Gratitude for Kindred Autistic Spirits

Yesterday Leo and I went to the Bay Area Day of Mourning for people with disabilities killed by parents and caregivers. We came at the end, because sitting through vigils is not easy, and I figured it was better for us to bear witness in the manner that works best for Leo.And I am going to tell you a little thing that happened there, a small gesture that happened to us among the palpable grief and solidarity that filled the vigil space.Leo was doing his best to be quiet as Alillia Johnson sang Amazing Grace more beautifully than I thought possible. He tried to be quiet ....more

Vaccine Advocates: Don't Discriminate Against My Autistic Son

Image: a fully vaccinated autistic teen boy running towards the camerain a bright orange sandstone canyon Public opinion has turned, sharply and loudly, in favor of supporting vaccines. Yay! It took an outbreak of measles at Disneyland for it to happen ....more

Sir Patrick Stewart on KQED Forum

If you have not heard KQED Forum's interview with Patrick Stewart, you're missing out. Lots of bon mots, wisdom shared, and life long learning conveyed -- as was the role understanding can play in forgiveness. Very touching and funny as hell.Also: Sir Patrick and KQED's Joshua Johnson goofed around a bit in the Forum green room, and it was caught on film ....more

Why Do Autism "Experts" Say Such Awful Things?

“There is no human life that is more sacred than another—every human life is sacred.” - Pope FrancisYou want to break my heart? Show me the latest mainstream media piece about autism written by or featuring quotes from a non-autistic autism expert. Almost without exception, that expert is going to say something that self-righteously dehumanizes, endangers, invokes pity for, or degrades my autistic son. My beloved, delightful, innocent son—who has done nothing to deserve such scorn.Maybe you can understand, now, why my heart never stops breaking. ...more
thumbbelina Yes - those are two i have diigo'd and share wtih others.more

Malaise Managed

We are very, very lucky people. When my windshield started leaking and my car interior flooded, the shop that had replaced the windshield fixed the leak for free. We have had stormy storms for about a week now, so this was excellent news ....more

It's Giving Tuesday: Give a Shot@Life Today

Today is Giving Tuesday, an initiative to remind people that the holiday season is about giving, not just shopping.Ideally, Giving Tuesday is about supporting non-profit organizations. Organizations like Shot@Life, the UN Foundation's global vaccines initiative. An organization that, as a vocal vaccine advocate, I support wholeheartedly.I want to ask you to support Shot@Life today, too.Giving Tuesday is a great day for you to support Shot@Life, because you won't be alone ....more

How My Son Improved His Health & Changed His Risk Factors

Turns out sugar and processed foods really are very bad things. Or, at least they are for my autistic teenage son. Eliminating those foods (mostly) from his diet was a big part in Leo going from being at high risk for type II diabetes, pancreatitis, and heart disease just a year ago, to him having none of those risk factors at all today. ...more

Fourteen in '14

Leo was born in 2000, so his birthday age will always match the year. Convenient, that, for those of us who take a few moments to remember our own age. Doesn't make it any less shocking that our boy is fourteen ....more

In Search of Superego Style Food

Fettucine with smoked salmon & vodka cream sauce.[Image: a pile of flat noodles topped by chunky redsauce, in a beige bowl with black curlicue accents] I am not a great cook. But I am really good at making food that I really like to eat. As you might suspect, this can be a problem ....more

Mourning and Advocating for Autistic Murder Victim London McCabe

You have probably heard that London McCabe, a six-year-old autistic boy, has been murdered by his mother. I want you to stop and remember that sweet boy, think about his utter terror as he was killed by the person he should have been able to trust the most in this world. I want you to mourn his loss ....more