The New York Times and Stephanie Saul: Infertility! Twins! Danger!
by Melissa Ford

Getting beyond the fact that I usually start twitching when someone sends me something from the New York Times, all the more violently when the byline comes from Stephanie Saul who insists that it's a good idea to use the wrong terminology when discussing fertility treatments, I couldn't help but read the series of articles about multiple births and fertility treatments.

Unlike others, I did not bother to click on the accompanying comments because I am familiar enough with the New York Times to know that nothing good can come of reading the opinions of people who see nothing wrong with the fact that their newspaper is wrongly using the term implant in regards to embryos.

You can't argue with the meat of the articles, the first of which can be boiled down to the thesis that multiples increase the risk of prematurity, and therefore, protocols should be in place to discourage practices that would lead to a higher chance of multiples. A pretty sound idea. The second article covers the topic of selective reduction and how IUIs lead to higher order multiples because there is less control than IVF. Again, no one can dispute that fact. A third roundtable discussion covers again the problem with multiple births.

Of course these articles were of interest to me as a mother of twins who were conceived with the help of fertility treatments. They were delivered seven weeks prematurely when they stopped growing in-utero and there was deeply discordant growth. They spent three weeks in the NICU and have been generally healthy with some lingering problems of prematurity. Obviously, I'm one of the target audiences for these articles and you would think that I would have nodded my head a bit more since they do bring up tangentially ideas that I firmly believe.

But the problem begins with the fact that Saul never convinces me that she wants to hold a frank discussion, working together via journalism to solve the problem of multiple births and prematurity in regards to fertility treatments. Instead, the language used, the stories told, and the facts addressed all point to the fact that Saul never closely examines the solutions, instead choosing to only address the problems--and missing the point entirely in the process.

Instead of focusing on reasons why people would risk the transfer of multiple embryos, practicing sound journalism where she would interview numerous subjects and utilize their words to present the story, Saul jumps to conclusions: "patients are eager for children" and they want "to be successful on the first try." But rather than state the real reason why women wouldn't want to undergo more fertility treatments than necessary--money and physical pain--time is given as a factor.

Anyone who has paid out of pocket for a chance to conceive knows that there are two main reasons why people take risks with treatments and they are very closely aligned to the reason why people take risks with any medical treatment--especially one that is tied to quality of life. First and foremost, the exorbitant cost of treatments--mostly uncovered by insurance--goes towards a chance rather than a child. Few have the ability to do treatments until they work. Most need to take risks in order to feasibly pay the high price of family building (and for the love, before you suggest adoption, please first understand the cost of adoption and why it isn't a solution to infertility but instead a wonderful, separate family building option).

Secondly, anyone who has been on the receiving end of a needle knows that you try to complete as few cycles as possible to conceive both due to the physical discomfort associated with treatments as well as the overall health risks that can come from doing treatments. There are times when the risks of prematurity and multiples balances out the risks of doing multiple treatments for both the woman's mental and physical health.

Saul reveals her bias early on (as if she hasn't already done so in the past with her other articles concerning infertility), calling it the "fertility industry," a term used by others to greater impact because it is backed by ideas rather than used unsupported as a slur. We don't call it the cancer industry, implying that people are being churned through like cans of creamed corn or automobile parts. We don't imply that people are being moved through the medical factories mindlessly like just another object if they treat a health issue such as breast cancer. We don't call it the obstetric industry even though we all know the statistics on unnecessary c-sections. The term is as paternalistic as the practices the terms evokes, as if women and men do not have the mental capacity to think for themselves and be careful health consumers.

One of the real financial problems of infertility and prematurity was barely addressed at all in the articles and it serves as the white elephant in the room: if insurance companies covered the cost of treatments, they would save on the back-end in the cost of NICU stays. You would get more people to accept eSET (elective single embryo transfer) or to cancel IUI cycles when too many follicles are made if they knew that they had another chance financial-wise to cycle again.

This has long been the point made by Resolve, the national infertility organization aimed at providing infertility education, lobbying lawmakers, and extending support to those experiencing infertility. It's an organization that has been working hard for actual change as America reexamines health care, lobbying lawmakers for support of two bills that would require insurance companies to cover fertility treatments. In other words, it is asking America to put their money where their mouth is--either we value the health of women and children and want them to make sound decisions about family building or we don't. Either we believe that family building is an important endeavour or we don't.

It is a bit disturbing that an organization that has been at the forefront of infertility education wasn't quoted in the article. She refers to the fertility industry, yet never ventures outside of a small circle of "factory owners" to broach those who would receive no financial gain or loss by having changes to treatment protocols.

