I Cannot Go Back, But I Have Today

My youngest daughter has Down syndrome, and when I say she has blessed my life I’m not simply using a cliche, the significance of those words flow through me along with the blood that runs through my body, giving me life. She has been an agent of change in my heart, she has transformed me. Completely ....more

You Are Not Measured By What You Do But By How You Love

As a special needs parent, I have often wondered if I am doing enough for my child. It doesn’t help when other people in my life seem to have great ideas on how to help my child, or they imply that they would do a better job, or that I’m not doing the best I can as a parent. It doesn’t happen often, but when it does, it feels like a punch to my gut that leaves me gasping for breath ....more

To Parents of Kids With Disabilities: Dream Big!

I did not dance a jig when my daughter’s birth confirmed her suspected diagnosis of Down syndrome. Dancing is for celebration, and I really do wish I had celebrated her birth but I did not know then what I know now. Instead, fear overwhelmed me ....more

If You Only Know One Thing About Children With Disabilities, Know This

Sometimes I forget two of my children have disabilities. My youngest has Down syndrome and although it’s physically obvious, I don’t look at her and think, Down syndrome. I mean, I know she has Down syndrome but I just see her – my daughter – the seven year old that owns my heart ....more

If I knew then what I know now

At first, having a child with a disability seemed like an impossible and daunting job. Looking back at the scared mom I was seven years ago, I wish I knew then what I know now. If I could go back in time, this is what I would say… Dealing with the diagnosis is one of the hardest parts of the journey ....more

Trusting God in the Midst of Trials

Stephen was stoned to death. He trusted in God completely, even as he was being falsely accused, he trusted in God and he still lost his life. My husband preached about Stephen a few Sundays ago and I’ve been thinking about our own family, our own trials, our own suffering, how certain areas of disability impact us and how often I cry out to God to help me, to help our family ....more

Why I’m Writing About Parenthood (the Show)

I’m going to write about a TV show and why I loved it. You might think it has nothing to do with what I write, but I promise you, it does. It’s not often that you sit down to watch a family drama where you identify so intimately with the messy, and hard, and beautiful ....more

Yes, You Can Enjoy Life Again

This is a guest post by Laurie Wallin, author of Get Your Joy Back and Why Your Weirdness Is Wonderful: Embrace Your Quirks and Live Your Strengths “I’m so tired,” she says, looking down at the table, her finger tracing the wood’s grain. “I just don’t know what to do.” I nod. I know that place too ....more

You are Not Alone

In this journey of parenting children with disabilities I have discovered that many of us feel alone: Does anyone understand what it is like to walk in our shoes? Could someone really understand why I feel the way I do? Am I the only one that wrestles feeling like I am not doing enough for my child?...more

If time stopped

Too quickly you are shedding the words “little.” Loosing baby teeth, growing taller, sitting at the piano with great concentration. If time stopped I would hold you tight and breath you in, memorizing every feature of your face, exactly like it is now. If time stopped, our daily talks at night would never have to end ....more