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I'm the BlogHer Contributing Editor on parenting children with special needs, and I'm at your service.  I am more than a parent, but with three...
 
 
 
 

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My Son the Top-Secret Apple iPad Project

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I didn't know Leo, my son with autism, would be appearing on the screen behind Steve Jobs at yesterday's Apple iPad special event in San Francisco, not until I saw a screenshot of Leo on Engadget's event liveblog, followed by blogger Joshua Toplosky's remark, "Man this is actually really emotional ... Damn you Apple for making everyone here cry about the iPad."

Then I squealed, disrupting my work conference call. Finally, the top secret project I'd been keeping quiet about for weeks was revealed!

I knew that Leo and I, his sisters, my husband Craig, and our dear friend Jen might be appearing in something filmed and iPad-related in the near future. One month before, a crew of twenty wonderful, thoroughly professional people turned our house into a film set. They spent the day filming our family talking about or showing the iPad's roles in our lives. My tween Iz got to meet a professional makeup artist, and pick her brain for hours. My six-year-old, Mali, had an unlimited supply of potential playmates/victims. It was both fun and fascinating, seeing an experienced film crew in action.

 

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But none of the crew could tell us what the project was for, or when it would launch -- in fact were were asked to keep quiet until the project went public. It was weird, but not unprecedented for the company in question. I didn't mind, as I figured that whatever the project was, it could only more loudly and widely broadcast the iPad's huge positive effects for kids with autism, kids like Leo. (My savvy husband privately predicted exactly what happened -- that Leo would be in a video for a top-level Apple keynote event.)

 

Our Living Room as Film Set

 

It was amusing, keeping mum about the obviously significant event happening at our house -- neighbors kept asking what was happening (possibly worried that we were blighting the street with an ongoing reality show), and one lady even asked if the huge catering spreads and tables at the top of our driveway were so locals could buy food. Poor Leo, his eyes almost popped from their sockets when he discovered the afternoon catering treat table, laden as it was with oversized cookies and candy. I had to ask the catering crew to make it all disappear, otherwise Leo would have spun into a shoot-disrupting sweets-craving tantrum, and most of the shots of him that appeared in the video would not have happened.

 

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The shoot was decidedly Leo-centric. As you may know, and as I've written before in this space, Leo's iPad is an unprecedented positive force in his life. It helps him learn in ways we've never thought possible. We find new apps, new ways to keep him engaged, excited, and interested, every day. The crew knew all about Leo; he was the main reason they were there, and I think they did a lovely job of capturing our boy's iPad enthusiasm and facility.

You can see Leo rocking his iPad and me describing our boy's leaps in independent play and learning in the film crew's final product: a beautifully shot-and-edited video short titled iPad: Year One. (There's a quick bit of Iz playing her piano at 1:20; Leo and I are at 4:40.)

 

Leo's is not the only iPad advocating autism section of the video. Dr. Howard Shane, from Children's Hospital Boston's Center for Communication Enhancement, was also featured in a segment showing groups of children with autism using iPads in clinical and therapeutic settings. Dr. Shane said,

"Assisting children with autism to communicate is a rather complicated process. The iPad is absolutely part of our clinical practice here ... We're not curing Autism, but we're offering a tool that improves the potential of a person with autism: gives them more opportunities to be better communicators, to be better understanders, to be better learners. The iPad is clearly the next step, it's a game changer."*

Oh, and the iPad event included one small agenda item besides iPads and autism: The new iPad2, which will ship March 11. BlogHer's own Virginia DeBolt covered

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Stimey 5 pts

Shannon, this is the coolest. You made me cry. I badly, badly want the iPad2. Badly.

*****

Jean, a.k.a. Stimey, writes at Stimeyland (http://www.stimeyland.com ( http://www.stimeyland.com/ )) on Twitter (as @Stimey ( http://www.twitter.com/Stimey )) and more...

melanie_ching 5 pts

It's hard to write blog comments when you're speechless, this is amazing and wonderful and beautiful.

I saw this post via the newsletter and now am subscribed to your blog and am reading archives. Thanks so much for sharing the story of Leo and your family.

superdumb 5 pts

It's not often that a device can capture the hearts and minds of such a huge number of people. Thanks for sharing your kids' experiences with the rest of us. It shows that the iPad is more than just another gimmicky gadget.

