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Cancer Snobbery

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I want to share with you part of a conversation I have quite regularly. It usually begins when someone says to me, "Did you hear, such-and-such has cancer. Isn't it terrible?" and I might say something like,"I heard. Did you know I had cancer?" "Oh really? When was that?" "In July 2003." "Oh my God. Are you all right now?" "Yes, thanks, I am." "Did you have treatment?" "Chemotherapy and radiotherapy." "Wow, and you have how many children?" "Four." "Oh, that's awful. I can't believe it." And then, the inevitable. "And which breast was it in? Did you have to have a mastectomy? Do you have a prosthesis?" "Well, no, actually, it wasn't breast cancer." Blank expression. "Oh.......really?" Because everyone knows; the only cancer women get is breast cancer, right?


Cancer cells
Image: fotosinteresantes via Flickr

Please do not misconstrue me. I bestow well-deserved kudos of heroic proportions to the millions of men and women who have campaigned and still campaign to increase awareness of breast cancer worldwide. God knows, it needs to happen. Breast cancer is an insidious, sometimes disfiguring, always frightening cancer that can rob families of their mothers, partners, wives and daughters. Breast cancer is a horrific disease that, thankfully, we are learning more and more about every day, due to the billions of dollars raised by communities all over this planet, and thanks to ever-improving early screening and detection programs. The lives of breast cancer patients are not just being saved but also salvaged, thanks to greater understanding of the psycho-social effects of breast cancer on women, their carers and their communities, lives, livelihoods and relationships.

Having said that, I will return to the point, because everything I have just mentioned isn't actually my point. Increasing public awareness of breast cancer, it could be said, has been a resounding triumph overall. It could also be said that breast cancer and all the various products and services related to it now have such a high media profile that breast cancer has become almost commodified in itself. Associating your event or brand with breast cancer in some way is likely to increase your profits and positive consumer sentiment toward your product like few other actions could. Unlike a lot of very disgruntled prostate cancer advocates, I stop short of calling breast cancer the 'sexy cancer', but you have to admit it has all the hallmarks. When I worked in advertising, I learned that either fear or sex will sell just about anything. Somehow combine the two and you have an advertisers dream. The female breast holds a veritable hemisphere of marketing power in our society. However, unlike ads which are aimed at increasing awareness of the link between lung cancer and smoking, we never see a single image of an actual diseased breast. We save boobies for the beer ads. It's all about brand association, and the brand for breast cancer is the colour pink.

Long associated with all things pertaining to youthful, sweet, feminine innocence, pink has been universally substituted for any actual physical images pertaining to the disease of breast cancer. Pink ribbons, pink t-shirts, pink logos and cricket stumps and bandannas. Now, as I see it, two obvious problems associated with identifying everything to do with breast cancer with the colour pink are: 1) Not all women who get breast cancer can identify with the colour pink and what it represents - submissive, baby-like femininity. And 2) Not all people who get breast cancer are actually female. Some of them, more than you probably think, are men.

Here's another conversation I'd like to relay to you. My friend Gary has something resembling the following interchange every other day of his life. "Did you hear? Frank just got told he has cancer.""I heard. Did you know, I had cancer?" "No way, really?" "Yes, actually, I've just finished treatment." "That's terrible, mate, I'm sorry to hear that. What kind of cancer was it? Prostate? Bowel?" "Actually, I had breast cancer." Incredulous stare, awkward silence. Do men really get breast cancer? As a man, where do you go with a conversation after that? Because men most certainly do get breast cancer. And Gary has really nowhere to go with it, in just about every sense. Nowhere in conversation, nowhere in the community, and certainly nowhere for the most part in terms of supportive care and services for his type of cancer.

Many hospitals in this country (Australia) now have, thanks to the militant fundraising efforts of outfits like the McGrath Foundation, breast

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Bgirl 6 pts

I love your comments about cancer snobbery. Cancer is still cancer, and despite trying to wrap it up in excessive marketing it still sucks! I admit it reminded me of the judging around grieving that drove me nuts. How old was your child and how they died seemed to decide what sympathy you were entitled to. My child was still dead, so was someone else's. Did I deserve more or less understanding!?

