 50 interventions.

Some diseases, such as polio, have been eradicated from the Australian community altogether (the last case occurred in  the 1970s, and the World Health Organization’s Western Pacific Region were declared free of circulating endemic poliovirus in 2000), yet the vaccine is still mandatory on the schedule. 

So things have changed a bit. I'm not aware of, and could not find, any statistically significant reduction in child or infant mortality from disease in the Australian population (I looked quite hard). But there *has* been a significant increase in autism rates, and in reported vaccination injury and illness.

Daharja (Leanne)

--

http://cluttercut.blogspot.com

Daharja 5 pts

Hi Stephanie2,

 The more I do research on autism, on nutrition, and on health issues generally, the more I reach the conclusion that autism is not one singular disease, where the causal factor was the same in every case and every case can be treated and will respond in the same way.

 For example, there is a great deal of evidence to suggest that my son's autism is in fact foetal anticonvulsant syndrome (see http://www.ncbi.nlm.nih.gov/pubmed/16108456) caused by exposure to sodium valproate in utero.

Other evidence I've read suggests that other families are particularly susceptible to the effects of mercury exposure - and this may explain why vaccine shots loaded with mercury affect some children, and not others.

Then there are a significant percentage of autism cases where no reason can be identified or is likely. And every case of autism presents differently.

What I do know is that the choice to vaccinate is a *choice*. We none of us live in dictatorships (yet!), and it is up to us to decide what is best for our children. In my mind, leaving medical interventions (including vaccinations) to an absolute minimum makes sense. 30+ shots seems overload, in anyone's estimation, I would have thought!

 Finally, and I know this isn't the least bit scientific, I had measles, mumps, chicken pox, a host of flus, and viral encephalitis, and I'm still here and kicking! Maybe our bodies do a better job of defending themselves than the medical companies would like us to believe!

Cheers, and I hope your sons continue to improve and recover!

Daharja (Leanne) 

--

http://cluttercut.blogspot.com

Stephanie2 5 pts

I'm the one who commented on your post regarding the "autism cult", about how both of my boys were huge responders to the DAN protocol. With that said, I think I may bring a unique perspective on the issue of vaccines.

As far as my 4 year old is concerned, I have nothing that allows me to pin his issues on vaccines.

However, I do feel that there is a link between my 18 month old's issues and vaccines. I distinctly remember listening to the sweet sounds of his babbling from his crib at the age of 4 months...enter the DTaP shot he had done at 4 months (it was the only injection he had that day). Later that day he had a crying spell that scared the hell out of me. He wouldn't stop shreiking no matter what I did (even tried to nurse him, which always calmed him down in the past). It only lasted 30 minutes, but it was such a cry of intense pain, it was a nightmare! I knew it was from the shot. Then he went completely mute for about 2 months (the only sounds he made were crying and giggling if I tickled him - absolutely no babbling, cooing, gesturing, nothing...just silence). I continued to vaccinate him until we were done with the 6 month vaccines, I don't know why...I think I was too sleep deprived to put it all together at the time.

I then went ahead with my 4 yo's polio shot (figured I would do his other 4-year-shots later) and he had a terrible regression in behavior within 2 weeks of the shot. I still can't pin the shots on his issues, but it really started to make me think...

 So, we have stopped all vaccines. Please be aware that there is still mercury in the flu shot. Why the FDA feels that it is ok to inject our children with mercury every single year is beyond me. Just because one kid can tolerate the constant mercury, doesn't mean that all children can tolerate it.

I think people need to understand the politics and the power of money behind the decisions regarding the current vaccination schedule. It is not to make our children even healthier than their parents, it is to put more money into the pockets of the pharmaceutical companies. They DO NOT have our children's best interests in mind here. They have $$$$$ in mind - bottom line. When will they draw the line? When they get called out and they can no longer get away with it.

