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GLBT Health - AIDS/HIV isn't the only issue

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Several years ago I was talking to some heterosexual friends about the need for more health information and support for GLBT people because there was very little accurate info out there and even less support. They looked at me blankly. "But there's all sorts of HIV and AIDS info and support. What do you mean there isn't any information or support?" Let me fill you in on a secret, if a lesbian wants to talk to you about GLBT health issues it's pretty likely that HIV/AIDS doesn't make her Top 5 list. HIV/AIDs is important to us but it's not the only issue. I'll tell you a story or three, just to give you an idea of what my friends and I have experienced...

The very first time I really understood "homophobia in healthcare" was when my online friend, "Ky", was diagnosed with Non-Hodgkin's Lymphoma. She was being treated at a Catholic hospital in Oregon and the only way her partner was allowed in during "non-visiting hours" was if she was listed as immediate family. Neither "Ky" or her partner wanted people to think they were sisters, YUK. So they lied on the forms and said that "A" was her cousin. For several years "Ky" fought this illness and all of the way through it, they had to lie. When "Ky" died, they were still lying, though some staff members had figured it out by then. The idea that they lied their way through years of chemo and lied their way through death... this still haunts me.

And then, there's my friend "S" who was really excited and happy about her new relationship. She and her new g/f decided that it was important to both of them that they take their relationship to the next level with a clean bill of health, so they headed to their respective doctors for a check up that included STD and HIV testing. "S" visited a clinic in England and when she explained the reason for her visit, her doctor asked about birth control. "S" explained that she was going to be having sex with a woman, so that wasn't necessary. The doctor clicked his tongue, carried on without another word and all was fine until "S" was about to leave. The doctor asked her to wait while he rummaged around in a cabinet. Then, with a very large smile on his face, presented her with condoms, sample birth control pills and a supply of "the morning after pill". When she said again that she didn't need those, he laughed out loud and said women always change their mind, especially pretty women like her... the right man would come along.

My own personal experience with homophobia in healthcare has been pretty insignificant, relatively speaking. My g/f has a chronic illness and it has caused her to be hospitalized a couple of times over the last few years. Sometimes it is amusing to be asked if I am TW's mother (I am six years older than she is) or her sister or her "friend". Sometimes it isn't amusing at all. It isn't amusing when you explain that this very sick person who you love and are worried about is your partner and that expression comes over a nurse's face or a doctor's face, the one that lets you know right away how they REALLY feel about you. That expression, no matter how rarely it is seen, can leave you wondering about the quality of care that's about to be provided and it's always in the back of your mind the next time you seek care. You simply never know when you're going to see that expression cross someone's face.

Here are some links to information that can help you understand some of the health issues facing GLBT people:

This month I'll be posting a lot about GLBT health, AIDs/HIV isn't the only issue we live with, not by a long shot.

~~Denise
Daily Dose of Denise

image credit: GLBT Healthcare Access

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mipmup 5 pts

i can't even imagine how frustrating it must be to weave through such bias to receive health care. thanks for sharing this.
. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
mipmup ( http://www.mipmup.com ).

paulag01 5 pts

Thanks for writing about all these issues. It's funny but as more and more people accept our relationship for what it is, people tend to forget the little devil in the details that you mention in your post. For instance - being able to be with your partner if they need medical care. Even with a medical power of attorney, I still worry and wonder how the HCPs would treat us if one of us were to be in an accident or need to be hospitalized. Not to mention, actually having the medical power of attorney with you when you need it.

I've been fortunate so far with my providers as they've accepted both me and my g/f pretty openly. It's the unknown in a stressful time (of illness or injury) that makes me worry.

I look forward to reading more of your posts on this topc this month.

Thanks!
-Paula
http://www.coaching4lesbians.com

DanaFiles 5 pts

UGH! That whole clomid thing....I feel ya on that. When I was 20 my period stopped for 18 months. Just stopped. The doctors told me nothing was wrong with me. I had all these tests done and no one had any answers. So my ob/gyn prescribed progesterone and sure I got a period, but I didn't ovulate. Years go by, I get married, I want to have kids and my doctor tells me that I should take birth control pills to restore ovulations. Did you read that right? I know. Baffled me, too. I want to have a child, so I should take BC to ovulate....and then what? I went to another doctor who prescribed clomid to me. I took it faithfully for a year. No pregnancy. Finally, I was so depressed and out of money (insurance won't cover for fertility drugs)...I just didn't care about kids anymore. So I started relieving the depression by hardcore working out and I did the Atkins diet. Three months later, I was pregnant. Dr. Clomid said, "Oh, I see the pill worked?" Umm no. I stopped taking them three months ago. So he says, "Oh. So you lost 30 pounds, that will do it." I was floored. Perhaps I should have done the strict diet and army exercise regime a year ago, but Dr. Clomid told me I HAD to take the drugs. So anyway.....I think some health care provider's in genaral are just lazy. They provide half arse service.

Sorry for the rambling rant. :) I got a bit carried away. And probably off topic.

puppybraille 5 pts

Please keep sharing the real concerns of the GLBT community! I wasn't really exposed to anything more than media hype when I was younger. I didn't start to learn the truth about issues like this until this year. We need more people who are committed to telling the real stories.
Blog/ramblings/journal:
htp://www.nickiesnook.com

Debra Roby 5 pts

Jeez, I thought I was your hero for my dry sense of humor and stunning beauty!! Now I find it's my penurious nature and sense of personal responsibility. That makes me feel better.

