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“Life changes fast. Life changes in the instant. You sit down to dinner and life as you know it ends." –Joan Didion, The Year of Magical Thi...
 
 
 
 

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On Becoming Fearless: Confronting the pain of Widowhood to make a Difference.

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After a seven-year battle with Acute Lymphocytic Leukemia, I was forced to confront my own worst fear as my husband, high school sweetheart, and best friend passed away on March 17 of this year. The following is my last letter to him, originally posted at cancer. it's not just an astrological sign anymore this spring.

12.4.06
if the internet exists in heaven...

Dear Sweetie,

I am so sorry that this happened. I have replayed the events of 17 March over and over in my head--and each time that I trace back through that day, I see another omen that I carelessly dismissed. I see more and more choices that I could have made differently that day. Would you still be alive if I had insisted on further examination at Johns Hopkins on 16 March? Would you still be with me if I had left work early on the seventeenth, or not gone at all? Would you have died a more comfortable death if I had been there when it happened?

The fact of the matter is that you and I were both coming to terms with the cold truth that we probably weren't going to grow old together. After the damn, fucking leukemia came back for the last and final time, there was a sea change in your demeanor...not as if you had given up your fight, but as if you acknowledged death as a possibility and were no longer afraid or angry. The last Saturday of your life, when we were at the mall with my sister and her fiance, we were sitting on the bench and saw that adorable elderly couple clutching each others' hands, slowly shuffling their way through the crowd...I looked at you and said (as I had so many times before) "That's us. That will be us in fifty years." But this time, your response was different. Instead of smiling sweetly and saying, "I can't wait, babe," you gazed off in the distance and said, "I don't know, babe. I'll try." The words terrified me at once, and continue to haunt me...did you know that the end was near?

I miss you so much--as do many others. That goes without saying. But losing a spouse is different than losing an adult son, a brother, or a nephew. You and I were a team, every day and in every way. Every small life event, the errands, driving, sitting at my desk, brings back a floodlight of memories. I miss your physicality, your sense of humor, the way that you used to sing in the shower when you were having a good morning. I miss the hair on your chest and the warmth of your hands. I even miss your snoring--you could snore every night, all night if it meant that you were back with me.

Throughout the transplant and your leukemia treatment, occasionally my mind would slip to that darkest of possibilities. I must confess, the reason why we went out last July and spent $200 (that we didn't really have) at one of DC's best steakhouses for your birthday was that if your twenty-fourth was your last, I wanted it to be a damn memorable and enjoyable one. We talked often about living life to the fullest so that when our time came we could go without regret.

Even though we thought we had prepared for this by filling out our living wills and discussing final wishes a bit, there is nothing that can prepare you for losing the love of your life. I want you to know that. I never thought that I would be "okay" if you passed--but no one tells you that grief will strike you so hard it will quite literally drive you crazy. There are whole large segments of time during the week immediately following your death that I simply have no memory of. I have been in the car, driving about for errands and thought that I was in one town when I was actually in another (this is quite frustrating when one is looking for a particular business). Sometimes when I read, I see words on the page that are not there--a second examination reveals that they were only a trick of the eye, but at first glance words like "Eric," "Oahu," "love," and "cancer" are typewritten onto the page as plain as day. There is also a part of my brain which (quite illogically) believes that you'll be back for me. I haven't been able to shut off your cell phone yet, for fear

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kelliede71 5 pts

While I believe that research and funding for all sorts of cancer research is an important and worthwhile thing, I truly believe that some are sorely neglected. They're not the 'popular' forms of cancer. (If such a nasty thing can be 'popular'.

Sending you warmest thoughts and well wishes as you continue to follow the path in front of you. And the deepest thanks and support for your activism in making the 'lesser known evils' that much more known.

Thank you.

When I dare to be powerful, to use my strength in the service of my vision, then it becomes less and less important whether I am afraid. ~~ Audre Lorde

Sorting Thoughts ( http://www.sortingthoughts.us/wp/ )

Tanilan 5 pts

Amanda,

I am so glad you have come back. The "Better Place" thing annoys me too. When my sisters died in 1992, I was so angry when people would say that. And when my father-in-law passed away last year, I just didn't want to hear it. So to simplify "I'm sorry"...I send you a big gigantic hug.

Deaf Mom 5 pts

I'm sorry for the loss of your best friend/husband. My husband lost his close friend to cancer a few years ago and there's still a big hole in his heart for his friend...

Karen
"Life is too short to pout all the time."
A Deaf Mom Shares Her World ( http://www.putzworld.blogspot.com )

Elana Centor 5 pts

You touched my heart and I know everyone else's who is luck enough to read this post.

elana
Blogher Contributing Editor,Business&CareersFunnyBusiness ( http://funnybusiness.typepad.com/funnybusiness )

CityMama 5 pts

I'm sorry. And, thank you.

Stefania Pomponi Butler
Contributing Editor, Arts & Entertainment, BlogHer

I blog:
CityMama ( http://citymama.typepad.com )
Kimchi Mamas ( http://kimchimamas.typepad.com )
Family F ( http://citymama.typepad.com/cityfood )

Amanda 5 pts

Thank you for the positive comments. If I've learned anything from this, a sincere "I'm Sorry" goes a lot further towards comforting a grieving person than do comments such as, "He's in a better place now," "this was God's Plan," or "At least you had x number of years with him."

If only people would realize this...definitely falls under the KISS principle (Keep It Simple, Stupid!!)

--Amanda
Amanda Shaffer, Blogher Health and Wellness Contributing Editor ( http://www.blogher.com )

The Adventures of Cat Lady. ( http://the-cat-lady.com )

Mir Kamin 6 pts

Amanda,

1) I am so sorry for your loss.

2) I believe you can and will make a difference, which in no way justifies what you've been through, but is, at least, a Good Thing in spite of it.

3) Thank you for sharing this.

Mir

--
Mir from WCS
(BlogHer Mommy & Family contributing editor)

Personal: Woulda Coulda Shoulda ( http://wouldashoulda.com/ )

Having it all with less: Want Not ( http://wantnot.net/ )

Annie Dennison 5 pts

Amanda, I'm deeply sorry that this happened to you, and to him. Please know that your writing has raised my awareness of some important things today.

Robyn Tippins 5 pts

And now, for the second time today, I'm crying in a coffee shop.

I'm so sorry for you. Thanks for sharing your story. I hope it helped you (I know it helped me).

( http://feeds.feedburner.com/sleepyblogger/Rjxs )

Caffeinated Librarian 5 pts

I'm so glad that you have found your way to BlogHer and to hear that you are still fighting. I've said it before on your old site, but I am very sorry for both his pain and your loss.

I hope that whenever you finish the materials for young widows and widowers that you will provide info about it somewhere online. I know someone who at the age of 30 lost his wife due to a variety of long-term illnesses that she had been fighting for about eight years. I suspect he has dealt with many of the misconceptions and lack of information that you mention here and, most of all, I think it would be helpful for him to know that he's not alone.

Thanks and take care,

-CL

The Caffeinated Librarian [Blogger] ( http://caffeinatedlibrarian.blogspot.com/ )

The Caffeinated Librarian [MSN] ( http://caffeinatedlibrarian.spaces.live.com/ )