I recently pulled out my vaccination record. I received 10 shots as a child, and NONE of them were administered on the same day. My 4 yo received 33 shots (and he didn't even get all of his 4-year vaccines). I mean, does anyone else see the rediculousness of this? Does anyone have friends who were dropping dead all around them b/c they only received 10 shots? In my experience, none of my friends died of a terrible disease because we didn't have enough vaccines. Also, I did not know anyone with autism until my friends started having babies...hmmm. Why 33 (or 36 or whatever)? It's all about $$$$$. Please, people, don't be be fooled into thinking that mainstream medicine as a whole has our best interest in mind. Do your research on EVERYTHING that they try to give your children (I even do this with our DAN doctor and have discontinued 2 supplements on my own that were causing adverse effects). This vaccination schedule is not one-size-fits-all, but that's the way they are "marketing" it. I am not anti-vaccine. I believe in vaccines, but as in all things, only in moderation. I believe that the "powers that be" have taken it too far and they have lost alot of credibility with me. There is a subset of children who will suffer adverse reactions and parents need to take it slow so they can monitor for these reactions and minimize the damage.

daisymayfattypants 5 pts

I'd be happy to respect the parental choices of antivax folk if they (a) didn't feel compelled to tell me at every turn that I'm an uneducated, non-breastfeeding, red-dye-administering, indoors-keeping, blind, gullible fool who is poisoning my children or committing child abuse by vaccinating and (b) never said "thank you" for my vaccinating MY children, which allows them the luxury of choice not to vaccinate theirs. Or, at least it does until they reach a critical mass and we have outbreaks in the community. It's a first-world luxury to decide not to protect your children against deadly diseases, and parents who vaccinate facilitate that luxury for parents who do not.

http://daisymayfattypants.blogspot.com/2008/03/dea...

Emily

Shannon Des Roches Rosa 5 pts

I read the link you submitted. It concerns one study about epilim and a very small number of children. It does not mention vaccines.

I can understand why your own experience and that single study would make you concerned about the drug epilim, but you should focus your efforts on awarness of the side effects of that drug and not on vaccines in general. You have still provided no argument against vaccines or immunizations, except general distrust of the medical establishment.

Consider this, from the first article I linked to above:
(http://www.pkids.org/im_vs_mmr.php)

"Infection of pregnant woman
with "wild" rubella virus is one of the few known causes of
autism. Thus, by preventing infection of pregnant women, rubella vaccine also prevents autism." 

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

Daharja 5 pts

Hi - All drugs and vaccines carry risks. Those risks are such that I am not willing to take on behalf of my children. If *they* choose, when they are older, to take vaccines, or a situation becomes life-threatening (say, an outbreak of polio), then I will reconsider. But for now, my judgement is that the benefits do not outweigh the risks.

Here is a link to follow-up you requested regarding sodium valproate and risk to babies in utero: http://www.ncbi.nlm.nih.gov/pubmed/16108456

On this issue I was not fearmongering. I *did* suggest in my post you Google this if you were interested, and the info was pretty easy to find (the first Google response when searching for "sodium valproate" was the Wikipedia link, and this comes up straight away, under the "safety in pregnancy" part of the wiki page). 

 Perhaps the reason it is becoming uncommon to dismiss "experts" is because they are not acting conscientiously and are instead placing profits above safety.

Another issue is the virtual forcing of parents into vaccinating our children. People do not take well to strong arm tactics: people, as a whole, never have. When parents in some countries (such as the US) choose not to vaccinate, they are not treated well, and their decision is not respected. 

Finally, the term "immunization" is a misnomer and is incorrect. "Vaccination" is the correct term. Please don't use the politically-loaded term "immunization" and muddy the issue.

 Thanks for responding, and I appreciate you well wishes for my family. In the end, we all, as parents, do what we believe to be the best for our children, don't we?

The whole point of living in a free society is that we all have the choice to do what we believe is best for our children, depending on our own values and beliefs. Mine clearly differ from yours, but that doesn't mean that either of us must be wrong. We're just different from each other. I respect yours, and I ask, out of courtesy, that you respect mine.

My son is doing well and keeps improving beyond our expectations and those of his specialist helpers. We have him on a gluten-free, dairy-free, whole foods vegetarian diet, and at age four he is learning to read, can write his own name, and is learning addition and subtraction. He's also a keen musician, and loves to run - fast! :-)

 His social skills will probably never be great - but he'll be fine. He's a great kid, who was just thrown a curve ball in life at the start, thanks to some very nasty drugs that were declared "safe" by "experts". He's a triumph of love and nature over the harm that modern drugs can do to a baby.

Good luck, and best wishes for you and yours.

