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I have this calendar on my desktop that shows all sorts of "holidays". Some of them are silly and some of them are serious. July is apparently National Hemochromatosis Awareness Month. I don't know much about it and this holiday gives me a good reason to learn more.
Excess iron, to put it simply. A hereditary condition that causes your body not to be able to handle dietary iron properly. Now that we've got the basics down, on to the blogs!
Evvy Garrett is a writer and a poet and she has Hemochromatosis. She also has a blog.
Today I finally found the strength to shower, order some groceries for delivery tomorrow, and get on the computer to bitch and moan to cyberpals a bit. This was all done between a lot of sitting and napping.
Though in reality, I am at that 'weepy' stage of stress recovery and am just feeling that I would like to get off this merry-go-round.
All this stuff is so hard to do when you live alone, when you do not even have anyone close by (or far away for that matter) that gives a damn. The only person who will make you a cuppa or hand you a Tylenol, or feed the cats, is you...
Nicki just got a diagnosis and some people appreciate the little perks of the condition.
Supposedly one of the rare, but true side-effects of having Hemochromatosis is sometimes, you have so much iron in your body, you can set off alarms in airports. Brent considers this a perk. Well, I know it is not an airport, but at Barnes and Nobles yesterday, I walked thru the doors and set off the alarm. You know how you feel when that happens, you feel a little embarrassed. Brent was urging me to do it again. He loved that perk of the disorder most.
Josh shares his feelings about his health and his fight...
I haven’t just come out and said this, because it’s still a bit tender. . My hemochromatosis cannot be treated at this time. At first glance, my Doc and I thought everything would be okay, but it isn’t- and I’m facing the fight of my life.
I choose to fight- just not in the conventional way. I’m loving myself through this. I might die, I might not. I DO know, though, I WON’T die before my body stops breathing.
Trent and Martha and Harry share information about Neonatal Hemochromatosis and share their daughter, Ellen with us.
It took three months for the results of Ellen’s autopsy to be reported back to us. This seemed like an eternity as the desire to have another baby pulled at our heartstrings in an almost unbearable way. The results of the autopsy were very confusing to us. No one had ever heard of Neonatal Hemochromatosis, what was the cause of this strange problem that had taken our little girl away from us? Could this be a misdiagnosis?
Go surf those blogs and please feel free to post any links to sites or blogs about Hemochromatosis or Neonatal Hemochromatosis.
~Denise
Daily Dose of Denise and Fast Times @ Homeschool High
Image Credit: The Liver Centre
