So, last Thursday I was told by my Doctor that I did not have carpal tunnel syndrome in my almost useless hands, that it was something else. We did a list of questions and symptoms and he diagnosed me with fibromyalgia... What?!?!
Although I had heard of it in passing I had no idea what it was about so I did some research on the web and looked at my health plan's website and found that my symptoms did match perfectly except for one- severe menstrual cramps- which I don't have because I had a hysterectomy 2 years ago. But before that, yes they were severe. So I had a coffee meeting with my friends and told them what the doctor said and the response was less than helpful. I heard things that varied from "that's what they tell hypochondriacs" to "it's a catchall for peope who don't have any real problems"... I was offended at the fact that anyone who knows me would think I was a hypochondriac. In fact, the last 3 times I was sick I waited to go to the doctor until I was at death's door and ended up having emergency surgery... So for a group of women (who are 13 years or more younger than me) to infer that I was overreacting and was not sick just had it all in my head I was, in a word, a little offended. But I kept my thoughts to myself while making a solemn pledge to myself to be more supportive when their young bodies start to fall apart. When I have to wear braces on wrists and elbows everyday I think that I should be taken seriously. I don't wear them for sympathy. In fact, I hate wearing them because although they are black they are less than fashionable! If they came in a Burberry print, well, they would still look terrible. I decided to start this blog in order to chronicle my issues and give hope to other women who may face this same diagnosis. You can live with fibromyalgia- I think it will just take a little time to learn... Maybe we can learn together :)
Comments
Quite True - Find Alternative Support
Part of what you learn when you have a condition is that people make judgments on you and not the condition. It seems that you have to have a "serious" non-refutable condition like cancer before they can accept that there is a physiological problem.
If you have an invisible condition and there is no clear definition of what is it (i.e. it is more than just one thing) then you get these weird media and pop culture pronouncements of the validity of what you have and are experiencing.
I encourage you to locate local and on-line support groups to help you move forward. Some of your friends will drift away and you are going to need help and support to guide your health management needs.
Gena - Out On The Stoop
Thank you
Thank you for the advice- I am finding a lot of support from the community at large as far as classes and groups that meet to discuss coping. I have also gotten a membership to the NFA and their magazine has had some good suggestions too..
Kelli