Daharja

 --

http://cluttercut.blogspot.com - Green simplicity 

autismvox 5 pts

@Daharja

The issue of vaccines and autism is not a "battleground" issue----the scientific evidence increasingly refutes such a link.   It's nonetheless understandable why parents might think there is a link, a correlation; parents (I know more than a few) want an answer for why their child is autistic and right now we just don't know.

The vaccine-autism issue  has consumed a great deal of time and energy and sparked a great deal of quite contentious discussion. Unfortunately, these discussions tend to divert attention from the very pressing issues of schools, supports and services for autistic children and individuals---we indeed need to "demand better," to demand a better education and services and more understanding about what autism is.

 I've also been interviewed about vaccines and autism here:

http://video.newsweek.com/#?t=1877562556 

and written about vaccines and autism here:

http://autism.change.org/blog/view/vaccines_and_au... ( http://autism.change.org/blog/view/vaccines_and_au... )

 Kristina Chew

 still soapvoxing, now @ kristinachew.com

Shannon Des Roches Rosa 5 pts

@Daharja, I am sorry that you feel you have been put in avoidable situtions. It sounds as though you are still finding joy in both of your children, and for that they are lucky.

However, sodium valproate is a drug, not a vaccine. So while I dislike having to be so blunt,  your argument against vaccinations does not make sense. And it is irresponsible for you to throw out a fearmongering statement like "Nearly 10% of babies exposed to this drug in utero develop autism" without linking to any supporting documentation.

It is becoming common to dismiss medical "experts" as you did above. I do not know why so many people feel entitled to perfection or guarantees in things as unpredictable as parenting and medicine, but there will always be risks. And if I get into a car accident or my children develop pneumonia (again), you'd better believe I'll be placing my trust in the medical experts.

I highly recommend everyone read the following two articles about the very real harm being caused by parents misusing their intelligence and giving credence to fabricated and unfounded immunization fears:

The ABCs of MMR & DTP: Is There an Association Between Vaccination and Autism?
http://www.pkids.org/im_vs_abcs.php ( http://www.pkids.org/im_vs_abcs.php )

The Demonization of Immunization in Stanford Medicine Magazine
http://stanmed.stanford.edu/2009spring/article1.ht... ( http://stanmed.stanford.edu/2009spring/article1.ht... )

Daharja 5 pts

 And yes, he was vaccinated. I was the good citizen, and did as I was told/coerced/forced to do by my government.

 When I had my second child, I was wiser and more educated, and did not vaccinate. And she is fine. No autism - just a bright and beautiful little girl. And I am blessed, for both my children.

 We suspect that the reason my son has autism was because I took epilim (sodium valproate) during his pregnancy. Nearly 10% of babies exposed to this drug in utero develop autism. 

 I will not, however, vaccinate my daughter. Nor will I give my son any further vaccinations.

 Fact is, I took the sodium valproate under specialist advice. The drug company in question denied, and continues to deny, any link between their drug and autism in babies exposed in utero, despite massive evidence proving without doubt that the drug causes autism.

 (Google sodium valproate if you are interested in the ongoing class action lawsuit in the UK, and for general information on the issue).

No drug is safe. In my opinion, no drug company - including those who manufacture vaccines - can be trusted. They simply don't know what they're doing, and their guesswork puts our childrens' lives at risk.

 The guesswork of medical "experts" is equally at fault. My neurologist *prescribed* this drug to me, knowing I was a pregnant woman.

 I'll risk my kids with measles, yes, and encephalitis, and meningitis too. But I will never again risk them with any drug from any drug company. Especially not vaccines, where question marks concerning safety hang heavily. 

 Maybe, instead of turning this into a battleground issue, we should all be questioning the safety practices - or lack thereof - of the drug companies that are so keen to shove their chemicals and compounds into our babies, and generate massive profits while they do so.

Maybe it's time to say they're not safe enough for our babies, and to demand better. For all our kids. 

Daharja 

--

<a href="http://cluttercut.blogspot.com"><b>Cluttercut</b></a> - <i>Green simplicity</i> 

Shash 5 pts

Shannon, 

I'm actually agreeing with you in my comment. I'm well aware you are very verbal and willing to fight for your son's rights. As someone who does the same, I appreciate that.

