My Take

I'm often asked what it's like to raise a child with special needs. How do I cope? It must be so hard...It is hard. I worry about Bean's future. How will his symptoms manifest over time? Will he "catch up" developmentally? Will he have a lot of health problems as he ages? Will he have all the resources he needs in school - and beyond? Will he be able to live independently? Will we be able to provide for him financially?...more


I've been spending a lot of time lately thinking about returning to work and with that, I've been thinking a lot about my life in general. Before having kids, I had a pretty clear idea about my interests and ideas. I loved my work. I enjoyed writing, reading and music. I had things that I liked to do and places I liked to go....more

Williams Syndrome Awareness

From day one, I knew there was something different about my youngest son. He's 20-months old now. I spent countless hours researching causes for his symptoms and characteristics: Down syndrome, Noonan Syndrome, 22Q, Fragile X, Autism. None of them made sense.It wasn't until my husband and I first met my son's genetist in January that we first heard of Williams syndrome (WS). His micro array analysis confirmed the diagnosis in February. It was time for me to learn......more