Naomi

http://www.superdumbsupervillain.com/

AmyandJoanne 5 pts

Hi Shannon. That is fantastic for Leo and your family. My sister and I have written a novel I thought you'd be interested in. It's called Wicked Good and we are posting it chapter-by-chapter on BlogHer at amyandjoanne. It's the story of a mother and her adopted son who has aspergers syndrome. It's based on my sister (Amy) and my nephew's life together. Knowing that you must be experiencing both remarkable and difficult times with Leo, I thought you might be interested in our novel. Thanks and congratulations. Sincerely, Jo

Amy and Joanne

www.wickedgoodthebook.blogspot.com ( http://www.wickedgoodthebook.blogspot.com )

jtawnylewis@gmail.com

Shannon Des Roches Rosa 5 pts

Thanks for your kind words, Leo is an inspiration to me, daily. I'm excited aboouot the iPad2, please let us know how your granddaughter takes to hers!

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

First comment didn't stick --

I think we're going to see more and more doors open with our kids, and hopefully for kids with more intense challenges, like Leo. I can't wait to see what technology will enable him to do, and just wish it would hurry up. :)

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Ms. Benita 5 pts

Shannon,

You are a fabulous writer with a gorgeous story. Can't wait to hear how Leo takes to creating and sharing photos through the IPad 2. My granddaughter has gained so much by taking digital pictures.

All the best,
Benita

Shannon Des Roches Rosa 5 pts

Your support & word-spreading is most appreciated. I do so hope that video helps spread the word about this very real way to support kids like Leo.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

I especially love how they managed to catch Leo's smiles.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Thanks Eric. 'Bout time we started talking about the success stories experienced by families like mine, IMHO. :)

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Glad to see folks appreciating our boy! Thanks.

We're proof that you don't always have to buy an iPad -- sometimes contests & raffles work. A thought. Good luck with your debt quest.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

NICURNmama 5 pts

someday...I wish, I hope...y'all know this awesome iPad2 has launched just in time for my birthday, right? I'm just sayin....
seriously, it's exciting to see all the many things this technology can offer us. it is super thrilling to see what it has done for Leo and so many other children living with autism and other disabilities. I get chills just thinking about it. It might seem a bit hokey but I liken it to the day that Annie Sullivan was finally able to get young Helen Keller to sign "water" in Annie's hand. That brilliant, beautiful mind finally had found a key to unlock the door so Helen could come out and how much better this world is because of it! I imagine the same thing with Leo and I love sharing the story of leo and his iPad with people I know.
this surprise was worth the wait.

Fourth Breakfast 5 pts

I've been talking up your original article ever since I read it in June (wow, June? had to look it up. That long ago?). Congrats on the feature! I'm so excited for you, Leo, the fam and kids who will be helped through this!

LoveThatMax 5 pts

I also cried. You and Leo were the most compelling part of that video, and I'd be saying that even if I didn't have the pleasure of already knowing you.

Also, what Jenna says.

Ellen blogs daily at Love That Max ( http://lovethatmax.com ), a blog about kids with special needs who kick butt

Eric Peacock 5 pts

I just got to watch the video. Same old thing (Apple being amazing) until 4 minutes and 40 seconds when your words and Leo's actions shot this piece through the roof emotionally. So awesome!

Nothing like starting my day with a good cry:)

asena 5 pts

That whole thing made cry! Thank you for sharing! if there are families out there wants to get an Ipad but can't afford right now, I just saw this giveaway. Ipad 2 with 50 kids and moms apps http://www.redtri.com/win-an-apple-ipad

Leighbra 5 pts

Apple has never made me cry, until now. Wow. Leo, you're BEAUTIFUL! Keep on shining, beautiful boy!

My heart is so warm right now, Shannon! Still not buying an iPad, this get out of debt in 2011 goal is sucking all the fun out of life. ;)

Shannon Des Roches Rosa 5 pts

The crew were such kind and considerate people, but also very fun.