We should probably talk more. We definitely have a lot in common.

Shash
Diary of a Crazed Mommy
http://crazedmommy.com
http://twitter.com/shash 

autielady 5 pts

 I am glad to see somebody went from being against vaccines to the reasonable conclusion vaccines are safe. You have no idea how annoying it is to see a lot of money and time wasted on the anti-vaccine movement. I'm autistic and I am strongly pro-vaccine. 

Just think about how much good could be done if the anti-vaccine mob would stop throwing money away and wasting time. More autistics could have social skills classes, more parents could have respite care, scientists could spend more time on real issues and not repeat studies proving vaccines are safe.

People complain about lack of funding for autism. Well, gee, maybe if we could get people to stop following around a supermodel, lawyers, and a discredited doctor then maybe they'd use the money to help somebody; not put out false information that causes hysteria.

my blog: http://www.shesmorethananumber.blogspot.com

Shannon Des Roches Rosa 5 pts

@Esther & Elizabeth,

Thanks for the additional citations and information. I believe the most helpful thing we parents can do to help keep immunization levels up is to keep blogging and keep talking and keep being visible about our beliefs. And recognizing the boundary between assertive and aggressive when doing so.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second

CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

Elizabeth7 5 pts

What many people don't really understand is that Autism is one of many on a spectrum....hence it being call Autism Spectrum Disorder and it is grouped under Pervasive Developmental Disorders.
Aspergers and the main Autism are the best known ones, there are two others that I've done research on. Rett's, which only affects girls and a condition that I personally feel would be devastating to deal with is CDD-Childhood Disintegrative Disorder. Diagnostically,a boy's chance of having it is 1/100,000 (girl's chances are slim to none). There is typical development for the first 3-4 years, with the boy speaking in full sentences by 2yrs. The deterioration occurs abruptly, over days and/or weeks, occasionally gradually over weeks/months. The losses are in multiple areas, especially the self-help skills--toileting; also the loss of speech is dramatic due to the prior high language ability; also a loss of interest in their environment. Deterioration does not continue but gains are minimal. The capacity for speech is regained, but in a limited way.  The progress is less than a child with autism and the prognosis is worse.
As you can see, the boy develops quite typically for quite a bit longer than regular autistic children and then "BAM" their child changes. Many moms know that something is up when the child is very young, but not with CDD.
I am involved with a legitimate study out of my local university and children's hospital where we are using the M-CHAT to 18mos. olds (Modified Checklist for Autism in Toddlers). As we are also screening these babies at 6 & 12mos. we will be able to trace any concerns about the baby's development back to when they are quite young (pedstest.com has information about child development and the M-CHAT).
As to Jenny McCarthy, after she appeared on Oprah the rate of immunization drop drastically. The public health clinic (in Canada majority of immunizations are done here) where I was doing the screenings had appointments cancelled and many not made that were due (the moms are phoned when they are overdue). Celebraties DO have a profound impact on the public's choices.

estherar 5 pts

I'm glad you ultimately decided to go wit science and reason. Indeed, there is no link between vaccinations and autism.

I'm afraid it will take the resurgence of large epidemics before some people realize they've been playing with fire. Perhaps not Jenny, though, as she's been quoted as perfectly willing to sacrifice other people's children to her disgusting cause:

http://scienceblogs.com/insolence/2009/04/i_really... ( http://scienceblogs.com/insolence/2009/04/i_really... )

I strongly recommend reading Paul Offit, MD's new book, Autism's False Prophets. I have a few blogposts on the subject as well. 

All the best,

Esther 

http://mainstreamparenting.wordpress.com

Shannon Des Roches Rosa 5 pts

Shash, I hear you. But I don't have a problem fighting for my son's visibility, rights, and services (see previous BlogHer posts) *and also* telling people to be smart about vaccinating their kids.

You might find a post from my personal (and a bit more expletive-laden) site interesting:

http://www.squidalicious.com/2008/10/jenny-mccarth...

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second

CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

Shash 5 pts

While I appreciate the attention Autism has received in the media, I am appalled at the way Jenny McCarthy is being held up as the poster parent of a child with Autism. My story, and the story of many others, has been swept under the rug so that there can be a "happy ending" to the Autism story. There IS no end. And I do believe that Ms. McCarthy will realize that as her child ages, and she discovers that what "cured" him before is not life-lasting and he will have challenges for the rest of his life. And that's okay! And it SHOULD be okay!

