Returning from our first FIRST National Family Conference
By Blessed by Brenna on June 23, 2014
This weekend in Indianapolis, we joined hundreds of others living with ichthyosis - parents, siblings, family members, and dozens of adults and children who have ichthyosis. We came together for the FIRST National Family Conference, which is a biennial event held in a different city each time. We learned and learned some more, we shared experiences, we asked so many questions, we laughed until we cried, we cried until we laughed, and we said "I understand" and "me too." We danced, and we hugged, and we didn't want to leave. . . .