Can you leave a link to podcast examples? Sounds intriguing. :)

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

She wasn't actually playing the music on the iPad! They let her play Paramore, music she knew well, since the sheet music was brand new (though it was hers, she had downloaded it the week before the shoot completely independently and was learning it on her own). But she wasn't as fluid on the iPad piece, and they weren't recording the audio, so hey.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

We see those new possibilities every day, with every new app Leo loves. Seriously.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

And it was our story! But they edited several hours' worth of footage into *new* story. I was caught by surprise as well. *sniff*

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Can't wait to read all about it -- especially from the perspective of a child several years younger than Leo. Keep us posted.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

My pleasure. It's always nice to hear from you, Sara.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Hurrah! Let us know just how your iPad2 & your child make synergy together.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Leo is quite the guy. I love how much his iPad has helped folks outside our circle recognize that, too.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

Shannon Des Roches Rosa 5 pts

Leo is quite the guy. I love how much his iPad has helped folks outside our circle recognize that, too.

Shannon Des Roches Rosa ThinkingAutismGuide.com ( http://www.thinkingautismguide.com ) | BlogHer.com ( http://www.blogher.com/blog/shannon-des-roches-ros... ) | Squidalicious.com ( http://www.squidalicious.com/ )

lfp72 5 pts

Thank you for bringing awareness through your blog posts and the video at the special event to the impact of these devices on the lives of children with autism. As a special educator I was very happy to see that surprise appearance. I hope it was fun for Leo and the entire family.

Luis Perez
Apple Distinguished Educator
http://mobilelearning4specialneeds.wikispaces.com

PS: Would love to have you on a podcast in the future.

Tippytoes 5 pts

I finally watched the whole thing and it is amazing. It made me cry. Well done! And Iz looks like a pro using the sheet music on the iPad.

miguelina 5 pts

You made me cry. That was beautiful -- the possibilities!

If I'm not here ( http://www.blogher.com/blog/miguelina ), I'm at my blog ( http://www.everydaytreats.com/ ) or on Twitter ( http://twitter.com/miguelina )

Kalyn Denny 5 pts

When you talked about Leo on the video, I was smiling with tears in my eyes.

Kalyn Denny Kalyn's Kitchen ( http://kalynskitchen.blogspot.com )

wantapeanut 5 pts

I've been following Leo's story on your blog and when they announced the new iPad on my birthday, I knew it was meant to be! Can't wait to see hoe my 3 year old with autism does. My daughter is a pro with my iPhone but he doesn't have the fine motor. Can't wait!!

Jen Bush also writes at her personal blog, Anybody Want A Peanut? ( http://www.wantapeanut.com ) You can follow her on Twitter @wantapeanut.

ModaMama 5 pts

With all the unimaginable access to information and technology that lies at our fingertips, a vast majority of the cyber world falls victim to cheap thrills. The ways you and your family are showing others how to utilize this technology is amazing and touching.

Thank you for sharing your family with the world for the good of so many others.

www.SaraInAkko.blogspot.com ( http://www.SaraInAkko.blogspot.com )

Life in the Middle East, with craft and spice

kirida 5 pts

Shannon, thank you for sharing this. It's fascinating to see the behind the scenes filming and the positive effects of the iPad on Leo is such a powerful story. I got especially teary when I saw him smile at the game and when you kissed his head. My heart just swelled.

And yes, I will be getting an iPad 2. The apple products in our house--my iMac and iPhone--have worked wonders for my speech delayed child. The educational apps plus the ease of the Apple platform itself have made this fancy gadgetry truly an educational tool. Plus, it'll be fun for me, too! I can't wait.

Mona
kirida dot com: ( http://www.kirida.com ) an island gal staying out of the rain

JennaHatfield 9 pts

You are awesome. Leo is awesome. Your family is awesome. And now I think even Steve Jobs is just a bit more awesome. Not as awesome as you and yours, but still.

Contributing Editor Jenna Hatfield (@FireMom ( http://twitter.com/FireMom )) blogs at Stop, Drop and Blog ( http://stopdropandblog.com ) and The Chronicles of Munchkin Land ( http://thechroniclesofmunchkinland.com ). She is a freelance writer and photographer.