I have vaccinated both of my children and only one of them currently shows signs of Autism...and they are both boys. Statistically both should exhibit signs, but only my first born does. Vaccinating children is incredibly important, and there should be no question about it. My child will not die from Autism, but without that polio shot? That is a painful death I don't even want to think about. For ANYONE.

My son never had seizures, nor did he receive vaccines and then regress. He has traveled on an upward climb at his own pace; one slower than his peers.

He will be the first to tell you he is just fine with the way he is, and wouldn't change a thing.

So why is it that so many people want to change him? Want to defeat what he thinks is the best part of him? Shouldn't he know himself best? 

Why can't we just accept, and learn from this? My son would be very appreciative if we did just that. So would I.

We've got bigger fish to fry than vaccines.

What about the already diagnosed? Services as Autistics age get less and less. Why are we not discussing that? Why do we have to hold a bubbleheaded blonde who's only other claim to fame is posing nude in such high regard? I don't understand it. At ALL.

And I know I'm not the only one.

Shash
Diary of a Crazed Mommy
http://crazedmommy.com

Shannon Des Roches Rosa 5 pts

I will continue to happily disrespect Jenny McCarthy and the people who let her influence their health decisions. Period. She and her sheep are causing real harm.

If you choose to take my statements as dismissive rather than engage in respectful disagreement a la @huffifer, so be it. I'm not here to placate dissenters. 

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second

CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

She Who 5 pts

This paragraph:

 We live in a culture where some people make critical health decisions for their children based on the opinions of self-proclaimed celebrity graduates from "The University of Google." I'm asking you to help right the balance, to ensure that science-based viewpoints ( http://www.csicop.org/si/2007-06/novella.html ) counter earnest but misinformed sensationalism ( http://lizditz.typepad.com/i_speak_of_dreams/2009/... ) in the autism -- and parenting -- communities' information flows.

isn't respectful of Jenny McCarthy, is it? And it's pretty dismissive of parents who chose not to vax...as though the only reason someone wouldn't vax is that they heard Jenny McCarthy. I pointed out that some information that might cause a parent concern about vaccination safety is available to anyone looking at the government pages, solely. I didn't go to anti-vax sites for them, and I don't need to get the spin from anti-anti-vax sites.  My first husband was a multivariate statistician, my 2nd a chemist.

I'm pretty good with science. ;)

 Science isn't perfect, but it's the best system we have for evaluating reality. There are good science reasons to be cautious about vaccinations. Have I been sensationalist?

This "people who let celebrities guide them" is a classic straw man argument. I don't believe such a category exists, except as equivalent to "people who do whatever their mothers tell them", "people who do only the opposite of their mothers", etc. It doesn't describe the mothers I speak to, whether they vaccinate or not. Mothers make their decisions (including how many children to have, where to have them, how to feed them, how to educate them...ad infinitum...) with a number of factors in mind, including their understanding of both the science and the politics behind vaccination.

 http://www.blogher.com/blog/she-who

emote_control 5 pts

It's become apparent to me lately just how many of my acquaintances believe the mad lies that the antivaccination crowd have been putting forward.  It's good to see that there are still some people who are behaving sensibly--and encouraging others to do the same.

When our first child was born, we heard about the putative link between vaccinations and autism, and saw some scary testimonials on the internet.  We did some research, however, and found out that the facts just don't back up these claims.  Both our kids are fully vaccinated according to our local vaccination schedules, and we get flu shots for them every year.

Antivaccination activists are causing the deaths of babies.  The decreasing herd immunity due to the decrease in the number of vaccinated children is allowing diseases like measles and whooping cough to spread.  I wouldn't be surprised if we saw a polio outbreak someday soon.  Ask a senior citizen about polio, if you want an idea of how rotten that would be.  If you decide not to vaccinate your child, you are putting other children at risk of death or serious injury.  I don't think that we should be sugar-coating that.  You're free to choose whether or not to vaccinate, but the consequences of not vaccinating are dire, and should be made very clear to everyone.

emote_control 5 pts

"Whatever it was, I watched the vaccine cause it..."