Debra
A Stitch In Time ( http://astitchintime.blogspot.com )
Simple Still Life ( http://simplestilllife.blogspot.com )

Lisa Stone 6 pts

...for this quote:

I told them I'd consent to the tests ONLY if they paid for them. They demurred.

Because *that* is the nightmare of the self-employed female. The medical establishment is quick not to listen - and just as quick to bill for services we said we didn't want or didn't consent to.

The $$$ is their weak point. Last summer my son had in-patient surgery to remove birthmarks because skin cancer runs in my family. The day before the surgery I was still being told that my son's doctor wasn't on the list of approved surgeons, even though he'd practiced there for 10 years. So I called the doc and told his assistant why I was cancelling the $8k procedure. He called me back - and the insurance company had a special letter of permission on my fax that hour.

But they got me in the end - turns out they don't program the anesthesiologist until the day of. I was assured that they were all house docs. In the end, my son's wasn't - he was a summer doc on a special program. There went a four-figure check. Nightmare.

So Debra, I'm putting your idea on the top of my list of ways to protect my wallet - while I'm trying to take care of the family health too.

Lisa Stone
BlogHer Co-founder ( http://www.blogher.com/member/lisa-stone )
Surfette ( http://surfette.typepad.com )

Debra Roby 5 pts

I've had two doctors order these tests before doing x-rays, with a personal history that said I'd had my tubes tied. (actually tied, cut and cauterized if I recall). I told them I'd consent to the tests ONLY if they paid for them. They demurred.

I also had a gyno ask me if I wanted to reverse the procedure. She couldn't imagine that I actually chose to be sterile.

Debra
A Stitch In Time ( http://astitchintime.blogspot.com )
Simple Still Life ( http://simplestilllife.blogspot.com )

Denise 11 pts moderator

I completely agree, there are questions that should be asked by caregivers. I've got no issue there. If you listen to the audio that I linked, a doctor giving the talk suggests changing the way caregivers phrase their questions to help put GLBT folks at ease. And once you've got the answers, knowing which follow ups are and are not important or applicable.

I don't get mad or even annoyed until caregivers don't respect the answers and information they're given. Like asking you if you're pregnant - duh. Or like pushing birth control on a lesbian.

~Denise
Daily Dose of Denise ( http://flamingohouse.blogs.com )

Denise 11 pts moderator

That's a really good point, you have to know the answers because your health professionals don't. Very good point.

Good luck with your insemination... let us know when you get the positive pregnancy test! I love babies!

~Denise
Daily Dose of Denise ( http://flamingohouse.blogs.com )

Melody 5 pts

I'm a lesbian who's trying to get pregnant. I've chosen to go with an in-the-doctor's office insemination using donor sperm, and nobody asks me the right questions. I have to know everything b/c all of the nurses assume I'm getting inseminated with my husband's sperm and that I have fertility problems.

For instance, a nurse blew me off when I called and said I wanted to get inseminated a day earlier than planned b/c I was having ovulation-related bleeding, assuming that I was taking Clomid for fertility problems and that the Clomid was causing the bleeding. I'm not taking Clomid because I don't have a fertility problem. Just because you're getting inseminated does not mean you need to take Clomid. In fact, the doctor wanted to prescribe it because she always prescribes it to people who want to artificially inseminate-- even though I DID NOT NEED HELP OVULATING! Nevermind that I'm sitting there holding my faithfully kept charts showing a consistent ovulation pattern for the last six months.

Also, when I questioned the insemination schedule, the nurses told me that sperm lives 72 hours. Frozen sperm only lives 24. They didn't know this because they rarely inseminate using donor sperm. They almost always work with fresh.

And this is a liberal accepting doctor I'm working with. I explored the procedure with one doctor's office and was told by the nurse there that they had an office policy not to inseminate unmarried women.

DanaFiles 5 pts

I live in a town with a population of 25,000 people. The hospital is a Catholic Hospital with a clinic annexed. When I went to the hospital emergency room for an allergic reaction to a medication given to me for pre-eclampsia (I was 7 months pregnant) the nurse was checking my vitals and asked me if I was pregnant. I just about flipped. I said, "Do you not see this basketball attached to my waist?" and she replied "I am required by law to ask these questions and I'd appreciate your answer."

I was baffled, but now I see it to the point that one shouldn't assume someone's sexual orientation so they have to ask the questions anyway. But that doctor who gave your friend BC anyway?? That's complete BS.

Denise 11 pts moderator

It's always amusing to hear the hospital staff and office staff ask TW if she could be pregnant. It makes us laugh a lot because we have this whole immaculate conception schtik we do around here.

Luckily, nobody has insisted on such a test - what a waste of time, manpower and money, ya know?

~Denise
Daily Dose of Denise ( http://flamingohouse.blogs.com )

Mir Kamin 6 pts

And I thought it was bad when hospital staff insisted that they HAD to give me a pregnancy test, because I COULD be pregnant... after my hysterectomy. :P

I'm so sorry that you and others have to wade through that kind of bigotry, Denise. How frustrating.

--
Mir from WCS
(BlogHer Mommy & Family contributing editor)

Personal: Woulda Coulda Shoulda ( http://wouldashoulda.com/ )

At Ty's Toy Box: Listen to your Mommy! ( http://tystoyboxblog.com/ )