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Since I spoke so much about this spinal disease I have in my profile, I figured that my first post here would be to let you all know exactly what Adhesive Arachnoiditis is and how you can get it. It's a lot easier than you think, believe me.
First of all, arachnoiditis is, as I said, a spinal disease where the middle layer of your spine, the arachnoid layer, is basically destroyed. This arachnoid layer is where all of your nerve ending in your entire body are housed. They are supposed to be limp and pliable, kind of like spaghetti. With arachnoiditis those nerve endings become tight, brittle and adhere to the walls of the casings, if you will, by scar tissue. This disease causes intractable 24/7 pain. I'm not kidding. The pain from this disease has been described by several in the medical profession as that of a cancer patient but without the relief of death. No, arachnoiditis will not kill you, but it willmake you wish you were dead some days. The pain is unrelenting, non-stop and severe. There is no cure for this disease and the ony treatment known is to treat the pain. Just like a diabetic needs insulin, arach patients need narcotics. many doctors are reluctant to prescribe narcotics.
I promised I was going to let you know who you can get arachnoiditis. Any stick in the spine has the potential for causing arachnoiditis. Let me repeat that. ANY stick, puncture, shot, injection, etc, in the spine has the potential for causing arachnoiditis, especially if the dura is punctured. This means that you can get it from epidural steroid injections, dye that is injected in your spine during a myelogram AND, now listen to this, AND obstretic epidurals, that thousands of women use everyday in childbirth. One question. How many of you haaving a baby were told that the epidural you were going to have during labor could cause an incurable disease? I venture to guess that not ONE of you were told this. Why> Because arachnoiditis, for the most part is a medically induced disease and there is not one person in the medical field is willing to admit that they are causing harm. Of course they don't want to own up to it! Very few medical chools even teach arachnoiditis. Very few doctors will admit to even knowing about it. They like to give it names such as "failed back syndrome" and "chronic pain syndrome." It's neither of those things. It is ADHESIVE ARACHNOIDITIS and IT IS CAUSED BY YOUR DOCTOR!!
I am speaking to the young women of child-bearing age, now. Please listen. Each time you subject yourself to an obstretic epidural you are risking contracting this disease, which, in many cases, can lie dormant for as much as 20 years! And then one day, you wake up and cannot walk. One day you wake up and are in pain so severe you actually comtemplate praying to die. I am not exaggerating, Ladies. I promise you. type arachnoiditis into your search engine and see what you come up with. You'll be amazed.
I want to change policy in the medical field. I want for every doctor who even thinks of using a needle in someone's spine be required by law to let that patient know that he/she is in danger of being crippled for the rest of their lives. I want the medical profession to take responsibility for the thousands and thousands of us who are suffering with this disease. I want for us to be taken seriously and for us all not to have so much trouble getting the pain meds we so desperately need just so that we can have some kind of quality of life.
I guess that's wnough yelling for my very first post here. But look forward to more. Arachnoiditis is a diseaseIi don't plan to shut up about anytime soon. I'm just thrilled that I've found a new place to shout about it.
Until next time....Happy Superbowl.
Go Cardnials!