 What makes you think that the vaccine caused it?

eblonk 5 pts

Hi Shannon,

here's my story: in 2001, my son was born. He has just now been diagnosed with autism. With high-functioning autism, that often takes time. In hindsight, he had it from day one, however, being our first child, it was hard to see it before until he went to kindergarten. In 2004 my daughter was born, she has no signs.

I heard of and read about vaccination doubters before my son was born. I have been hooked up to information since the day I was born. Before internet, there were libraries. now it's both :) That included the 1998 'study' from the UK. I don't know if it was discredited back then but I do know it looked, well, like research that wasn't done very well. As it turns out, that wasn't the case, it was as good as falsified. However, alternative-minded people rarely, if ever, are critical among themselves, the first Einstein/Bohr row has as yet to break out, as far as I can tell. It didn't make my doubt vaccinations.

Your article is very well written, an asset to science-minded people.

For what it's worth, while it happens on both sides, the quantity of cursing, thinly veiled threats, character assasination, abuse of statistics, spreading  doubts and rumors, and knowingly telling lies, is running rampant among vaccination doubters. The vitriol and the preparedness to come down on griefstricken parents (as happened in the case of Dana McCaffery) completely devoid of any sensitivity ('you are not right' can also be said in a more friendly way), with some Meryl as good as accusing Dana's parents of murder is despicable. Jenny McCarthy is another person who curses in abundance.

Well, my son may be an autist, he has no preventable diseases, as we have a high vaccination rate over here. And vaccination doubters: adding up the two towns and four neighborhoods we lived in, and the 2 schools my children attended, we know of 2 children with ADHD and no other autist. We are talking about 99% and up vaccination rates.

Shannon Des Roches Rosa 5 pts

@gayle Do you have a personal blog? And yes, please do share. :)

@OFIH we did titers (i.e., taking a post-vaccination or disease contraction blood sample to evaluate current immunity to that disease) for my son as an alternative to more vaccinations when he started kindergarten. I was surprised to see how much of the immunity from his pre-diagnosis vaccinations had already worn off.

@mkowalewski, a lot of people think the onset of autism and the 15 month vaccinations are coincidental but seem causative. My son's autistic characteristics certainly became marked at that time, which is why I enrolled my him in the MIND Institute study and had autism researchers help me go over all the data and extensive videos. We saw a gradual emergence of symptoms that had nothing to do with his vaccination schedule. 

I recently spoke with a pediatrician about whether seemingly normal children do regress into autism, as I don't know any such children. The doctor assured me of personally seeing this regression in two patients, but considered it to be unrelated to their vaccination schedules.

@mstaz1112 Personal choice. Yes. *Well informed* personal choice.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second

CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

(I do not know what is up with the funky formatting in my signature)

Shannon Des Roches Rosa 5 pts

@huffifer, thank you for adding your story. Not vaccinating in your family's case is understandable. Herd immuninty will protect kids who aren't vaccination candidates if enough people without a family history of
reactions/neurological/immunological issues get vaccinated.

@she who, I don't think you got my point. I respect those who personally do the research (on both sides) and review their own family's history before making a decision about vaccinating. I'll never respect anyone who lets a celebrity guide their critical health decisions. And for the record, I don't think the media is being sexist when they introduce Jenny McCarthy using her former Playmate status. I think she herself is exploiting that angle.

Pretty much every study you cite (and the ways in which they've been twisted by the antivax camp) is outlined at one of the links I cited above, http://antiantivax.jottit.com/ ( http://antiantivax.jottit.com/ )

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second

CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

OFIH 5 pts

I commend you for your post. I agree that you should vaccinate your child. You sound like you are doing what you feel is best for your kiddos. This is the exact reason I don't vaccinate my children right now (we will delay, then we will do one at a time). I did the research after a huge eye opener (this was before I knew there was anyone else thinking that vaccines might cause any issues like Autism in children) with my kid. It was scary and something I never want to see another child go through. To see such a bright, intelligent, very, very verbal child lose all his speech, lose his ability to walk and play like normal children, lose so many skills. I thought it was something much worse than Autism because shots don't cause Autism. I had never heard of such a thing in my life. Then I started to think, could this be Autism? Whatever it was, I watched the vaccine cause it, so I got pro-vaccination doctors to diagnose him. It's Autism.