Yes people seem to forget that men do get breast cancer. Last week while sitting in the mamo waiting area, there was this other women who was horrified that I was causually chatting with a man who was also waiting. Apparently she had missed the co-ed signs on the changing/waiting area or was incredibly naive. There was a man in there. How dare he! He was obviously in the same boat as the rest of us. Thankfully our hospital had redone this area this year. Soothing earthtones as apposed to the pink palace it used to be. Even I thought it was patronizing before.

I can't pretend to understand what you have been through. But, I wish you the best for future health. Am currently waiting biopsy results, hoping not to join the statistics.

rdhtgrma 6 pts

In 2003 I found a lump on my husband's chest. Because his dad had died of cancer, I made him go to the doctor. (He thought it was nothing.) His doctor said it was fatty tissue. Nothing to worry about. A year later, the lump was visible when hubby was working in the yard shirtless, and he couldn't lift his arm without pain. I finally convinced him to go back to the doctor(but he already told me its nothing!). Guess what? My husband had breast cancer. By this time it had metastasized, and was in the lymph nodes. As a result my husband has lymphedema, and has been hospitalized three times. The last time he was in ICU for 10 days. MEN GET BREAST CANCER. IF YOU FIND A LUMP ON YOUR MAN'S(husband, lover, son, brother, dad, anyone!) CHEST INSIST ON A BIOPSY! Do not let the doctor just look at it, and poke it.

baraka_tales_Kween_KleoKatra 7 pts

Your writing style is exquisite! I Love it! Kudos to You!

Kissing Up 7 pts

Thank you for sharing your insights. I think about Farrah Fawcett's death and anal cancer. All illnesses are not respected or sympathized with equally.

AmyDoodle 8 pts

Thank you. I feel guilty every October that I'm bitter over the huge breast cancer pep rallies. I can't tell anyone because they wouldn't understand. Of course I'm sympathetic to those fighting breast cancer. But I lost my Mom, my very best friend in the world, to kidney cancer 15 years ago. All I want is to have her back, even for just a minute. Seeing someone fighting for her cause would mean everything to me.

craftykitten 6 pts

Thank you so much for this post. As a 27-year-old bowel cancer survivor (Dukes C) I have definitely felt that breast cancer is the most 'publicly visible'. All cancers are horrific, and everyone deals with it in their own way. I would like to say that actually, having a stoma bag is fine (Gwen Stackler's post below) but I would trade my breasts for working ovaries any day.

alienbody 83 pts

What a great post! I had my thyroid removed a year ago (a year ago today, actually) because of a lump that turned out to be cancer. Thyroid cancer has the stigma of being the 'easy' cancer and...well...for me it was, in comparison. HOwever, like any other cancer there are levels and different types and there are many struggling with aggressive thyroid cancers and many that won't (and already haven't) survived it. So, as much as I am known to minimalize my cancer experience, no one should make the assumption that any of it is easy or one form of cancer better or another. That form of snobbery is insulting. Thanks for the post!

Njgolfblue 6 pts

Wowie ~ Tears in my eyes as I'm reading this and then. . . Yes, even laughter! I have had such similar conversations about my cancer. . "Uh, No, not breast cancer, it was a rare sub-glottal throat cancer. . . . " One of my dearest friends passed away the end of May from Breast Cancer and it broke my heart. And I personally have 10 or more friends who are breast cancer survivors. It is also one of the causes that I do work with, however, I also work alot with Relay for Life and the American Cancer Society. There are so many Cancers out there and we need to find cures and better survival rates for ALL of them!! Also support MD Anderson Children's Cancer Center Art Project. Cancer has no bounds or prejudices. And hoping no one ever makes this a battle between cancers! Thank you for an awesome post!!!!!Good Karma going out to all of you!

kisschronicles 12 pts

THANK YOU SO, SO MUCH FOR THIS POST.

I can't even tell you what this post means to me. I tried to add some blue to the world for Prostate Cancer Awareness month (September), but there's just not much out there. It's just not a popular cancer to talk about.

"The other side is the responsibility we all have to become aware of the scope and effect all kinds of cancer have on a diagnosed person's family and friends, on the community and on our society as a whole." I love this mission. Love it.

