I Feel It All

Yesterday was one of those days when every little feeling that came floating across my heart was entirely too much. Which is why I ultimately ignored those pesky emotions for a bit and jumped head first into making...more

Hello Monday: Wish Out Loud

Custom today is a miracle cuff from...more

Hello Monday: Root Beer, Glampers, & Kittens. Oh My!

This post was inspired by...more

Love What You've Got

Grief is a tricky beast. Which is one of the reasons why I rarely write about it here. Although perhaps it is time to change that because I'm realizing I still have so much work to do with it all; a never ending battle of faith and endurance ....more

Hello Monday: Goodbye June

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Amaze Yourself

I decided a little while ago to start living the life I wanted. A fantastically crazy concept, right? As simple (and as complicated) as that ....more

Choose Happy

I have been running around basically non-stop all day and as a result, I'm about to fall into bed and promptly asleep the minute my head hits the pillow. However, I miss this space and the words I capture to document this crazy life. Therefore, here I am.When you are living with a disease with no cure, I feel like you have two choices ....more

Some Dreams Shouldn't Have To Wait 5 More Minutes

(A scene from ballet photos last week) We bought a vintage 1971 trailer on Mother's Day! It definitely needed fixing up and we scored such a tremendous deal, which always takes the excitement up about ten thousand notches, right?! It seems like we've been dreaming about doing a glamper project as a family for years now! ...more


{via} Sometimes I receive letters from the NIH in envelopes marked "extremely urgent" with results from blood tests drawn five months ago. (Do you see the irony in this? Ha.) Sometimes I quit drinking Diet Coke for 2 weeks after a horrendous stomach bug, only to start it up again much more intense than before ....more

Through The Blur

"Through the blur, I wondered if I was alone or if other parents felt the same way I did - that everything involving our children was painful in some way. The emotions, whether they were joy, sorrow, love or pride, were so deep and sharp that in the end they left you raw, exposed and yes, in pain. The human heart was not designed to beat outside the human body and yet, each child represented just that - a parent's heart bared, beating forever outside its chest."...more