 This is why, to this day, I tell every parent to fully educate themselves on the real risks (on either side), read all the information, and then make the decision that's best for your child. If you do that, you are never wrong. I will not vaccinate my kids to help another child, not after what I watched my own child go through. Yes, we will vaccinate. It will just be much later in their lives, and after titers are drawn. (which I am learning is a really good thing for many kids because of a friend who's son was fully vaxed but half didn't take, poor thing. He has to have them all over again and in a very specific way.) I can't risk my younger child for anyone else. I am glad we ALL have this choice. I want all parents to do what's best for their kids, whether anyone else agrees with them or not. No one should ever tell a parent they are bad for vaccinating or bad for not vaccinating. It's no one's business what goes into your child's body or doesn't go into it. Kudos to you for making an informed decision.

Gayle Trini 5 pts

on a touchy topic! I too have a son with autism, but I never really believed that the MMR vaccination played a role in his autism....however it still didn't stop me from being cautious with vaccinating my daughter when she was born when my son was two. I don't believe in the multiple vaccinations at one time and I do stagger. And that is what I plan to do with my twins when they come in June.

I think you did a good job with presenting all sides. Just like you I think all parents should be educated with all sides of this issue and then make the best decision for their children.

 Oh by the way I missed the Law and Order episode, but did see a version of it on Private Practice recently which presented this mother with a son with autism and a son she refused to vaccinate who as a result died from measles. I found the show's episode alarmist . I personally along with my sisters and family had measles when we were younger and are here today and are fine. But it is a risk that you take and it better to weight the family history get all the facts than be bumrushed by either side.

Hope you don't mind I plan to share this link with my parent support group.

huffifer 5 pts

I appreciate your perspective, but after a family history of vax reactions (including with L, 11 and autistic) and finding out that almost all of the lots his came from were reported to their manufacturer for adverse reactions, I have to respectfully disagree, at least for my kids. We all do what we think is best for our family, and for me that means taking the risk of getting sick rather than the risk of seeing another family member in the hospital with seizures following a shot, like it happened to my sister.  So for ds #2, who is NT, there won't be any shots for the forseeable future.  We've already had whopping cough, and acted responsibly to keep him from infecting others, and as far as measles etc...we'll see what happens.

She Who 5 pts

People were questioning the safety of vaccines long before she became a parent, much less an activist one.

Here's the CDC vaccine recall page.

http://www.cdc.gov/vaccines/recs/recalls/

Here's the Adverse reporting system page.

http://vaers.hhs.gov/

Here's the compensation page.

http://www.hrsa.gov/vaccinecompensation/statistics...

Here's the list of contraindications to vaccination. Actual booklet runs 34 pages.

http://www.cdc.gov/vaccines/recs/vac-admin/contrai...

All government publications. If, somewhere in that, someone finds enough to concern them, as a parent, try not to be nasty about them. Without any help from Jenny McCarthy, at all.

http://www.blogher.com/blog/she-who

mstaz1112 5 pts

Thank you!  My son has SPD (but not autism) and if I hear once more from some "well meaning" person about vaccines and his issue, I may scream.  My 7 yr old daughter is vaccinated and perfectly normal (minus an attitude on par with a hormonal teeenager.)  We may never know what caused my son's disability, but we are working on ways for him to live and control it.  That is all we can do.

I beleive vaccines are a personal choice, but the diseases are worse than the side effects of the shots. 

mkowalewski 5 pts

I really enjoyed reading your blog post. It was eloquent and respectful and just a really refreshing way to look at things.  I'm of the opinion that vaccinations are not optional for my children especially because, according to my doctor (who I talked with extensively about this very topic) the link between autism and vaccines has not been established AND because things like the measles or small pox HAS been shown to kill.