Jo, I'm sorry if this is forward of me, but I'd really like to invite you to visit my blog: regarding blue Sept. http://wp.me/p1DM5L-7v, recent volunteering http://wp.me/1DM5L, and the project mission http://wp.me/P1DM5L-6m.

jenny meyerson 7 pts

I'm in remission from breast cancer. I was 30 years old and I've been in remission since 2004. I am also a nurse of over 16+ years. I hate the color pink with an amazing passion. And the support groups... Many of the people in the "support" groups were often not interested in getting better, rather they wanted to wallow in self pity. Don't get me wrong- we all have moments, but it was eye opening. I don't know many of my friends, female or male, who would have wanted to be a part.

My tumor was hormone negative, so it was considered more aggressive as almost all of the research is going to hormone + tumors. So I am one of those rare women who have breast cancer, hate pink, and don't have the million/billions of $ going to making sure that my cancer doesn't return OR how to prevent my 3 daughters from getting this damned disease.

I agree wholeheartedly with your message and as a nurse I'm an advocate for all people who have been struck by cancer. Cancer has no bounds or prejudices. I just caution anyone into making this a battle between cancers. No accusations however. I just want all of our efforts and energies going towards a cure. I think there are few who aren't aware that cancer exists. So quite frankly, screw awareness- it's time to take action across the board.

Jo Hilder 7 pts

jenny meyerson Thanks Jenny, I am very pro-inclusive when it comes to cancer, as I have seen how the exclusivity does much harm both in creating assumptions and in dulling peoples sensitivity to what those outside the major cancer types go through. When I was having treatment, we were all lumped in together, and in my support group, I worked to unite us around our common issues, and left who and what cancer out of it - we all had so much in common and so much to offer one another.

I would love to see all cancer research funds pooled to fight all cancers and support all sufferers - but that will never happen. Its a marketing nightmare :(

Thanks again Jenny, great to get your feedback,

JO :0)

alienbody 83 pts

jenny meyerson Great response! I'm on a Thyroid Cancer Survivors page on Facebook and there is a bit of grumbling about the anonymity of thyroid cancer. But again...they are focusing only on OUR cancer, not cancer in GENERAL. I do think it is a shame that breast cancer has better marketing and that others go *mostly* un-recognized. I got a tattoo of a butterfly to represent my thyroid cancer, BUT when it came to coloring in the ribbon (which is the body of the butterfly), I chose lavender to represent all cancers. A friend of mine died last month after battling triple negative breast cancer for 2 years. Another friend of a friend is in remission from leukemia, my grandmother had ovarian cancer...the variety goes on and on.

carrieactually 6 pts

i had stage 3b hodgkin's lymphoma with a grapefruit sized tumor just inside my lung cavity (the first of the symptoms that actually lead to getting diagnosed was that my bras got way too tight and uncomfortable in way too short a time period - there were days i didn't go in to work because it hurt to much to put on a bra). one of the things that frustrated me most about the experience is that the only support groups for young women that i could find within a 2 hour driving radius of my home were all specifically for breast cancer. i didn't want to go talk about breast cancer and i didn't want to go talk about cancer in general with a bunch of people 3 or 4 times my age.

Jo Hilder 7 pts

carrieactually Congratulations on your survivorship, its a tough road and I applaud your journey. I know support groups can be very tight knit and I too found most were for women with breast cancer, most much older than me. I went it alone whilst I had the cancer. It wasnt until many years later I began facilitating a support group but insisted the membership be open to all cancer types, phases of cancer including palliative and survivorship and also carers, friends and family were welcome. I foudn it very disturbing many of the cancer support groups in our area were exxlusive - women only, cancer type only, no carers etc - and thats why I started one. I moved away 12 months ago and its still going!

Thanks again for your comment.

JO :0)

Conversation from Facebook

Audrey Van Petegem
Audrey Van Petegem

Let's save the ta-tas and every other part of our bodies from cancer!

Esther Kraig
Esther Kraig

My grandmother died of colon cancer. For the women who don't want to think of other cancers as disfiguring, tell me that when you have to wear a colostomy bag for the rest of your life!

Lori Corby-Brown
Lori Corby-Brown

Just learned last year my grandma that passed when I was 10 had ovarian cancer....its not what she died of.

Gwen Stackler
Gwen Stackler

Yes! No one wants to talk about ovaries at the table. And their first thought, if they do talk about it, is "Oh, does that mean that you can't have kids?". My worry is that I could die, not that I can't have kids.

Phil Weaver
Phil Weaver

It's also interesting to consider the point from the point of view of another charity. It's tought to compete.

Phil Weaver
Phil Weaver

Finally!