And for the love, it is a fertility doctor--Robert Stillman--who brings actual sense to this discussion with his participation in the treatment roundtable, giving concrete steps one could take to solve the problem rather than stand in the wings like Stephanie Saul, starting the horror movie music in the background as she writes such fear-inducing lines such as "an exploration of the fertility industry reveals that the success comes with a price."

She takes extreme examples--a woman with two follicles that split into sextuplets (seriously, Saul, I thought I was going to go into convulsions from your misuse of implant and transfer, but when you stated that the doctor saw "two developing eggs" on the ultrasound screen, I think I literally started foaming at the mouth)--a situation that the doctor had never seen in 30 years of practice--and hold it up as your IUI example. It would be like examining IVF solely through the lens of Nadya Suleman--which...er...I forgot...you already did that a few months ago.

Saul's sole mention of the solution is buried towards the bottom of the first article: create programs that make it financially feasible to perform single embryo transfers. And instead of exploring that option in the second article, Saul chooses to wax on about the dangers of IUI, instead pointing out how much more controlled IVF is (and it is, but that never was made clear in Saul's first article) in terms of limiting multiples. She gives solutions short-shrift. Which makes me question the point of these articles. Is it to raise questions that require answers? Push society to examine where we place family building on our emotional continuum? Seek solutions to what she deems a pressing enough problem to warrant multiple articles?

At the end of the day, it comes down to money and overall health--physically and emotionally. Make treatments financially feasible and people would make different decisions. Create programs where embryo freezing is free for those who elect to transfer one embryo and you'd have more people take advantage of the program. Make future transfers free as well and you'd have incentive to lean towards eSET over multiple embryos, especially when drug intake in future cycles can be curbed.

When I taught eighth grade and my students would negate their own thesis within the paper, I would circle the sloppy writing and point out the mistake and send back the assignment to be rewritten. And it sort of sucks that I'm not Stephanie Saul's teacher because I would have given her a second chance to make a strong case. And as is, the New York Times again is the proprietor of what essentially amounts to verbal Wonder Bread--no substance, no mental nutrition, and mostly air taking up valuable space that could have been filled with useful argument.

Others twitching over Saul's articles:

A Little Pregnant unfortunately read the comments, but still was able to get off the floor and respond to Saul's articles as well as the roundtable discussion.

Tubeless in Seattle, normally a supporter of health articles in the Times stated that she and her husband were "indignant at the tone of the article and incredulous over the claims it makes."

Our Stork Isn't Great with Directions points out what is missing in these articles.

Melissa is the author of the infertility and pregnancy loss blog, Stirrup Queens and Sperm Palace Jesters. She keeps a categorized blogroll of over 2000 infertility blogs and writes the daily Lost and Found and Connections Abound, a news source for the infertility blogosphere. Her infertility book, Navigating the Land of If, is currently on bookshelves (May, 2009). She also runs Blogger Bingo--an online cross-community game.

Comments

 

From the mom of a 27 weeker

I come at this from a slightly different perspective; my focus is primarily on the prematurity angle as opposed to the fertility treatment angle.  After a myomectomy (surgery to remove fibroids), our RE gave us a year to try to conceive before we'd start IUIs.  A month before we would have started treatment, I did conceive.  Our daughter was born 13 weeks premature b/c of an infection (chorioamniitis).

What strikes me about the NYT pieces (I've only read the first one so far; that was disturbing enough) and other pieces I've read is that prematurity is always the mother's (or parents') fault.  Couples get "obsessed" (quote from Saul's first piece--how offensive!!!!!) and irresponsibily pursue treatments, willy-nilly knocking themselves up, having litters.  Women don't get proper prenatal care and that's what causes prematurity.  Women don't take care of themselves.  Women are uneducated.  Even the March of Dimes, which purports to be an advocate for all women and babies plays the blame game.  All media points to premature as either a mystery or something the woman did wrong, and it makes me crazy. 

What about the women with pre-eclampsia?  HELLP?  Chorioamniitis?    If these were addressed, if fertility problems were addressed instead of minimized, instead of being sources of scorn and blame, prematurity would NOT be the problem that it is.  But as usual, people want to blame the woman.

Patience is a virtue that takes too long

 

Three cheers to that

It's such a dangerous message especially with the stress and blame it places on the woman, but it also presents a false idea to the greater world.  We can't eradicate prematurity because we're talking about an umbrella term addressing a host of situations--some treatable and some not.

Venting about infertility since 2006 www.stirrup-queens.com and we're not talkin' cowgirls...