I sometimes wonder if there is so much debate or fear about autism/vaccines because we have learned more about autism and how to diagnose it.  If we're learning how to diagnose it earlier and we diagnose it at about the two year mark (because that's the developmental age that these issues become most noticeable at), the timing also becomes suspect because our kids have just had so many vaccinations. I think that it would be totally natural to think that the vaccines have caused them, and maybe in some cases they did.  I just want there to be something more solid before I expose my child to something like the measles, with a KNOWN risk of serious injury or death.  

http://mominsanity.wordpress.com

Shannon Des Roches Rosa 5 pts

I appreciate all of your different perspectives. Vaccinations are a divisive subject, but, as you have further illustrated, we talk and think and question and decide because we want to do what is best for our children. All of our children.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second

CanISitWithYou.org ( http://www.canisitwithyou.org )
real tales of schoolyard terror and triumph

kpgray02 5 pts

In 1997, when Movie Boy was born, it never occurred to me to NOT vaccinate. Raised by a mother and grandmother who suffered through and lost friends to such diseases as measles, pertussis, polio... why wouldn't we? Autism was something the kid on St. Elsewhere had. It didn't come from vaccines. Whatever.

But fast forward 5-1/2 years later, and now I'm up to my eyeballs in IEPs and ABA therapy and .... I've got a newborn. And I hesitated. Because all those good things (preventing horrible disease) were something I wanted to give both my children. But "what if" was now in the picture. We researched Movie Boy's vaccinations -- none contained any mercury, by pure stroke of luck they had all been single does vaccinations. Hmmm. He had a brain scan, which indicating a slightly different brain structure consistent with autism. Again, this is not the affect of vaccinations. But the baby in my arms.... what to do? "What if"??

I was lucky to have a very good rapport with the doctors at the military hospital we had our care at -- they had delivered Movie Boy and knew his medical record, at age 5-1/2 was already thicker than those of some disabled career veterans. We knew them, they knew us. They arranged for all single-dose vaccinations for my baby, not so much because they thought it would make a difference but they knew it would help quell my fears. It did.

I continue to keep up with their vaccinations. I insist on mercury free, on principle, but they are up to date on everything. 

I would not line up for measles. I love my son and would not trade him for the measles. Jenny should stop talking for us.

Kat
A smooth sea never made a skillful sailor....

moonfever0 5 pts

I am very happy to hear that you went from vaccinating to not vaccinating due to your autistic son to vaccinating again. You are very brave to look at the facts and not be ruled by emotions.

Angela at mommy bytes ( http://www.mommybytes.com )
BlogHer Contributing Editor in Mommy & Family Cribsheet

LucindaA 5 pts

Finally, a voice of reason.  I have been so frustrated with this movement to not vaccinate children.  People don't see the face of the terrible diseases that had been all but eliminated and are starting to come back.  They didn't live through the time when everyone knew someone who had Polio.  They think "famous"="credible".  Ugh!

I do think we over-vaccinate.  I think the schedule is terrible.  There absolutely is some room for improvement and I wish I had been more aware of my choices when my kids were babies.  BUT, I also believe vaccinations are very important and do not cause autism.  

I also very much appreciate your perspective regarding the focus on the "child he could be" rather than the child he is.  I do think we forget that sometimes.  I'm sorry for your journey but so grateful for your perspective.  Thank you!

jennyalice 5 pts

Thank you so much for placing your head on the chopping block on this one. It is so exhausting to have this conversation all the time. It still comes up with my own family sometimes, though they know how I feel. I'm just hoping for a someday when the collective "we" can focus our energy and our dollars on giving each child the best life we can.

Vaccinatingly Yours-

Jennyalice

www.jennyalice.blogspot.com ( http://www.jennyalice.blogspot.com ) www.CanISitWithYou.org ( http://www.CanISitWithYou.org )

Azucar 5 pts

Sometimes I feel like I'm the only voice of reason out here saying that vaccines are far safer than not vaccinating.

In fact, I get kind of angry at parents who refuse to vaccinate. Look, I did the research too, and not the specious, anecdotal research either, I looked at the peer reviewed studies--and then I *shock* vaccinated my children.

Look, I have no problem with a reduced or spread out vaccine schedule. I'm also OK with waiting a few years, if that's your choice, to find out if newer vaccines are safe in the general population. 

I am not OK with people not vaccinating their children. Get your own vaccinated baby, stop trying to sponge off mine.

Erin Kotecki Vest 5 pts

And will continue to do so, every year, because for me the benefits outweigh any risks. The benefits to my children and the benefits to my community as a whole.

Thanks for this post.

Politics & News Contributing Editor
Queen of Spain ( http://queenofspainblog.com/ )