 

On the Inside

Melissa,

Thank you for this beautiful review of a very disturbing article. I can't begin to tell you how I feel when I picked up my Sunday NYT to see the photo of two sanguine babies so small, they fit in sand buckets (They were actually placed in these buckets for their photo!). The paper lay on my kitchen table for 3 days before I willed myself to read it. My husband and I are taking a month break from IVF after two consecutive miscarriages. What bothered me about the article was that it truly felt as if it was scribed by someone on the "outside" of this experience. For those of us on this journey, it pains me to see such indifference and lack of opposing viewpoints in such a front page article. Saul makes it appear as if every Doctor and clinic's focus lies solely on churning out babies and ensuring the success of their practice. She insinuates that reputable clinics avoid proper protocall and compromise the safety of their patients in order to "meet numbers" and draw new clients to their practice. While this may be the case in some clinics, I think it is a broad, sweeping exaggeration to say that is the motivating factor of every RE.

In my experiences with IUI and IVF, I have never encountered such pressure, or lack of regard for my overall well being. 

I wish the article would have offered a more balanced perspective and Saul would have interviewed others in the Medical profession who's purpose and attitude differed from her own.

Thank you so much for your perspective, and for letting me share mine.

Michele

http://romancingthestone.wordpress.com

http://veggievixen.wordpress.com

 

I missed the accompanying

I missed the accompanying picture.  The term fertility industry conjured up something sinister.  And as you say, there are some clinics and doctors who fit this description, but it can't be a blanket term used to cover every clinic and doctor.

Venting about infertility since 2006 www.stirrup-queens.com and we're not talkin' cowgirls...

 

I agree

I read the first article in the series about two days before my second IUI upon starting treatments again after loss. It put me in a terrible state of mind (or rather, it didn't help, as I was already struggling). I *hated* this article, I think my favorite line was "couples become obsessed..." like we walk around bug-eyed, about to steal a baby -- any baby, or embryo -- just so we have the chance to be parents. 

Something I recall about my twin pregnancy (and loss) was that no doctor *really* emphasized how high risk my situation really was.  Oh, you have to be careful. The nausea will be bad. You have to go on pelvic rest at 24 weeks, you will probably deliver a few weeks early.  Three or four days before my loss, my OB was prepared to let me fly 1000 miles to attend a funeral. If someone, anyone had said to me, "Listen, this is serious," I would probably have had a much different experience overall, loss or not.  Women (and couples) are casual about twins because we are led to believe they are common and safe pregnancies.  The implication in this article that women are careless in pursuit of family making is insulting. The popular belief that you can always have a child, don't worry about waiting contributes to this, as does the popular notion that if you can't get pregnant on your own, it must be because you don't want it, or you are just not meant to be a mother.

I chose not to read the comments, too. It's really upsetting that such a highly esteemed publication like the NY Times can't be bothered to get the information right -- or pretends to be "objective" (whatever that is), when it clearly is not.

Sorry to rant.  Feeling like this is everywhere right now.

Thanks for writing this.  As always, you rock, Mel.

Sue

http://sodearandyetsofar.blogspot.com

 

Oh no, rant away.  The

Oh no, rant away.  The articles, after all, made me twitch.  Especially the idea that we're all just willing to take any risk in the world (for ourselves and for the children) just because we're obsessed.

Venting about infertility since 2006 www.stirrup-queens.com and we're not talkin' cowgirls...

 

Obsession? What?

Mel you made excellent points here.

My sons were born at 36 2 weeks and did not stay in the NICU.  We were very lucky for that.

I can tell you two things:  "why don't you just adopt" sickens me.  It basically costs the same to adopt (excepting DSS adoptions) as it does surrogacy and infertility treatments, especially in the Northeast, where it is nearly impossible to domestically adopt.  There are literally no infants available.  Second:  Using the word "obsessed" with regard to family building sickens me.  At no time, would my DH or I do "anything it took" to create a family.  We tried various routes.  We never coerced nor begged our surrogate to take the fertility meds that created our twins after many rounds of unsuccessful clinical IUIs.  Our RE was ethical.  My sons are a blessing.  We would have NEVER done anything unethical at all in regards to building our family. 

We would have accepted, had our surrogate not concieved, and tried to live with it.  We would, had we resorted to IVF with her eggs (which was the next step had we not been successful with the IUIs finally) have only transferred two embryos.

I am an identical twin.  I was born 2 months early and weighed 4 lbs at birth.  I was in an incubator for a month before I was released into my mother's arms.  My twin went home after a week.  We were born in the 60s.  Now a 4 pounder is considered a heavyweight and usually goes home if there is no NICU stay.

I have had no residual issues stemming from my premature birth, at all.  I was a good student and my health was really excellent, except for my reproductive system.  I never missed a day of school, my entire elementary school years.  As I grew older and started having issues w/my repro system (cysts and all), I missed school in High School but you can't blame prematurity on that.

Ugh.  Obsessed.  That word, coupled with infertility -- implies unethical behavior that really isn't the reality for those of us who are infertile.  That article bothered me terribly.  Glad you wrote this.

 

 

Half of a Duo, Raising a Duo

http://micrimas.blogspot.com